I'm actually very annoyed at my own stupidity now, I am my worst enemy and with OCD as well,
π π π π π
My Hubby suggested just to spell as I hear it and you clever Fibro warriors would understand, I think maybe that's why I've started drawing again?
So My chrome book has lost the ability to take pics now, Something to do with a data clear I did as I was instructed and now I have lost all my Pin/ter/ests I had over 9,000 pins for all sorts of handy things! I have to find my mobile at some point for pics,
I haven't seen it for around 4 years now so i hope it hasn't exploded.
Hope everyone has a good rest and a good day (as can be)
Written by
Debsdelight72
To view profiles and participate in discussions please or .
Multi tasking was second nature to me. Now it's 100% just one thing at a time or I get overwhelmed and anxious. The lack of concentration and inability to follow a conversation, or losing words, yes, hugely embarrassing. At its worse I avoid interacting with others.Very much worse when extra tired.
But,trying to be positive using an iPad or whatever means I can take my time and ( mostly ) avoid spelling mistakes. My bad thing is not noticing auto correct has thrown in a weird word!
This is me now. I avoid getting into situations where I will be in a crowd and may need to speak to someone, my self confidence has really been knocked π΄ π―
Yes it's horrible that even our own confidence makes us withdraw from people. I use earplugs in really noisy places to full background noise but still don't always want to face anyone on a very bad day. Makes you feel so stupid and smallPhysical heath and mental/emotional health I know for me have a massive impact on one another
I honestly really understand what you're saying, I only got diagnosed in March this year but have been suffering for years, with the last 3 years being significantly worse. I had to go off on sick leave, alot was due to fatigue and brain fog, I couldn't keep up with the paperwork, or in meetings, I was jumbling my words up all the time, not remembering what people had just literally said seconds before to me, same with reading. I didn't know what the hell was wrong with me. Anyway cut a long story short, my GP is focusing on my mental health 1st with the thought that if he gets my mental health sorted, my pain will lessen, however, I know for sure that it's the decline in my health that is affecting my mental health, the fact I had to give up my career, still upsets me to this day, I've been out of work just over 2 years. This condition has kept taking away my independence more and more and I absolutely hate that! I'm grieving the life I once had. I've always been T1 diabetic and that was enough, never mind having fibromyalgia on top of that now. There are days I just sit and cry about how much I've lost, how cruel this is to us all on here. Sending hugs your way Hazelcats, I hope you get more better days ahead of you instead of bad ones. I'm always here to chat if you need to, my inbox is always open seeing as I can't bloody do much else ππ€ͺπ€β€οΈπ€β€οΈπ€β€οΈ
That's me Angela! I'm an recent diagnosed too, December for fibromyalgia and the April for inflammatory arthritis. But like you the symptoms have been worsening for about 3 years.I thought all of it, all the symptoms, were connected to perimenopause ( that's when the serious MH came in ) but nope it's just all kicked off all together. Like you, I know the physical and mental are 100% connectex. Touch wood the AD I am on helps the mental side of things, and the high hrt helps the cyclical mood swings.
Am trying to get the arthritis stable before I move into the fibro. It's a mess isn't it?
But I have learned to accept the things as they are. Some I have little or no control over so I try not honest precious energy ' fighting those ' so mostly ( and never always ) I don't try to grieve over how I was. This is my new ' normal ' no matter how much I hate it. It's like everyone around us is living a full life like we used to have.
It's a total life changer. I try to congratulate myself on the small achievements. But it sure isn't easy.
Please, I am here too if ever you need. Anytime. Msg whenever. I'm no expert ( who is ) but I get it.
All of us are in this together and believe me someone responding like you have to me can make a person's day.
I send you the gentlest of hugs and hope today is as best as it can be.keep going, Angela, it's baby steps all the way but we can gradually improve, even if some days it doesn't feel like it.
Oh Sarah, I feel every word you said! My diabetes consultant thought they I may be in perimenopause also but due to me still having a contraceptive implant fitted she said a test would come incorrect and it's not worth taking it out just to test. I mean, I honestly don't need it now but it does stop my periods and that's why I have always had them put in every 3 yearsThey've said after this one expires in roughly 1.5 years, they can test then.
I am sweating profusely at times, it was all the time when I was on Duloxetine however I came off that a couple of weeks ago and I'm now on Venlafaxine, which is actually making me feel that little bit better so far, but the previous 2 days. I have been sweating again. Unfortunately sweating is a side effect in most of the antidepressants they use so it's all trial and error at the moment. I've got to day though that I'm not feeling quite as groggy in the mornings, but I know I'm speaking too soon yet to say for sure that the Venlafaxine is helping me. I am seeing my GP again end of this month to review the meds. Luckily I'm already on DHC for back pain and I take Amitriptyline 30mg at nighttime. Only thing is, they are now weaning me off the DHC but I'm not agreeing to end it until I know I have something else in place for the pain.
