hi everyone.
I’d like to pick your brains.
I’m starting to think I may have ms any advice on how you came to learn you have made prior to diagnosis. I’m experiencing certain symptoms regularly and when I’ve seeks for information about my symptoms it’s caused by ms
Now I know the symptoms are so very similar to fm
Maybe I’m over thinking I don’t know 😩
Hi there, the obvious answer to your question is to put your worries and concerns to your GP.
They are the ones who can run tests and hopefully put your mind at ease xx
Momo
Hello Thank you for your reply. I’m starting to feel like I don’t wanna go doctors
Since fibro I seem to have everything wrong with me and it’s really making me anxious about going doctors
Thank you for your advice ❤️
Hi there, unfortunately no one here is qualified to answer your question.
I don't think many people like going to the doctors. I know I don't. But not sure you have much option to be honest.
You are asking a question only a doctor can answer.
I was tested for MS along with all the other blood test when getting a fibro diagnoses. Are you sure you was not tested for it already? This is why I think it would be wise to talk to your GP xx
I understand that no one is advised to tell me what’s wrong with me in addition to fibro I guess I’m just frustrated with myself and feeling alone.
I had bloody test for inflammation about 12 months before being treated for fibro
Thanks for your time xxx
Sorry do you mean you have had a blood test to rule out other things that sound like MS? I hope knowing all is well can give you some peace of mind 🤗
I honestly don’t know he just said inflammation around my joints that’s what he was testing for 🤷🏻♀️ He never mention anything about ms and over the course of 10 months I’ve been having loads of symptoms then 3 months ago treated for fibro.
And thank you xxx
There is no blood test for MS. But a GP will do blood tests to rule out things that sound like it could be MS or even RA hence the blood test for inflamation.
Sounds like your GP looked for things that would show up on a blood test and found nothing. Hence the fibro diagnoses.
Fibro can mimic so many illnesses. Honestly you could think you had many things wrong with you. I have been there and I am sure many fibromites have been through the same doubts. It is normal xx
I think this is what’s worrying me as I’m treated for fibro but don’t feel I’ve been checked over properly it’s like everything is all because of fibro. I don’t know think I’m just over sensitive at the moment xxx
It took 3 years to get my diagnosis of fybro, but my Gp ruled ms out very early on. I know fybro is a frightening and difficult to live with illness, it is not as devastating as Ms. Hope this helps.
Hi keep on pushing.Only a medical professional can answer your question.
I have other health conditions as well as Fibro including some that mirror MS but only medical tests will give you answers.
Best advice is don't look up symptoms on the internet.
Big hug, it can be scary not knowing and tests take time so self care is very important.
Look after you.
Gigi x
Yes I understand thank you ❤️
Hello, It is hard to accept a diagnosis of fibro, especially as it shares several symptoms with several other conditions. It can leave us clutching at straws as we wish it was anything but fibromyalgia.
Has your gp tested any of your neurological reflexes? If you are so worried that you cannot let it go I would ask for a referral to a Neurologist, who will do their neurological tests, and if those tests flag anything they will send you for an MRI scan of your brain and spinal cord. This is how MS is diagnosed, sometimes along with a lumber puncture.
The only way to put your mind at rest is to see your gp and talk to them honestly x
Hi, it is strange that you think you may have ms and not fibromyalgia. I will tell you why. for 42 years my mother who had been diagnosed by a consultant at one of the countries largest teaching hospitals was told she had ms, she had to go into hospital for a blood transfusion as she was anemic whilst she was there they said that as she hadnt seen a consultant in over 20 years that they would give her an MRI and a CAT scan, i was there when the doctor came to give her the results, he said that they were really puzzeled as there was absolutely no evidence whatsoever that she had ever had MS.
A few weeks later my cousin sent the front page of their local paper down to my mother, it was about a woman who was told she had MS and for 20 years she had been in a wheelchair, had to give up her job,etc. it was found that she actually has Antilipidsodal syndrome or Hughes syndrome as it was also known, this woman was treated and she was walking, going to the gym and went back to work. i researched this for my mom, it said that there were conditions that had been misdiagnosed as something else, 1. 1 in 5 repeated strokes, 1 in 5 repeated miscarriages, 1 in 5 repeated heat attacks, i cant remember the other 1, but 1 in 3 MS diagnosis's are in fact hughes syndrome. I also found out that it also states that people with hughes syndrome very often have a close relative with fibromyalgia which i have. following a blood test it was found that my mother did have hughes syndrome and never had MS
The diagnosis is a blood test and your GP can do this. although this condition has been known about since 1983, most GP's today havent heard about it. hence the misdiagnosis's. there is a website i cant recall the full address, but if you search for 'the hughes foundation' you will find it.
I am not saying that this is what you might have, but since it is just a blood test that your GP can do it could be worth checking it out
Hi, I can understand why you might think that your symptoms are ms and not fibromyalgia, mainly because they are similar, to a degree. However, that doesn't mean to say that's what you have. In the early stages gp's normally do a blood test to see if there are any inflammatory markers.... if there aren't , that rules out things like polymyalgia. Fibro doesn't have inflammatory markers.I was convinced I had something else, other than fibro, as I was having visual disturbances , double vision and dizziness etc..the hospital was concerned I might have gca, but after many tests, ecg, mri, heart monitor etc, it was put down to high blood pressure!! After making changes, my blood pressure is about normal for my age and fortunately the double vision has corrected itself..thank goodness. I still get odd dizzy moments,
As far as I'm aware there isn't a blood test for ms per say, but I think bloods can show elevated c r proteins or something similar.
It's best to discuss your concerns with your gp, hopefully a rheumatologist may be able to determine whether you have or haven't.???
What I have found is that the more I dwell on my symptoms, the worse they become. ... the mind is a wonderful thing, but sometimes it works against us., if we let it.
Funny old life!
Take care xx
I know what you mean I have all the symptoms listed for MS.. I'm on an app for MS but I have ME/CFS and Fibromyalgia I do think that myself, but I think the Doctor checks for everything else before they Diagnose Fibromyalgia take care 🙂
Bless you I guess I’m just confused overwhelmed and maybe abit Naive this is all new to me and not taken it very well at all.
I appreciate your comments and everyone else’s. Take care
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