Heat Wave: I’m learning that not only... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Heat Wave

ratoncita profile image
12 Replies

I’m learning that not only can I not handle cold but, can’t handle heat either! So happy we have AC. I’ve not been outside today except to water some plants on the deck. It’s 45 C out there on the south side. A few degrees cooler on the north side. Also, I’m also keeping the doors, windows and curtains closed.

How is everyone else doing?

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ratoncita profile image
ratoncita
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12 Replies
Africanmonkey profile image
Africanmonkey

You are not the only one who is like this, I am having to adjust my life to cope with all this. My hands are so hot when in bed and my legs cold it is causing me to loose sleep and I am a carer for a man who is bed ridden 24 7 unless I get him out of bed for his exercise. Well today he is not going to be getting out as my fybro is chronic so he is throwing a tantrum and has called the police.

MiaMiaowMiaow profile image
MiaMiaowMiaow

Hi Ratoncita, I'm not sure what's worse. Heat or cold? I'm absolutely dreading the next few days here in London. Have already changed an appointment to avoid having to go out there today. Think I've got a problem with temperature regulation along with all the other joys this condition brings. Will be melting like an 🍦 by the afternoon.

ratoncita profile image
ratoncita in reply to MiaMiaowMiaow

Oh yeah, temperature regulation. Forgot about that. Maybe that’s why I’m nauseous and have a headache .

AllthatGlitters profile image
AllthatGlitters in reply to ratoncita

I have been feeling sick with a headache too, maybe it is another lovely symptom for us 🤮

ratoncita profile image
ratoncita in reply to AllthatGlitters

Oh lovely! How hot is it where you are?

AllthatGlitters profile image
AllthatGlitters in reply to ratoncita

It’s been 21 degrees here x

MiaMiaowMiaow profile image
MiaMiaowMiaow in reply to ratoncita

I thought it was just me. Has been awful the past few days but thankfully much cooler today - so far at least!

Brigga profile image
Brigga

I live in north-west England and we haven’t had any heat at all this year. I’m really dreading winter though. I didn’t used to mind it but now I’m stuck at home so much it’s awful. I can’t tolerate the cold anymore and I’m terrified of slipping and falling when it gets frosty.

Smilesalot profile image
Smilesalot

Hi ratoncita, I'm in the same piece of mind. It's too hot for me at 23 at lunchtime. It's now 2 pm .Had lunch😂

I'm in a lot of pain now. Tonight will be a nightmare.

I'm so happy you have AC . Our landlord we couldn't have it😐.

I'm a middle of the road temperature wise. We have bought thermals for winter and layer up nicely.

Have a good day hun 🤗

ratoncita profile image
ratoncita in reply to Smilesalot

You have a good day too! 🤗

Yassytina profile image
YassytinaFMA UK Volunteer

Horrid, been awful last couple days and making me feel worse as extreme temperatures. Im armed with a fan , cold head band. Wet tea towel around my neck 🤣says 22degrees Sunday that’s better 😃x

Midori profile image
Midori

Hi,

Oh, how I can relate to what you have posted! I tell people my Internal Thermostat is broken! Winters are too cold and summers too hot, The winds cut right through me and the rain makes me stiff!

Cheers, Midori!

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