Fibo or ms

[lightstar1]

Hi did everyone get tested to rule out ms.before given diagnose

Of fibo? I didn't I have lesions on my spine.and had some problems with vision have just found out my cousin has ms . That can put me at higher risk for ms. Don't know I needs texts

[Mandypandy1969]

ms is on both sides of my family and I worry I may have it as have problems with my vision going funny at times. also optician has referred me to an ophthalmologist. plus also g.p. referred me for m.r.i. scan as my tinnitus has got so much louder. I have had a full body bone scan and bloods taken. waiting to hear from rheumatologist. xx

[Hidden in reply to Mandypandy1969]

My vision goes to that's good your getting it checked, is it the kind of m.s that can be genetic though or the other one that family has?my sister has the out of blue kind that won't allow her to have kids and isn't genetic.x

[Mandypandy1969 in reply to Hidden]

I don't know. xx

[lightstar1 in reply to Mandypandy1969]

Hope goes wellx

[lightstar1 in reply to Mandypandy1969]

I hope goes ok for youx

[Jackiejack123]

I am waiting on neurologist app to come through as I want tested for ms as a lot of the symptoms for fibro and ms are very similar, my vision and my speech r all over the place at times .

[lightstar1 in reply to Jackiejack123]

Thankyoux

[Ramjets]

Yes I was tested for MS as I appeared to be showing all the symptoms associated with this. Thankfully all the results came back negative. However it was a scary time as I had almost convinced myself I had it as seemed the only explanation - I had never heard of fibro at that point. I would discuss your concerns with your GP so that he can refer you for any necessary tests. Good luck and take care. x

[lightstar1 in reply to Ramjets]

Thanks x

[M0AL61 Moderator Volunteer]

Yes, I had all the tests as my GP initially thought I had MS, especially as a family member had it. Thankfully all my results were normal and the neurologist then diagnosed me with fibro and chronic fatigue xx

[lightstar1 in reply to M0AL61]

Sorry you have fibo to.happy your test were not m.sx

[Hidden]

My sister has m.s,but I don't,there's different kinds of m.s,what kind does your cousin have?

[lightstar1 in reply to Hidden]

I have to ask . thanks x

[Dinkie]

I have MS in the family and lupus. Neither the GP or the rheumatologist were interested, and no I wasn't investigated for MS but was for lupus and despite positive ANA they decided it was fibro and not Lupus. I think it is very much a case of whether or not you get a decent consultant/GP who will do the right investigations before giving a disagnosis one way or the other.

[lightstar1 in reply to Dinkie]

Thanks x

[LornaAnne_X in reply to Dinkie]

You should test for the antibody there's something called medichecks that doesn't cost the world if it is lupus it could be doing you harm hun they should acknowledge that I pigging h8 doctors lol xX

[Alb2]

Yes, I was tested for both MS and Myasthenia Gravis as symptoms on presentation were so similar. In my case it was a virus that attacked my neurological symptoms so I can understand why these conditions needed to be ruled out. I can only praise the prompt care and treatment and thorough investigations I received and whilst I hate having the resulting fibromyalgia and the way it’s changed my life, I am grateful it wasn’t something a lot more sinister.

[Scotduck]

Can I ask what you mean by tested?

I was given an MRI scan to look for lesions but was told, by a particularly nasty neurologist, that nothing worth worrying showed up. That statement in itself was worrying. This was about 15 years ago. I was then referred to another Neurologist (notice the capital letters) who was a pure gentleman and gave a dam. He said the previous consultant had at least ruled out MS and then tested me for various other neurological problems which came back negative. Lupus was never mentioned.

At the end of my time with this consultant he turned to me and said that he would be very surprised if I wasn’t eventually diagnosed with MS. He referred to it as the Scottish disease. I was a Scot living in southern England at the time. A diagnosis of MS is not unusual in my area of Scotland.

I have since read in various forums that unless you have a spinal tap you can never truly be cleared of MS.

I truly need to make an appointment with an optician as it is a long time since my last one. That was a bad experience which left me with a fear of going back. When the optician seen me walk a few steps from wheelchair to his chair he asked if I had MS. He said my gait resembled that of a typical MS sufferer. When he tested me for peripheral vision I passed out as my brain couldn’t handle the test. He advised me to let my neurologist know but as it was still the arrogant one he totally dismissed it and said there was nothing of particular significance in my MRI scan.

Subsequently any time I ask, on a couple of occasions, I was told that I had already been cleared of that so have gave up asking.

Methinks I need to break my 15 year habit of avoiding the optician 🤔

[achydunlin]

Yes I had MS ruled out (I haven't had a proper diagnosis of Fibromyalgia though just a vague inflammatory arthritis type diagnosis but that's another story). At the start of this journey I was having vision problems, dizziness and balance problems (along with the fatigue and weakness) so my GP referred me for an MRI and a neurologist then referred me for a spinal tap. the spinal tap looks for 'o' bands in your spinal fluid which can be indicative of MS - but they can also indicate other things. I was ruled out of having MS - thank God, although the rheumy told me I did have signs of some infection in my nervous system. Be prepared though that despite tons of tests you may never get to the bottom of what is wrong - I know I never did after three years of going backwards and forwards to three different rheumatologists and a neurologist. Good luck and I hope you get some good news. x

[lightstar1]

Thankyoux sorry to hear what happened .with your getting all testsx

[lesleyann950]

Maybe get your eyesight checked

[clareboitelle]

I am currently waiting for a Neuro appt to rule out MS. I have Fibro and Sjogrens which in itself presents overlapping symptoms. Because of my complete brain freeze, off balance and vertigo symptoms, GP said let's get further investigations done. I don't have funny vision but I do have particularly dry itchy eyes and get a lot of head pain. I thinks it's very hard for many of us as lots of our conditions overlap and intertwine! Still think anything new needs further investigation.

[Ferretmum]

Yeah they gave me MRI of brain before getting my fibro diagnosis