sometimes I wake up but can’t move straight away
Sometimes can open eyes but a few times I have wet myself too only a small amount but I tryed wearing a pad and it misses it even long pads think cause I am laying down don’t know if it fibro or meds I take gabapentin amitriptyline and mitzapine
Hi, not sure I would say it was fibro causing you to be incontinent. I would lean more towards the medication putting you in a deep sleep. That's just my opinion.
You dont say how old you are but age can also be a factor for both men and women. There can be many reasons other than fibro. I would suggest you see your GP.
Momo
Hi Pinky 768,I have been incontinent for years now. I too don't know why.
Hugs for your day starting off bad🤗
I went through a phase of deeply peeing myself. I bought pads nappy s special incontinence bedding.
It's very useful for accidents but as I'm not very mobile washing is all down to my carer. Embarrassing eep.
I wear drop 6 always discreet pads all the time.
I don't always get much notice meh.
You are on strong meds I don't know doses so I can't tell.
Ah my carer has nipped out to get my meds hopefully including my morphine.
Ah Mimi goose wants feeding.
Thanks hugs🤗🤗Dawn
Hi there, you are 43 years old and you say it’s been going on awhile ?im guessing your doctor or practioner nurse is aware ? Like Dizzy says have you asked if the medications can afffect you? Glad you have a carer on board for help ,they can be a god send especially getting out for your meds or supplies. Take care xx
Hi Pinky,
A boy answering this might not be the done thing but it is meant with good intent.
When I had my accident 40 years ago the nerves from my L4 vertebra were damaged which left me with some paraplegia. Unfortunately that meant bladder and bowel incontinence which I have dealt with all this time and when I was working that could lead to embarrassment in meetings and the like. I have always shyed away from a catheter or colostomy but as the years went by I could deal with it and did in fact improve for many years but I retain 0.75 ltr of fluid in my bladder at all times. I visit the loo once an hour to keep me empty as I can and my last drink of the day is around 4.30pm to try to keep me as empty as I can be through the night.
Now after every operation, and I’ve had 15, because of cathiterisation in the operation theatre, I struggle with wetting myself on movement afterwards. It takes six to nine months to recover back to an acceptable level. The medical team offer to teach me to self catheterise so that I can keep myself on empty or use a catheter through the night.
It’s not the nicest of things but without the spinal damage it is not a permanent thing, just a help now and again to get you through a situation.
Talk it all through with your GP (if you can get an appointment!).
If nothing else just know you are not alone and there is always a sympathetic ear here.
X
Hi OnceabikerI felt that was a nice reply to Pinky768.
You have had it bad and I persume, hopefully right that you once rode a bike.
Just wanted to say how hard it must have been to give up your bike and to send you hugs. 🤗🤗🤗🤗
Thanks for the kind thoughts, when I woke up after being in a coma for a month I was told I was paralysed for life, the first thing out my mouth was “Oh, I’ll have to race a go Kart instead!” As I’ve said before 6 months in bed, then parathesia - the tingling and muscle spasms in my right leg - meant that the messages were beginning to get through once again as the swelling around my spinal cord reduced. Even though I was on crutches I rode a friends motorbike 3 miles around the block a year to the day of the accident, I just had to do it.
About eight years later I bought the first of many I’ve owned since the accident. The last one was sold in August 2021 as I no longer had the strength to hold it up when pushing it around.
Trouble is, as Fybromyalgia gives you plenty of time sitting doing nothing my mind dreams and I find myself looking at bikes I can’t afford on EBay!
Best wishes,
R.
As they say Once a biker always a biker. My husband rode many bikes he loved them but now he has Osteoarthritis in practically every joint so unfortunately like you he sits and dreams and looks at the bikes he would like to have. You've had it rough and then to get Fibro on top. Life isn't fair at times.
Hope things get a little easier for you.
Lilly x
Hi Pinky768I would like others have said make an appointment to talk to your GP. It could be your meds or it might be something else.
So hope you get it sorted.
Love and hugs Lilly..❤️❤️🫂🫂
Oh you poor girl. I went to a wedding recently and didn't make it to the loo in time. Never happened to me before FMS. Constantly worried about my lack of bladder control Don't prevaricate! Go to your GP! I wish I had when it first started, now I feel bad because I panic now if I'm not near a loo. Good luck.