You are spot on with saying it's a life changer! I try not to dwell too much but some days it's hard not too, especially, like you said, when you see others living their lives as normal while we sit and watch wishing things could be the same for us.
I love this community though, alot of my friends and family do not understand fibromyalgia and haven't bothered to even try to understand it. You certainly find out who your real friends are when you are vulnerable and in need of support. I've received that support, compassion and positivity in this group, but sadly not with those around me. Don't get me wrong, the people who do support me, I can rely on those, but it's a very small circle and I don't want to burden them too much, I hate that feeling of being a burden on others so I try not to speak to about how I feel, I don't need to when I've got this lovely group of people on here that I can talk to which is so much better as you all know and understand the struggles we do go thru.
I've become good friends with a lovely lady on here and we talk everyday. It's been so nice to have a friend like her π
And same to you, please inbox me if you ever want to chat it's nice to find a friend who know exactly what you're going thru and understands your daily struggles and needs.
I look forward to speaking to you more and getting to know you a little better β€οΈ
I find it quite scary sometimes to think how very much our brains actually do or don't for that matter π€ I know it has something to do with my lack of restful sleep,
My computer under lines a word when I've spelt it wrong but doesn't give an alternate, So I have to keep up trying with different letters until it's correct, What a drag π
Just about everything! Hand write reports at work and have to spell check on my phone all the time, even silly little words. Also seem to write things round the wrong way? What's that all about?
Multi tasking? π I'm so calm at work but inside I'm an absolute wreck, knowing I'm one step away from overdosing someone! If there's too much going on I just can't concentrate, my brain just goes into meltdownπ΅βπ«
People I've worked with for years and I can't for the life of me remember their name. If blagging your way through your day was a sport I'd definitely win gold.
Running on 3 hours (ISH) sleep isn't fun is it? But hey, made it through another day without killing someone so that's always a bonus π
I think it does count a little bit, similar with people on bikes and wanderers when I drove my bus! What is the fas/ination with trying to get run over,
Yes totally understand, I was a secretary/PA snd Iβve found I have to ask sometimes how to spell things and feel so embarrassed by it and sometimes it doesnβt even look right, itβs awful how it make you feel inadequate especially if youβre a perfectionist too.
Spelling! My mum makes fun of me when she sees stuff I've written. The worst thing about this for me, is that I have an English degree, so I must have been half decent at some point. My memory is awful. I spoke to a lovely lady on here and was going to reply, but something happened and I didn't have time there and then, and now months have passed and this has just reminded me (no, I don't have very many friends now either).
Don't be disheartened. In 2024, most people use slang, shorthand, emojis, all sorts to communicate and spell check is there for formal stuff. As long as the intended person knows what you mean. Nice support from your husband. My mum just thinks I'm stupid xx
I can relate to that hun, my mum could have been a teacher but had 5 children instead as dad wanted a big family as heβs one of 17, yeap 17, but Iβm 20 months off 60 and my mam still corrects me and Iβm like will you give me a break, on top of having a neurological overload and couldnβt walk I now have neuralgia of the brain and I canβt remember things, peopleβs names,places etc besides fibromyalgia and brain fog so itβs frustrating enough without being corrected too, I have 7 A levels, a degree and English β0β level for secretaries in those days and still feel thick πββοΈ
Why do they do it? I don't laugh at my kids if they get stuff wrong. I was in school year that they did an experiment on and had to do all GCSEs, no options. So I have 11 GCSEs, 3 A-levels, a BA English and Sociology and an MSc in Social research. But because I can't spell I'm a joke.
My daughter sends me her essays for me to check her grammar. Her content is brilliant, and she can spell, but she struggles with sentence structure etc. I send it back with highlighted changes and she is beginning to learn from it. That sort of help from my mother would have been appreciated, but it turned out that I got on alright without her and despite her π
Hi Debs. I lost all my artistic ability and confidence and energy. I'm sorry ur struggling but I believe you will relearn what you want hun. You have OCD so you will persist till you do it. I agree with your hubbyNow I'm exhausted love n hugs Dawn π€
Yep , there are days I go too write a word @brain fog steps in π€£bit like plant names I think I should know that πand spend the next ten minutes trying too recall πΊππ·
I also write the wrong words I seem to struggle with my No:8, Letters cant seem to even do my S's, D'ds, B's and mucks up my cursive,I have to write same word several times to me the word just doesn't look right π
10 minutes is pretty good going! π I spent the whole drive home from work the other day trying to remember the make of my carπ I've had it for 3 years!!!π
We collected our rather nice mobility van not so long back, Hubby popped into shop, I looked at the shop window and thought, we should have one like that (We had a very beat up one old and sad,) If you got on the ramp a cm either way,You'd end up over the side,
When he came out I said, look at that van it's nicer than ours, π€¨
Look at the window, I am a daft arse it was a reflection!
lol the other day I could not remember my registration for car park π€£cause you have too tap in now(gone are the days you could pass your ticket on πtoo help someone when you had an hour left.
