Heat Wave: I’m learning that not only... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,987 members67,154 posts

Heat Wave

ratoncita profile image
15 Replies

I’m learning that not only can I not handle cold but, can’t handle heat either! So happy we have AC. I’ve not been outside today except to water some plants on the deck. It’s 45 C out there on the south side. A few degrees cooler on the north side. Also, I’m also keeping the doors, windows and curtains closed.

How is everyone else doing?

Written by
ratoncita profile image
ratoncita
To view profiles and participate in discussions please or .
15 Replies
Africanmonkey profile image
Africanmonkey

You are not the only one who is like this, I am having to adjust my life to cope with all this. My hands are so hot when in bed and my legs cold it is causing me to loose sleep and I am a carer for a man who is bed ridden 24 7 unless I get him out of bed for his exercise. Well today he is not going to be getting out as my fybro is chronic so he is throwing a tantrum and has called the police.

MiaMiaowMiaow profile image
MiaMiaowMiaow

Hi Ratoncita, I'm not sure what's worse. Heat or cold? I'm absolutely dreading the next few days here in London. Have already changed an appointment to avoid having to go out there today. Think I've got a problem with temperature regulation along with all the other joys this condition brings. Will be melting like an 🍦 by the afternoon.

ratoncita profile image
ratoncita in reply toMiaMiaowMiaow

Oh yeah, temperature regulation. Forgot about that. Maybe that’s why I’m nauseous and have a headache .

AllthatGlitters profile image
AllthatGlitters in reply toratoncita

I have been feeling sick with a headache too, maybe it is another lovely symptom for us 🤮

ratoncita profile image
ratoncita in reply toAllthatGlitters

Oh lovely! How hot is it where you are?

AllthatGlitters profile image
AllthatGlitters in reply toratoncita

It’s been 21 degrees here x

MiaMiaowMiaow profile image
MiaMiaowMiaow in reply toratoncita

I thought it was just me. Has been awful the past few days but thankfully much cooler today - so far at least!

Brigga profile image
Brigga

I live in north-west England and we haven’t had any heat at all this year. I’m really dreading winter though. I didn’t used to mind it but now I’m stuck at home so much it’s awful. I can’t tolerate the cold anymore and I’m terrified of slipping and falling when it gets frosty.

Smilesalot profile image
Smilesalot

Hi ratoncita, I'm in the same piece of mind. It's too hot for me at 23 at lunchtime. It's now 2 pm .Had lunch😂

I'm in a lot of pain now. Tonight will be a nightmare.

I'm so happy you have AC . Our landlord we couldn't have it😐.

I'm a middle of the road temperature wise. We have bought thermals for winter and layer up nicely.

Have a good day hun 🤗

ratoncita profile image
ratoncita in reply toSmilesalot

You have a good day too! 🤗

Yassytina profile image
YassytinaFMA UK Volunteer

Horrid, been awful last couple days and making me feel worse as extreme temperatures. Im armed with a fan , cold head band. Wet tea towel around my neck 🤣says 22degrees Sunday that’s better 😃x

Midori profile image
Midori

Hi,

Oh, how I can relate to what you have posted! I tell people my Internal Thermostat is broken! Winters are too cold and summers too hot, The winds cut right through me and the rain makes me stiff!

Cheers, Midori!

ratoncita profile image
ratoncita in reply toMidori

we had a big wind storm here a few days ago; put me in bed before dinner time.

ratoncita profile image
ratoncita in reply toMidori

And yesterday it was rainstorms which put me in bed again, before dinner. Very grateful for the rain (wildfires) but boy it sure kicks my butt!

Elaine200756 profile image
Elaine200756

Same ratoncita! Heat and cold trigger flares. So I too am indoors with curtains closed but I have all windows and doors open for the breezes. I have a fan in the living room and 1 in the bedroom and they help me to cool down.

I am unable to do anything due to the fibromyalgia flare but I'm enjoying the Summer by reading and playing my favourite music - reggae, soul and Tamla Motown! Yay! I have lots of ice lollies and ice pops in the fridge along with my fruit. And I have sliced lemons and ice cubes ready for my water so I don't dehydrate.

I'm on holiday in 2 weeks and the hotel has a pool, so I will get in the water if I have the strength, even if I'm not well enough to have a swim. Love water, so happy days to all in spite of fibro xx

Not what you're looking for?

You may also like...

Heat flare

I’m guessing everyone can relate to this one. I’m really struggling with all over body pain because...

abroad heat

anyone been abroad with fibro and found the heat helps you feel mire alive and less pain? Im going...
dolphin21 profile image

Concentration has leapt off the face of the earth

I'm usually a keen and good reader, but lately I feel as though my reading skills have been shot...
trae profile image

Heat

Hi how is everyone coping with this heat and the fibro? As much as like to see the sunshine the...
lindamorgan profile image

shock wave therapy or oxygen therapy,

anyone tried , shock wave therapy or oxygen therapy, I’m about to try. Will let you know the...
JazzElvis1 profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.