I’m new here, I’m so happy to have found this group page. Really reassuring that I’m not the only one & I actually have other people who understand. It’s been an eye opening for sure.
I am only 25 and nearly two years ago I suffered with a mental break down & was diagnosed with depression(I’d never suffered with mental health before). I returned to work and started having these pains all over my body in all my joints, l then went through the process and finally January 23 I have been diagnosed with fibromyalgia, I have really struggled with coming to terms with this. My biggest worry is that my depression will overtake me again and I’ll become unwell again.
sorry for the big post🤍
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Dash01
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Hello and welcome. It is a very good forum one I have been part of for the last few years, i did get very down and suffered with anxiety but eventually was put on the right medication which has helped enormously. Have you spoke to your GP/Practioner nurse ? as like you say you don’t want the depression creeping back in where it gets to a stage it’s affecting your daily living. You might have already done this but let them know how you are feeling , I hope reading posts and having a chat here helps xx
I am doing okay thank you. I’ve been stable on my medication now for a while. It’s just been a world wind of changes that’s been out of my control.
I have been a health care for 9 years and recently I have been promoted to a different role, which has been super lucky as I was at the point that the healthcare role was getting way to much for me.
I’ve been doing okay; although I’ve had my pregabalin upped 2am this morning I woke up as if someone had set me on fire, this morning is when I found this group and felt a little better that someone understands!!! It’s worse when you can’t see it!
Your more than welcome 😀yes we differently do understandable , and why you feel this way, my heart goes out too you younger people , I was diagnosed in my 50 s , take care and hope too see you post very soon x
I take antidepressants unfortunately I’m on Sertraline, Mirtazapine and now Pregabalin.. sorry if you thought otherwise and seen false hope
I am very medication sensitive and I have tried other medications that has made my anxiety worse, made me manic, made me very low, it been a very hard learning curve, I feel sorry for you if your not having any relief at all.
Everyone is different but I found writing down how I’m feeling instead of going round in circles in my head helped me feel little more clearer and In control.
I am my worse enemy as I work within mental health I know “ I should talk about how I’m feeling” but it’s hard to to be negative. Thanks for replying means a lot x
Hello, I was put on duloxtene about 5 years ago after being years on Citalopram , old doctor wasn’t much help and anxiety was awful , I’ve been 100 percent better with this and hardly any blips at all really , they also use this for fibro sufferers too help also. X
Hi Dash,I'm glad that you've found this site/group, it has made a massive difference to me too, people here are so kind and understanding and I felt so alone and misunderstood before finding this group. It has helped me so much and I hope it helps you too😊
I'm sorry you're going through so much so young. I was 28 when I developed fibro, although I think I had mild symptoms that came and went since high school, I'm 34 now and it's been extremely hard the past 6 years. I've only been able to work 2 out of the last 6 years and now have been off work for almost 2 years straight. There have been super difficult challenges and it's been such a rollercoaster, but for the last 2 weeks I've been doing better than any time in the last 2 years so I'm so happy even though I'm still struggling and not able to work.
There is so much info and help on this site from other fibro warriors and everyone is always willing to help and offer encouragement. I know how hard it can be and I hope it doesn't get too overwhelming for you, but just know in the worse times that it does get better and there will always be ups and downs. And if ypu ever need advice or support this site is amazing
Sending love and best wishes. Hope you're doing well!! x
Your reply really hit me, I definitely feel alone even when standing in a room full of people, strange aye. I do feel really isolated at times because I’m not the “normal” 25 year old, it can be very challenging to find someone who understands so when I found this page I was like woah I can’t believe how much it affects people.
I have been a health care for 9 years and end of last year I was doing more office based work as I just could not do it, I definitely feel frustration as I love working within mental health & it’s been hard to accept that I can’t do that, I suppose I’ve been my own worse enemy in my own mind.
The last 24hours have not been fun, I feel like someone has set me on fire & my skin is so dry which I’ve never suffered with before.
I’ve only just recently would say I’ve “recovered” out of my mental health breakdown and so I just feel overwhelmed-exhausted like I over come a break down after never suffering in my life before to now all this physical changes, it’s hard not to get into a negative head space about it.