HiMy memory is terrible!! Also, for some reason I will miss a letter out of a word and spend ages wondering why it looks wrong π€£π sleep? What's that?!?! I have an hour or less sleep per night due to pain (from other conditions as well) and then I only sleep when I'm exhausted and then wake up in agony π€· xxxx π π
Yes Debs, I'm the exact same. When I go to write biscuits I'm now writing buscuits, things like that, thank God for spell check! It's embarrassing π³ xx
Thank you for all your replies my lovely Fibro family,
Hubby says if I write something on a list for him or a team effort for whatever we are doing I say the wrong word or letters are really messed up, Hubby the angleπ he is,says he knows what I mean and doesn't need to tell me all the time and make me anymore upset than I am alreadyπ¨
I was going to say, Thank goodness it's not just me, But what I need to say is,
Thank you for making me feel like I'm not alone, I'm not going mad, I will continue to find a better way to live with the curse of Fibro until some one comes up with a cure
Me too Iβm afraid, my good spelling has gone out the window & now I get really dyslexic moments! That & my good diction has disappeared as well and embarrassingly Iβm constantly having words filled in for me by my husband, my octogenarian parents and even Gp & consultants! Maybe itβs a sad part of fibromyalgia life. As for multi tasking whatβs that!?π€ͺ Guess we just have to have a chuckle or 2 about it.
Chuckles or curled up in a dark corner, No one knows you are there and hoping your sobs don't run down your face with snot and never enough tissues,
When you try to speak and the words just don't come out then for me anyway,
The next breathe I take I wonder.... What am I doing? π€·ββοΈWhere am I?π΅βπ« Why am I crying?π
Who knows I've forgotten.ππππ
π€π€π€ ironic sense of humour goes a really long way for me sitting in a corner crying doesn't help me control my pain, It doesn't help when I've forgot my dogs name, and it doesn't help me if I get scared because I hate the way this curse has taken a huge part of my life and my Hubby's life and flushed it down the toilet,
We are here and together and I think love keeps many a problem away if only for a moment,
Mental arithmetic! If I have to do any kind I cannot remember the numbers I'm working with. Used to play darts and could add, multiply, divide and minus in an instant, now not only can i not play I cannot think either π
Yes I used to be really good at spelling, people at work would often ask me to spell things they couldn't. Now I rely on predictive text most of the time and always re read what I have written ( I always remember the time my daughter replied with sweet and sour panda, when I asked her what she wanted from the takeaway) I also forget different words for things when I am tired and have to ask my husband what I mean, he is very patient with me.
I like to watch programmes that have an eye for facts as well as some comedy,ie QI is a good one, Countdown and a version of it with comedians later at night,(Swearing warning)
During the day I enjoy watching fact and fiction, Programmes that cover the paranormal and the like,
I'd rather read but weather I have the brain power to read is a different storyπ§ π§
I feel terrible when I am talking to someone and because I forget the word I want to say the other person says it for me I feel ashamed and I used to be good at spelling know I can't remember how to spell I keep going over and over the word to see have I spelt right also I miss getting upto do things I want to do but I am in soo much pain I feel so helpless Dam fibro just wish they whould find a cure at least I have all of my fibro warriers love you all fibro hugs for allπ€π€π€π€π€π€π€πππππππππππXxxx
I can sympathise with you, I donβt t know who I am anymore,what I want or why, my anxiety and depression is through the roof but because I wonβt take any antidepressants because thatβs what caused the neurological overload in the first place by being taken off them too quickly, the doctor said there was no point in seeing the psychiatrist but I have a lot of trauma and issues that need addressing so need to see a psychologist but he didnβt want to know, anybody else have this problem with their doctor. Iβm very weepy like you and in FFF mode all the time, Iβve lost a stone with stress so now only 7st 11lbs, donβt want to go out or anywhere and have to psych myself up before hand, spend 2 hours getting ready every morning because I donβt know what to put on and losing that much weight Iβm very conscious about it, anybody have any suggestions on improving my situation, anything would be appreciated β₯οΈ
I'm at the opposite end of the scale(s) trying to cover all the extra bits up! Only eat like a bird though! (If said bird eats a mountain of food π)
Would it be possible to speak to another GP or sometimes it's easier to write everything down in a letter explaining how you are feeling.
Explain your reluctantance and reasons for shying away from antidepressants, your anxiety and weight loss, how it's affecting your ability to leave the house, detail as much as you're able to.
Kindly request a referral to Psychology stating the reasons you feel this would be helpful for you and would also appreciate any suggestions from your GP going forward.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.