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Fibromyalgia Action UK

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Elemis profile image
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What a great information hub!

I was initially diagnosed with Fibromyalgia 3 years ago following numerous tests. Being able to accept the constant widespread acute pain is a challenge. Whilst having been prescribed numerous pain relief medications i try my best to focus on a more holistic approach to avoid inevitable side effects. Its really hard to cope sometimes trying to maintain a degree of normality, such as work, family,and other commitments. Pain, IBS, nausea, brain fog, insomnia , depression the list goes on. I am due to see an NHS therapist soon to support my mental wellbeing as i feel extremely sensitive and can get tearful when talking about my condition. I force myself to exercise regularly. Have to say life is a constant struggle but im doing my best to remain positive, there is quite a bit of support available through the nhs, can anyone let me know if physiotherapy helps or acupunture?

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Elemis
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ftorres18 profile image
ftorres18

It’s admirable how you’re managing the challenges that come with a fibromyalgia diagnosis, especially when dealing with symptoms like constant pain, insomnia, depression, brain fog, and their impact on your daily life. Acceptance is a difficult process, and your effort to complement medication with holistic approaches and regular exercise shows your determination to maintain balance.Regarding the therapies you mentioned, such as physiotherapy and acupuncture, both can be helpful depending on your specific circumstances. Here are some points that might guide you:

1. Physiotherapy:

It can be highly beneficial for improving mobility, alleviating pain, and reducing stiffness. A physiotherapist specialising in fibromyalgia can recommend tailored exercises for your needs.

Make sure to inform the physiotherapist about your condition, as the approach may need to be adjusted to avoid overexerting your muscles and worsening symptoms.

2. Acupuncture:

Some studies suggest that acupuncture may help relieve pain in individuals with fibromyalgia by stimulating specific points on the body to improve energy flow.

However, not everyone experiences the same level of relief, so it might be worth trying a few sessions to see if it works for you.

3. Psychological Support:

The fact that you’re planning to see a therapist is a very positive step. Talking about your experience and gaining tools to manage the emotional effects of fibromyalgia can make a significant difference.

4. Regular Exercise:

Although it may be challenging at times, low-impact activities such as yoga, swimming, or gentle walking are often recommended to maintain mobility and reduce stress.

If you decide to explore these options, it’s a good idea to consult your GP or specialist for specific recommendations and to check whether these therapies are available through the NHS. Always listen to your body and respect your limits.

Finally, remember that you’re not alone on this journey. If you have further questions or wish to share your experiences, this group is always here to support you. Don’t hesitate to reach out! 👍🙏💪

Elemis profile image
Elemis in reply toftorres18

Thank you very much for your feedback, advice and support which is very much appreciated.

Cat00 profile image
Cat00

Physio helped, acupuncture didn't. The acupuncturist said someone like me would need it everyday though which she knew would be unaffordable.

Elemis profile image
Elemis in reply toCat00

Thank you, makes sense

Sroot profile image
Sroot

I've found that physiotherapy by the NHS to be poor. I've been many times over the years and have only been given a sheet of exercises to do with no hands on physio. Muscles need to be manipulated to help you to ne able to do the exercises. I have paid to see a private physio and the difference is amazing. They actually do some physio on you and use different apparatus to help such as lasers and acupuncture. Plus they give you the exercises as well. That said, I've always taken any help that's been offered in the hope it will help my pain. Hope you get some treatment that works for you.

Elemis profile image
Elemis in reply toSroot

Thank you for sharing your experiences, again really helpful. I will certainly look into physiotherapy and continue to check in, Fibro is an invisible condition which can make it more difficult to acquire support on all levels. I only recently purchased a lanyard highlighting i have a condition which i now wear when using public transport.This was only after some cajoling from my daughter. Acceptance of my limitations has helped me come to terms with my condition and need to pace myself , ask for help, and say no when required to minimise unecessary stress.

Swampii profile image
Swampii

So you my be new on here, but reading your info, has actually helped me. As reading it, is like reading my own story and helps me understand I'm not alone in this. It truly is an awful condition that has heavily impacted my life, and unfortunately thos around me. However without the support of physiotherapy and the pain physiatrist I'd be lost. I have found these to be very helpful. I'm starting radiotherapy( in my neck) just after xmas and because I'm stressed about that, my fibromyalgia is going crazy right now. Like yourself, widespread. We just have to remember to be glass half full people, and take 1 day at a time xxx merry Christmas

Elemis profile image
Elemis

As the saying goes.. a trouble shared, thank you for your kind words, positivity all the way😀

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