Sorry for the big reply I just felt like I could be vulnerable with you, I just felt like you got me. Sorry if that was too much information
Hey! I'm so happy I could help in some way❤ yes, it can be really isolating, especially when people don't understand. I get told all the time "you're too young to be sick," or "you just need to exercise more" when I was working and active and healthy before thus hit me lol. And even elite athletes and teenagers can get fibro, but people just don't seem to understand😕 but yea the people here really do understand and are so supportive and kind. I found this site not too long ago, but it has really helped my mental health tbh because before I found this site I had so much guilt and anxiety about being unable to work or just being sick, and I lost friends because they just didn't understand and my family seem to think im just being lazy, my closest friend told me they didn't want to ralk to me because I was "negative" and told me I made myself sick by being negative when I always was hopeful and had good expectations, but if they asked me how I was and what I'd been doing and I just told the truth that I haven't been able to do anything because the pain had been so bad they thought I was being negative😕 (sorry this is kinda long lol, sometimes I don't know hiw to cut things down and explain what I'm trying to say in shorter ways😅).I get it, being in pain and not understanding why or what to do to fix it can really impact your mental health, it definitely has affected me a lot. I'm so glad you are out of the worst of it now and feeling recovered. That's a positive! We have to focus on the positives and let them encourage us😊😊
And don't be sorry! Feel free to share whatever you feel like sharing and ask for any advice or support! I'm just grateful you felt understood and like you could share because that can be so helpful and I do really feel for you and understand what you're going through. I'm grateful to have met you here, even though I wish we both didn't have to deal with fibro
Sorry i missed a paragraph which I just saw, that doesn't sound fun, feeling like you've been set on fire and dry skin.. is it a lod of internal overheated feeling or the skin? Have you tried cool/cold showers? I'm not sure what do to about that as I'm mostly too cold myself lol🙃 I hope you're feeling better by the time you read this!💖
You are a little life saver and I can now feel like I’m not the crazy one
I 100 percent feel guilty and if I’m being annoying to my friends and family because I’m “moaning” all the time.
I get my self annoyed because I’m a positive person, I’m normally the one everyone comes too, so for me the one that’s not okay my family and friends was like woaaaah “pull yourself together” “ you just need to get on with it”.
It has been really hard for ME to accept I was ill/something was wrong when I’m the one working, studying trying my best to not be a “failure” .
I recently had a promotion which I am so dam lucky and great full that someone has given me the opportunity to shine. However I feel guilty that I’m still “negative” because of my condition.
I’ve been on fire now for three days, my face, my hands and my feet.
When I shower I have to have it on cold because the heat makes me feel more on fire if that makes sense lol.
Heyy!!😊Aw ok you made me cry a little🤭 you're definitely not crazy! And I'm so sorry you've been going through this!
I've noticed a common thing that most people with fibro are the ones who are alwats there for the ones we love and trying not to disappoint!
Congratulations on your promotion! But please don't feel guilty or like you have to achieve some "standard"!! I can assure you you're an amazing and beautiful human already and I think sometimes our body is trying to tell us to relax and acknowledge and take care of oursleves..🙂 I could be wrong, but just a thought.. 💜 And I bet you deserve that promotion and more! And I hope you get to keep working in the job you love!!😊
Oh I'm sorry you're still feeling that fire sensation! I wish I had more tips, but hopefully someone here can offer helpful advice!! I know fibro can definitely do a lot of weird things! Maybe try ice in a cloth or cold packs on the skin? Have you spoken to a doctor? Maybe they could help? Also do you drink lots of water? It never can hurt😋
hello it is hard to accept the changes you have to make to just live your normal life. I feel for you being so young and having it I’m 52 and find explaining to colleagues that just because I can do something one day or if in a morning doesn’t mean I can do it later or tomorrow, there’s always that element of ‘oh yea really!!’ But I’ve learned to have a thick skin to any comments though being menopausal too I can sometimes bite back. Good luck with it all 😊
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