So, I had that all important appointment with the new rheumy yesterday to talk about the catalogue of symptoms that have been stacking up over the last 18 months, culminating in me giving up work. RA was ruled out, but Lupus wasn't because it turned out the good old NHS who insisted I didn't need this referral, hadn't ordered the right tests for Lupus screening. So although still awaiting those results, what she did diagnose, in addition to Fibromyalgia, was hypermobility syndrome. She said I was in a mess, and since it had taken me a long time to get me into the mess, it would take even longer to get me out of it.
I have to make exercise my life, and even if I do nothing else with my day, I have to swim, cycle, Pilates or row. Where do I even start??? I can't walk down the stairs at the moment? Help! Xx