Constant Pain

[Marieg1270]

Hi I have just joined the group, having a bit of a down day today. Found out this wee I have Fibromyalgia bought on from the stress of losing my father at the end of last year. I have started treatment of Amitriptyline but finding at the moment it makes me feel worse. Not only is the pain driving me mad along with the sudden exhaustion. But the pills make me so groggy in the morning I am struggling to log and work. I have a worry as to how going forwards I will cope with working every day and travelling twice a week from Kent into London.

[cindydemon666]

hi there, Amitriptyline can be difficult . I was the same with the morning grogginess so i trialled fdiuderent times to take it. I found that for myself , i need to take it 10-12 hrs before my getting up time. So if i need to be up at 4am i take it at 4pm the night before. You will still have feeling of fatigue when u wake up but the grogginess should be better. Hope it helps, everyones different & it depends on your dose too, so trial & error, good luck x

[kimey007 in reply to cindydemon666]

Hi i used to take Amitripyline and it used to make me feel groggy in the morning to get up for work. When i went back to pain clinic they reviewed it and put me on notripyline which i find much better hope this helps take care kim x

[Marieg1270 in reply to kimey007]

Thanks I will note that one down

[Lucyloo67 in reply to kimey007]

yes I was the same and switched to Notripyline it doesnt make me feel like a zombie. X

[Marieg1270 in reply to cindydemon666]

Thank you I will try taking it a bit earlier

[Fra22-57]

bless you.yes same happened to me after losing my mum. after having a healthy life it is awful.I too tried amytriplyline but found difficulty waking and to be honest it only dulled pain.I am on pregabalin which does help.It helps with pain but the tiredness is still there and grabs me all of a sudden.people don’t understand you can be ok one minute then feel like laying down the next

[Marieg1270 in reply to Fra22-57]

Thank you I find I get really exhausted in the afternoon I have no idea why. At present work do not understand and my boss is my concerned with her backache. I have an update with occupational health in 2 weeks so I am hoping I can get some support then now I have been diagnosed.

[Yassytina FMA UK Volunteer]

Hello and welcome , sorry too read about your dad it’s stays with us for along while and I still think about my dad when he did suddenly 24yrs ago, it does get easier with time so it’s still quite raw for you I am sure, I hope your doctor can review your meds very soon , it’s a lot too take in and being diagnosed only this week with Fibro, take care of yourself I hope they continue too monitor your medication, this is a good forum too come have a chat when we need too and read some posts from members xx

[Marieg1270 in reply to Yassytina]

Thank you, yes it's nice that people understand. It's so hard that nobody really knows the pain and fatigue you go through. My whole team think it's joke that I feel the cold so badly and suffer with it, they have no idea how ill it makes me feel.

[Yassytina FMA UK Volunteer in reply to Marieg1270]

if the shoe was on the other foot might be the only way if they lived in your shoes they would realise how we start the day sometimes, good we can talk here, we had our gas fire on last nite and it’s nearly middle May , today it’s says it’s going too 18 degrees, after weekend it will change again I differently need it to warm now x

[Marieg1270 in reply to Yassytina]

Yes definitely I had my heating as well. I so want the warm weather now.

[Debsdelight72 in reply to Marieg1270]

Hi Marieg1270, I can honestly say you won't find a better site (I couldn't anyway)

Sometimes you really need a bit of a rant, I know I do,

I had to give up my job, For the sake of my customers really ( I was a bus driver) I tried shop work for a little while (3 days) I was stacking shelves and then I was asleep,☹️

Thank goodness the shop was shut, Any way I digress, I take far too much medicine and if I sleep more than 5 hrs it's a miracle, I don't work at all now instead I knit or colour or anything even if it's just an hour before falling asleep again if only it was refreshing sleep. Some nights I wake up and stare at the ceiling for hrs on end, I have 2 yorkshire terriers and a crazy old cat who all want to sit on me at the same time, Very clever animals though they are so gentle when they are near or on me, they are my weighted blankets,( Another thing you may get some comfort from, A little expensive but totally worth it, My final words tonight.)

I have been a total mess 1 day and a couple of days later I might just make the bathroom downstairs, ( I have a commode now) But when you realise there is love and kindness out there (my lilac tree has bloomed and I have had loads of blossom on my fruit trees) I try to take little simple things and watch them grow into miracles,

Sorry for waffling and Oh yeah, Welcome and take care

Debs x

[Marieg1270 in reply to Debsdelight72]

Thank you I have to admit I am beginning to find work difficult my job is stressful the good part is I'm at home most of the week. I'm hoping when I have my update with occupational health they may help with hours and more home working as I don't know how I'll cope with London. I'm also a crazy cat lady I have 3 ragdolls and they do keep me sane and always provide a hug when needed.

[1whitestar]

Hi I have fibromyalgia and arthritis. I am on duloxtine and sulfasalazine .