Hello sorry not been on site for a month or 2 not been well. I could get to the point of nearly weeing myself eyes streaming and still hold it to get to the toilet yet after my experience on gabapentin I was weeing myself as u say not loads couldt get up made things on me hurt that didn't hurt b4 made my legs so bad I struggled to get 20 steps across the hall to the toilet and was completely confined to my room no one saw me for weeks my family live in same house it made problems I did have worse. The doctor prescribed 1 a day then 2nd day 2 then 3rd day 3 a day and go from there. I waited a while b4 I even started them but what finally pushed me to was the burning nerve pain all over like I've never felt b4 last winter I didn't have it like this year. I was going 2 or 3 days without sleeping and wen I did sleep it was only for an hour or 2 here or there I was walking with my eyes shut they sed it help with sleep so I took 1 and the first nite I slept well and seemed OK. I carried on for a week just taking 1 a nite as I l no my own body but it stopped working after a few days sleep wise I couldn't open my eyes but my brain was wide awake I needed to move and I needed a wee bad couldn't move couldn't open eyes either I upped it to 2 a nite just for a week I just wanted to sleep and not hurt but after a week of 2 a nite that's wen it got bad really bad and incontinence is a rare side effect apparently but I got it for the first time in my life my legs swelled. Its dangerous to stop straight away so I reduced it back down to 1 a nite then stopped and gradually I've improved from it but because it stopped me walking I would just go up and down my road for my legs they r now worse and now click my knees that didn't happen til I stopped walking. I don't no if any of this helps I've been trying to lay for hours now get up for a week lay again so I'm awake but not awake so apologies if it don't make sence or answer ur question. I started back on setraline after a 2 year break as suicidal an self harm started again coz I'm stuck in here then 1 nite I sed goodbye to my cat I promised him I'd never leave him wen he was a kitten he just turned 10 but I couldn't take anymore I took 3 diazepam for the mean time while I decided wat I was going to do it was like 3am and I have actually found since then it very much improves sleep muscle cramps and some nerve pain well better than nothing anyway but I've run out of old supply and am only prescribed 14 for a month I need 2 a day to feel able to do stuff this year I saw abit of christmas eve and quite a few bits of christmas day in stages meaning I made it downstairs to my family as last year I couldn't and missed it but needed 3 a day those 2 days then boxing day came I was so exhausted I only saw aboit an hour of it in total trying to b awake minus needing a wee every few hours. The nuorologist said either amitriptyline, gabapentin or pregablin I went against amitriptyline as causes severe constipation says on label so never took em spoke to my gp months later oit of which 2 to try she chose gabapentin over pregabalin but they are in the same family of medications and what is rare or uncommon side affects on gabapentin is common or garrenteed with gabapentin and likely to happen sooner than the other. I have been referred to the pain clinic they have many sites or can do online or phone I've yet to have my assessment with them so no advice on that bit yet. I hope this helps even slightly. Mind you everyone is different and what works for some is terrible for others. Sorry I'm loosing my concentration I really need a wee only went 20 mins ago. Never had that b4 fibro constantly weeing all the time weather I drink loads of no where near enough. I don't even no if I've wrote this in the rite bit or answered what helps not really with it feeling rough since Sunday not been even able to brush teeth since Saturday and even longer since shower. Feel free to message back ill try get to it when I make sence more
Just thought of something else they say opiate based medications are the best for pain, nothing I've tried helps with bone pain so far but if nerves and muscles are helped abit it's abit less to deal with but I'm reluctant to try it after it's been offered like tramadol or anything codeine in but after a past of years of drug abuse due to mental health and PTSD I don't really want to go there again. I stopped all medications in feb- March 2022 apart from thyroid medication as been on anti depressants and such since 18 I'm now 35 so took a 2 year break after recovering from all the withdrawals of that in April 2022 my mind felt amazing but end of May early June 2022 I started becoming physically un well my mind was still good I kept going to gp for which no help it got worse and I gave up on them in the end passed my consent to medical care to my mum in all the systems as she is my carrer anyway, missed a year of my life then she had a hip replacement my stepdad not long after had his gall bladder out and we was all physically not well I struggle with stairs but during that time I couldn't even go down to fill up my water bottles had to keep asking for help. I still struggle with stairs and on an average day only do 2 trips down at night which is still hard. Only received fibromyalgia diagnosis in late October 2023 after scans and blood tests and doctors and nurses not listening very frustrating. If you have mental health on your system they tend to have the approach of its all in your head. I needed to take care of my mum after her operation but couldn't get down to her luckily my sister and her young children temporarily moved in just before Christmas and was able to take care of my mum make sure she was eating and such and they take down and bring things up to me which is helpful I still don't see my family even though they are all in the same house I contact my mum and sister in the same house through WhatsApp to check on them or to ask them for something I need. If you ask your gp to be reflected to the pain clinic they are rhe specialistist and are best to help what works for you best. Hope this helps?
strange area s of discomfort/sensation
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