Hi, this is my first post so please bear with me.. reading your posts and joining the group makes me feel like, I am not alone.. I have been diagnosed recently after many blood tests and countless appointments to doctor. I got diagnosed straight away once I mentioned my mother has got this condition for over 8 years now and so does my 29 year old sister. I am 34 by the way.
I was never aware it could be a genetic condition.. so much I didn't know and did not realised or could understand my mother as much before.. still trying to come to terms with it.
Main reason I am writing it's because I went back to university this year and I have started from zero, finding many challenges as lack of concentration, brain fog, procrastination and anxiety that comes with it.. but it's has always been my goal to study and get my career going..
Today I had my DSA assessment and recommendations that are bri ging me so much hope into the future.
Please write to me with your tips or helpful apps or anything that you think that would help me on this new phase in my life, will be much appreciated xx
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Mamixx
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Great news you have had your DSA assessment, the help they can offer will make such a difference to your studies. I finished a degree in 2020 and although I took a year out between second and third year, for a mixture of health reasons, I then completed it. Take full advantage of anything they can offer you to make life easy. If you use Pacing, then request from your uni if they can juggle some things around if needed (before they set schedules if poss) to give yourself some rest days.
Much appreciated, I also thought about taking a break if needed as it does not mean I am failing, being kind to myself is key. Well done to you too. Everything is posible 😄 enjoy your weekend x
I suffer greatly with brain fog, memory problems so I do as much cognitive stuff as I can to at least try and retain some information, like word searches, crosswords, scrabble, great board games such as Rubbikub, anything that requires me to focus and concentrate but what I find fun.
I meditate a lot also as this helps to clear my mind of any clutter that may be there.
Pace yourself, I do big things over a longer period if I can so where it would take me a couple of hours to complete a lengthy form at one point I now do it over a few days and do in sections.
Don't beat yourself up if you don't get through a piece of work you have set yourself up to do. Time management really is the key and work without distraction where possible.
Post it note what you have to do but change the colours so you don't become used to the same one and dismiss it and set up your phone alarm and calendar to remind you you need to do something.
Good luck and well done for not letting it beat you... You are an inspiration 🙏🏻
Hi, thankyou so much for your kind words and great suggestions. As you can imagine life gets in the way at times but I am reminding myself why I want to do this and what it means to me. Have a lovely weekend 😉
congratulations you have managed to get to uni and I wish you all the luck.My granddaughter is there and although she doesn’t have fibromyalgia she does have other health conditions so had to to resit exams at school and having to do an extra year at university too.I think it’s a great experience but try and pace yourself. Try not to accept too much extra uni life that could wear you out more
Hi there MamixxFirstly congratulations and huge well done for getting into Uni.
I also never knew this disease could be genetic.
I have it, my daughter does. My sister and brother have it, ( Which I only found out recently)
My daughter was at uni she had to take a year out and had to resit as well.
All I can add to the good advice above is, never give up, you can do it. Also put in for extenuating circumstances when ever you have an exam or disitation to do. If you have a good tutor they should recommend this.
Hi, I find I need a rest in the afternoon for half an hour that helps me. Also a hot bath with epsom salts. Make time for yourself to relax etc. Good luck with your studies.
Good for you to do university listen to all good advice from us fybro sufferers pace yourself I reside in canada thing are a little different here than in England ,medications etc. So best advice is from your fellow country folks. Good luck with your endeavors
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