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MS

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hi can any one help please . do we have an MS community as i can not access it using the directory and wish to join it. it isnt under the 'M's and i cant press 'MS'. Thank you

5 Replies
hamble99b profile image
hamble99b

sorry. I can't seem to find one. I'm hoping that your consultant can put you in touch with local groups. there is also the MS Society.

regards,

hamble :)

MS support | Multiple Sclerosis Society UK

Support and information including financial help and grants, MS Helpline, ...

mssociety.org.uk/ms-support

TheAuthor profile image
TheAuthor

Hi decluttering

I sincerely hope that you are feeling as well as you possibly can be today? I have pasted you a link below to one of the forums listed on here called LDN. LDN stands for Low Dose Naltrexone, which is one of just many MS treatments. It may be worth checking it out?

healthunlocked.com/ldnresea...

Mind you, as hamble99b says, you could also contact the MS Society. She has pasted you a link for them.

If you cannot find anything suitable, just PM me and I will have a look through my wife's literature, as she has Primary Progressive MS and has a lot of NHS and MS Society Literature, I think there must be something in there for you?

I want to wish you all the best of luck with finding a suitable community and making some good friendships.

All my hopes and dreams for you

Ken x

mistymeana profile image
mistymeana

There used to be one for MS Society that I pointed a friend to a few months back but it seems to have disappeared. I found this link which might be useful: mssociety.org.uk/forum

bentley1 profile image
bentley1

Hiya,I have a diagnosis of dystonia and distal hereditary motor neuropathy and just wanted to say I went in for pip in August last year.only had my assessment in May this year.now it's with the auditors!!don't know how much longer I will have to wait.the new pip assessments are a joke for everyone suffering with a debilitating illness.

Mad_scientist_ profile image
Mad_scientist_

The MS Trust also has a lot of good info

mstrust.org.uk

One of my staff has just been diagnosed with primary progressive ms and I have requested a load of info for her and for me as her manager.

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