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Fibromyalgia Action UK

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Njh1975 profile image
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I'm a new member and think I have relied to someones post rather than setting my own up because I clearly don't know what I'm doing so apologies to that person and here is my introduction again. 😋

Hi everyone I am new to this, joined a couple of days ago after ending up in A&E with severe chest pains thought it was cardiac but seems it's my fibro never had this before though...... Was diagnosed in 2010 and tried pretty much everything. Had my 2nd hip replacement in June14 and just recently been feeling really poorly again! So fed up with the pain again and had to take time off work. Got to go to the doctors to try and get some pregabalin prescribed as they won't put it on repeat.

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Njh1975
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14 Replies
Njh1975 profile image
Njh1975

Not sure why that picture is the wrong way around...... Won't be uploading another coz don't know how to delete it now thought it was going to be replacing the little face I have been assigned. 😉

lou60 profile image
lou60

Hello, sorry you are feeling rough. Don't worry about your picture being the wrong way round it happens a lot on here. Someone will come along with all the advice links soon I feel sure, I don't know how to do that. This is a very supportive forum so stick with us. Lou xx

Njh1975 profile image
Njh1975 in reply tolou60

Thank you lou60 I have dealt with health problems since being a child so sometimes it just gets to me.

Glad I found this site got a feeling it will be a great support.

Julie63 profile image
Julie63

Hi and welcome, Njh1975. Sorry you are having a bad time, I was referred to a cardiac cons at the hospital and he said that my pains and racing heartbeat was due to it's reaction to the fibro, so you're not alone with the chest pains. Wonder why your gp won't put pregabalin on repeat for you? I have had no problems with getting it from mine, ah well, hope you're feeling better today, any problems just post them on here - there's usually always someone awake and posting back. Gentle hugs, Julie xxx

Njh1975 profile image
Njh1975 in reply toJulie63

Hi julie63 going to see GP tonight only app was 8.40pm......unbelievable ! chest pains scared the hell out of me and my work colleagues.

Thanks for your comments x

Fibrofoggiest profile image
Fibrofoggiest in reply toNjh1975

Hi Njh and welcome to our lovely forum :-)

Like Julie, I'm somewhat surprised that your GP won't put your Pregabalin on to a repeat prescription, that seems really odd to me ......I would question that at your appointment later. Also I wonder whether a referral to a pain management clinic could be of use to you. I think you also clearly need to get the cardiac episodes investigated and properly treated. Do let us know how you get on please :-)

Sending you lots of positive healing vibes your way :-) :-)

Foggy x

Njh1975 profile image
Njh1975 in reply toFibrofoggiest

Hi foggy

I was given the option of pain management a few years ago but declined because I have had healthy problems since birth so it's not that I don't know how to deal with it, I cope well I work part time and hope to carry on working. I know this is a massive flare up and the chest pain scared the hell out of of me!

Kind regards

Nicola

jellynpain profile image
jellynpain

Hi and a big welcome,

Interesting... I ended up in A&E not long ago with extreme pain and tightening, lower chest. Very scary.

Since then tested re angina & heart Ct...all ok. I get extreme pain just below centre of upper stomach (level lower ribcage). Gp arranging check for that.

Fibro? Maybe it is. Be interested to know if many others have same problems.

Xx

Njh1975 profile image
Njh1975 in reply tojellynpain

Yeah I have had fibro for many years but never experienced something like it before scary stuff.

X

fenbadger profile image
fenbadger

Hello NJH and welcome. You need to turn the picture round before posting and when I tried to put a pic on my profile it was cropped but not how I'd planned, then some were lost altogether. Luckily the fluffies sent out a search party so I wasn't lost for long.

Chest pains of course have to be taken seriously. Good luck and see you around I hope :)

Njh1975 profile image
Njh1975 in reply tofenbadger

Thank you

😉

TheAuthor profile image
TheAuthor

Hi Njh1975

Welcome to the forum and it is wonderful to make your acquaintance. I genuinely hope that you find the forum useful, informative and loads of fun! I have pasted you a link below to our mother site, FibroAction which hosts loads of useful Fibro information.

FibroAction Website:

fibroaction.org

I am so sorry to read of your recent experiences, and I sincerely hope that you are feeling more like your usual self again now? I have never personally experienced chest pain with my Fibro but I am aware of other members who have. I want to genuinely wish you all the best of luck.

All my hopes and dreams for you

Ken

Njh1975 profile image
Njh1975 in reply toTheAuthor

Thanks ken

Fantastic to know so many people care but also understand, I have an amazing support network but only other sufferers can truly understand this mad condition

Kind regards

Nicola

MariLiz profile image
MariLiz

Hi Njh 1975, I have also been rushed to A&E with chest pains, and they looked at pulmonary embolism, after ruling out heart issues. It was eventually diagnosed as acid reflux causing the oesophagus to go into spasm. I was given acid reducing medication, and it stopped the chest pain. Others on the forum have spoken about costocondritis (not sure that's the right spelling), which can come with fibromyalgia. Hope you get a good diagnosis soon, being rushed to A&E is scary. Best wishes MariLiz

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