Worried

Was with doc on friday and as a sufferer of fibromyalgia i am showing also symptoms of MS . Doc says keep taking 2700mg daily of gabapentin , but also said there keeping an eye on me from now on for MS . Was very worried leaving room. Anyone else here experience anything similar please let me know . Thank you marty

[MarkatHMSTC]

Hi Marty,

I’m Mark, I manage the MS Therapy Centre in Letchworth that helps a lot of people with MS BUT its not just for people with MS anymore. We treat increasing numbers with other conditions including ME & FM. There are over 50 MS Therapy Centres around the UK. They are all local charities and many, like mine, treat MS, FM and other things. We mostly focus on Physio, Physio led exercise programmes and Hyperbaric Oxygen Therapy, some have various complementary therapies too. You don't even have to wait until a diagnosis is certain. You can check if there is a centre like this near you at msntc.org.uk/centresearch. Very best wishes, Mark Boscher, Hertfordshire Multiple Sclerosis Therapy Centre hertsmstherapy.org.uk

[Hidden in reply to MarkatHMSTC]

Im in northern ireland mark

[MarkatHMSTC in reply to Hidden]

Hi again Marty,

There are three MS Therapy Centres in NI. I don't know if any of these are near you, but you can check that at ww.msntc.org.uk/centresearch if you want and you can get their contact details. If there is one near you, give them a call and ask if they can help you. We would here in Letchworth.

Very Best Wishes

Mark

Hertfordshire Multiple Sclerosis Therapy Centre

[Hidden in reply to MarkatHMSTC]

Thanks for that mark

[BlueMermaid3]

Hello Marty

I have had Fibro for over 30 years. One of the GP's at my previous practice told me that I had a propensity towards developing MS in the future.

I was so shocked I didn't have time to ask any questions.

My new GP just seems to be happy to put everything down to Fibro.

Hugs

Lu xx

[Hidden in reply to BlueMermaid3]

Ok thanks for pointer

[joannie1964 in reply to BlueMermaid3]

That's very worrying!

Hugs

Jo x

[Hidden in reply to joannie1964]

Its ok joannie mind over matter

[BlueMermaid3]

Sorry. It's probably not much help to you. I very much hope that you don't develop MS xx

[Hidden in reply to BlueMermaid3]

Hope u dont develop it either

[lou1065]

The symptoms of Fibromyalgia are very similar to MS and several other illnesses, I do hope you have a good outcome and I would suggest you seek conformation either way soon, it really is unfair that you are left to worry in this way. xx

[Hidden in reply to lou1065]

Thanks

[TheAuthor]

I am so genuinely sorry to read this, and my wife has Primary Progressive MS. Her consultant sent her for an MRI of the brain as this is the only way to get diagnosed so I would discuss this with your GP if you want to be certain.

I want to genuinely wish you all the best of luck.

All my hopes and dreams for you

Ken

[Hidden in reply to TheAuthor]

Thank you ken

[MariLiz]

Have you had your levels of B12, ferritin and folate tested? Low B12 can cause damage to the myelin sheath on nerves, and if left untreated, this will cause symptoms similar to MS. Do get it checked. MariLiz

[Hidden in reply to MariLiz]

Never heard tell of them mariliz

[MariLiz in reply to Hidden]

Hi again, just have the doctor test you for B12 on your next blood test. In this country we only treat levels that are under 200. Mine was 176 when it was discovered. I am now on regular injections done by the nurse at the surgery. In Japan anything under 500 is considered low. If you look on the Pernicious Anaemia Society website there is a symptom checklist. Lack of B12 causes nerve damage, which can become permanent if left untreated. I just want you to check this first, before you accept a diagnosis of MS. Best wishes MariLiz

[Hidden in reply to MariLiz]

I will get this checked thanks for the info mari greatly appreciated

[Hidden in reply to MariLiz]

Getting b12 checked this week mariliz . He said the reason it wasnt checked was because my blood count was perfect. He said it do no harm to get it checked so have to call in to treatment room any day this week thats suitable

[MariLiz in reply to Hidden]

Good luck with the blood test, I hope it will be helpful, and really wish you well. MariLiz

[Hidden in reply to MariLiz]

Thank you for your info and concern mariliz greatly appreciated

[aud01]

I suffer from Sjögren's syndrome which is a form of Ms .. But my mum has Ms and I am sure I have it too ,.. Because of my symptoms ....,, wish you luck ...

Big hugs xx