What's your strangest symptom (s)? - Fibromyalgia Acti...

Fibromyalgia Action UK

59,986 members67,154 posts

What's your strangest symptom (s)?

Jaxxf profile image
20 Replies

I've had problems for over 10yrs with no diagnosis of fibro but can't think what else it could be.

I'm sure we can come up with a list of typical symptoms easily but what are the strange ones you all get?

Mine (which come & go) are .......burning lips & tongue, circular head pain (like someone has welded 10p coins on it) & tender but not swollen neck lymphs

Be interesting to hear what fibro throws up for others and yet we manage to keep (on the whole) cheerful x

Written by
Jaxxf profile image
Jaxxf
To view profiles and participate in discussions please or .
Read more about...
20 Replies
phlebo123 profile image
phlebo123

Hello, for me it is probably the random stabbing pains I get, which happen right out of the blue! I can be sitting comfortably watching TV or reading and then suddenly I will get a sharp shooting pain (anywhere... arms, legs, torso) which only lasts a few seconds, but causes me to cry out in pain/shock... My husband looks at me like I am mad!!! It feels like someone is sticking pins randomly into one of those voodoo dolls :)

I also suffer from tender lymph glands but usually the ones in my armpits.

Jaxxf profile image
Jaxxf in reply tophlebo123

Hi phlebo, I occasionally have them but I had put it down to too much exercise! I'm doing all I can to keep some fitness and thought it was like trapped nerves lol!

Jaxxf profile image
Jaxxf in reply toJaxxf

I think the lymph node thing is quite common 😢

Nonameavailable profile image
Nonameavailable in reply tophlebo123

Voodoo doll!!!! Exactly 👍🏼

Frankiebeee profile image
Frankiebeee

I sometimes get nerve pain in my nose, which I find bizarre

Jaxxf profile image
Jaxxf in reply toFrankiebeee

Wow that's a strange one Frankiebeee!

Dinkie profile image
Dinkie

I find the internal tremors weird. If I didn't know better I would think I was pregnant! :)

Also the random stabbing pains. Must be a good market in those voodoo dolls - shouldn't have made so many enemies over the years!

Also the random twitching particularly in the eye - can get quite embarrassing.

Patdoyle profile image
Patdoyle

Internal tremors feel like a baby kicking in your tummy!

Al10 profile image
Al10

Random nerve pains firing esp in feet and legs. Kinda sets in for the evening with of course, nothing to see again. Can be night after night and then? Nothing for a while. Weird.

DanielleGemma profile image
DanielleGemma

Hey,

Normal symptoms include:

- Pain in my pelvis and back, legs, arms, hands etc.

- Headaches that can turn into migraines

- Numbness in legs, hands and feet

- Twitchness

- Legs give way

- Feeling really sick

- Fibro fog

- Hold and cold shivers

Probably more haha but fibro fog is taking hold today!! xxx

my ltest weirdo feeling are whn im out side and talking to somone i feel breathless and dizzy like imgoing to faint i justkp talking and it passes but its quite frightning

Jaxxf profile image
Jaxxf in reply topermanentgrowingpain

Yes I think breathlessness is all too common too 😢

Fallabella profile image
Fallabella

My weirdest symptoms are probably...

1, the sensation that my face is swelling up, even though it's not.

2, what I call the' fibro fizz ' where I suddenly 'shiver' in a wave like sensation even when I'm not cold. It can start anywhere but for an example it can begin in my foot then wave up my entire length before stopping in my shoulder.

Frankiebeee profile image
Frankiebeee in reply toFallabella

I get the fibro fizz too - often on my scalp for some odd reason

Fallabella profile image
Fallabella in reply toFrankiebeee

Really odd isn't it! Not painful, just odd. Xxx

caninecrazy profile image
caninecrazy

interesting question! my new one is sudden body jerks; i now sit at my sisters & mums dinner table as i am scared of spilling my cuppa on their new sofa's! lol. i don't get any warning when they happen............odd x

spider555 profile image
spider555

Grinding arthritis type pain

Sore hands

Neck pain

Headaches

Burning like being in Hades

Stabbing random pains

Electric or bee stings

Flushing and sweating

Jaxxf profile image
Jaxxf

Aw we really all have a lot of s**t to put up with don't we. No wonder GPS are confused with all this lot!

Jaxxf profile image
Jaxxf

Thanks magic stars-didn't think it would offend as I hadn't typed in full-apologies if I have upset anyone 😳

Jbluek profile image
Jbluek

A scalloped tongue! Might not be related to fibro but it’s definitely my strangest symptom.

Other symptoms:

Going very cold and unable to get warm. Nails go blue. Also get very hot.

Feel stiffness/numb

So many different types of aches and pains in various places. Various ‘levels’ of pain intensity.

Foggy brain. Literally completely forget what I’m saying mid sentence and just go blank. Scary.

Sensitive ear drums/to sound

Sensitive to light sometimes

Flu like feeling

Swollen tender glands

Exhaustion/fatigue

Ibs symptoms

Anxiety/depression

Not what you're looking for?

You may also like...

What's your opinion?

Hi everyone, haven't been here for a while as have been struggling with mental health on top of...

What's your job?

Hi Everyone, can I ask what people do for work? I work full time in a GP surgery as an...
MrsMc77 profile image

Symptom questions

Hi everyone, I have a couple of questions that members might help me with. Bifocal glasses. My...
Golfer15 profile image

What's your favourite fibro gadget?

The fibro and arthritis in my hands makes styling my hair properly with a big round brush really...
lolly1970 profile image

LETS LOOK FORWARD NOW GUY S

Hi i keep seeing alot of people are leaving and still worrying about the awful things that were...

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.