Fibro and chemotherapy radiotherapy

[Pdady]

Has anyone with fibro had chemotherapy and radiotherapy. I'm starting my treatment in the next two weeks and would like to know how this is going to effect my fibro and what kind of issues am I going to have to deal with just so I can prepare myself for what's to come ?

[Albionrfx]

Hi Paddy, I had radiotherapy but it didn’t really affect my Fibromyalgia. The thing that affected it badly after, was taking Tamoxifen which later got changed to Letrozole . Unfortunately I had to stop both as I was spending most of my days in bed with crippling pain in my bones and muscles….

I hope that answers your queries. Have a good weekend,

Warm regards

Albionrfx

[Pdady in reply to Albionrfx]

Thanks for your reply As I already suffer with a lot of pain in my bones and muscles I'm afraid these treatments are going to aggravate things even more. I assume the chemotherapy will cause me more trouble than the radiotherapy and as for medication I always try to avoid If I can . Thanks again for your response

[jobananas]

Hi Pdady,I have fibro diagnosed many years ago, and then had cervical cancer 3 yrs ago had 30 sessions of radiotherapy and sadly affected the pain in my lower back so badly that can't walk far or stand for more than couple of minutes therefore haven't left my house for last 2 yrs unless it's for medical appointments. I really hope that this will not happen to you. X

[Pdady in reply to jobananas]

That's the main reason for my query as I have suffered in that way for the last three years and due to the issues I have with my shoulders and neck the surgical procedure would cause even more damage and problems to my nerves. Thanks for your help hopefully I'll get lucky and have no issues 🤞I think I've got more chance of winning the lotto tonight 🙄

[lindawoO1]

Hi Paddy, I had Chemo and Radiotherapy, I'd had fibro for years, but the worst effect from Chemo was peripheral neuropathy and pains in my hands and feet, which now (6yrs later) is still there and I've got v. sore hands and feet, but it is a lot better. Don't know if it was related, but at least I'm not dead!!!! I don't know what sort of cancer you suffer from,but a warning - I had chemo radio, and 2yrs later 12 Chemo sessions. my radiotherapy was pelvic, and 2 years later again, when they tried keyhole pelvic surgery, they had a lot of trouble as I'd got "a frozen pelvis" which doesn't show up on scans and they couldn't do keyhole surgery as all the organs glue together. Apparently it was because of the first Chemo radiotherap, which made the radio work harder. As I said though, pros and cons, still here. Hope I haven't scared you too much, but perhaps be nosey and ask questions about all the treatments. Good luck with everything.

[Pdady in reply to lindawoO1]

No you haven't scared me and the consultant did mention pain and pins and neadles in hands and feet but I already suffer with those symptoms v tender feet most days. My chemo is going to be intravenous for 7 weeks one day a week and 30 sessions of radio for head and neck cancer it's in my lymph nodes and tonsil so hopefully it will be all gone in 3 months .sorry to here your still suffering and thanks for your reply I'm just going to treat it like a bad flare up with a sore throat and like you say I'm still going to be here at the end and not dead 🙂 take care

[lindawoO1 in reply to Pdady]

All the best for your treatment, I don't think your neck will stick together and the lymph nodes do need to taught a lesson. 👍

[Albionrfx]

all my best wishes for a successful treatment with chemo and radiation therapies. Be courageous and strong. Think happy thoughts for when all these episodes will be behind you… 🦋