Hi everyone. I’m new here and just to give you a little background; I have had fibromyalgia for over ten years (though only formally diagnosed about five years ago), IBS and migraines. I work part time but am working from home these days, which takes a lot of pressure off.
I have been suffering with sciatica since December and am currently awaiting an appointment for an MRI to see what’s going on. My GP said it could ‘just be fibromyalgia’. Does anyone else suffer with sciatica/buttock/leg pain? It’s really starting to wear me down.
Hi MrsRoo, I have been suffering with sciatica since 2019, I’ve had one mri for this and then physio but it did not help so I’m also waiting for another Mri .Mine is very painful I also have fibromyalgia and arthritis.hope you get sorted soon.gentel hugs .
Hi Hidden Yes I’m the same, terrible pain in my left hip area that runs down my leg, usually at night. I’d put it down to fibro but it feels like sciatica. I also have arthritis so wondered if it’s that too. I hope you get some answers with the mri. I find a heat pad helps my pain enormously when it’s bad, I have a mini electric heat pad that I use in the evenings and it’s a lifeline! Sending best wishes,
Morning and welcome, I have heard sciatica is very painful and must be very wearing for you on a daily basis, I hope the MRI appointment comes soon for you. I can empathize on migraines and ibs as something I get too , fibromaylia has many symptoms and we are part of a very big club nobody wanted to sign up for😞, I hope you find chatting and reading posts on the forum helpful x
Hi I’m producing various bruises on my painful sciatica leg also. I’m taking 30mg Nortriptyline to control nerve pains at night in leg. I have bilateral sciatica.
I have FMS & as with others here have suffered with varying symptoms since my twins arrived 17 yrs ago at 31wks by Emergency C Section. I had to have a full general anaesthetic as the spinal block / epidural didn’t work on me. I also, had to have a blood transfusion as well. The whole experience was terrifying at the time & I feel I was just switched permanent on ‘high alert! Afterwards as my daughters were so tiny & vulnerable & in SCBU for 5 weeks. I’d had a C-Section and just pushed myself to get to Hospital as early as allowed each AM to be with my Babies everyday. I took over their feeding via nasal tubes (no milk came for me 😩 but guilt did at not having ability to give them breast milk). I also, did all their nappy changes. I stayed as long as I could until SCBU closed each evening. As you can imagine the first few years of their lives, there were many hospital/medical appointments/ they both had reflux so brought their milk back up, and both had to have another 2wk stay in Hospital due to a bad chest infection. Thankfully, my Girls are grown up now thanks 🙏 largely to our wonderful NHS. Anyhow, I went from taking no medication /no medical conditions/fit & healthy to now with FMS, IBS, Vertigo, LHS side Tinnitus/slight loss of hearing , early onset osteoporosis in my LHS Hip & chronic LHS aches/pain lower back (feels like something between the bottom of my lowest rib and top of my pelvis bone. I’ve had since for many years & put it down to carrying two car seats + babies/toddlers. Now getting aches down LHS Leg and it wakes me up. I just don’t think it’s sciatica but that’s the diagnosis. I’m now in a cycle of not being able to exercise or walk far as FMS, back pain & Chronic fatigue. Then I’ve been putting on weight & am pre-diabetic. I’ve all manner of other ailments (a strange permanent spotty all over non-itching skin Complaint for years. Stumped GP’s, a GP with special interest in dermatology & a hospital consultant 🙄 (the latter unbelievably diagnosis was excoriation I.e I was doing it to myself. I was shockingly disappointed when I said your joking & he sternly said he was not! I questioned how I could make a spot myself on my back? I was very defensive & made it clear It wasn’t going to be discussed further! It’s all a nightmare & it’s so frustrating & upsetting that there are no FMS/CFS type syndromes. I always suspect there is something else wrong but it’s not been diagnosed. If their were regional specialist NHS Diagnoses/treatment centres with access to multi systemic specialists to go to, even a short residential stay to be tested for other reasons & then FMS/CFS if all other possibilities have been ruled out. At least it was save many multiple trips to GP’s/Testing which, is a wait,test& see process over and over. Save NHS £££££ in medication which, is trial and error. Meanwhile, People are losing years of being ill, loss of family,friends,relationships, marriages,jobs, houses/livelihood due to financial impacts. I’ve had tests, but not for endocrine, neurological, Virus etc. Thanks for reading J
Hi MrsRoo, yes I go through the same and it's my fibromyalgia in the end after checks and more MRI at the minute I have terrible pain in my stomach feels like my stomach gona explode, just waiting for another scan but said could be my fibromyalgia keep your chin up sweetheart xxx
It’s a double edge sword, if your results come back negative then you’ve to go onward with the next test they try. Whereas if I s positive, it’s not good either 😩
So so true dragonfly2020 I'm sick of feeling so poorly every day I'm tired I'm fed up with pain and Iv so had enough. Sorry it's been really bad today x
Oh Lisa, I’m so sorry to read this. We all have times like this when we feel like we’ve had enough. I have them all the time. I really wish I had some wise words to make you feel better but just know that you’re not alone in this. We all understand and you can talk to me anytime you like. I’m always here to listen if you need it. Xxx
Hi Mrs Roo, I have FM and I've been suffering with a prolapsed disc for over a year now, this is causing Sciatica in both legs and three weeks ago l started to lose sensation in the front of my legs and in both feet, a feeling of numbness that never goes away. I like many other have had to shield for the past year so it's only now I'm starting to get the treatment I need. I've had two physio appointments and am currently awaiting an MRI appointment then a consultation with the spinal team. Please don't wait to have your sciatica seen to, it can lead to further problems like mine, I've already been told that despite any further treatment or surgery the nerve damage may not be reversable and I will have this loss of sensation for the rest of my life.
Hi DelBoy56. I’m so sorry to hear that. I really hope that you get some relief soon. I’ve got an appointment through for an MRI on the 24th of this month so I’ll know more then hopefully.
Buttock and leg pain i am in the club and never really got to the bottom of mine. Excuse the pun. When my leg /hamstring area touches a seat it sets it off something terrible i use hot water bottles, seat supports and will raise my leg and either cross it or rest on a old sweet tin to relieve the pressure Been looking in to Peroneal Tendonitus and Piriformis syndrome and doing light stretches/exercises that may help. Plus avoiding sitting for too long.
Hi Themanwithnoname. Thanks for your reply. I love you novel use of a sweet tin 😊 and, yes I have that sensation when the back of my thigh touches the edge of a seat. It’s awful! I have my MRI later this month so fingers crossed I might get some answers.
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