ms: can someone explain to me what ms... - Fibromyalgia Acti...

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sarah-d profile image
5 Replies

can someone explain to me what ms is and what the signs of it are please

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sarah-d profile image
sarah-d
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5 Replies
Elsbeth profile image
Elsbeth

A pain the arse, that's what it is.

sarah-d profile image
sarah-d

thank you xxx

Elsbeth profile image
Elsbeth

hey

Sorry if that comment made you think you had done something to upset me and I am a touch confused as to how I managed to make you think that when all I did was comment about the MS.

Yes, I do have MS and it is horrible. I sobbed my heart out when I got told I had it. People around told me I was lucky, LUCKY, to have a condition that people knew about. There is nothing lucky about it.

While FM means I am in constant pain I knew that the FM was less likely to mean I would be wheel chair dependant as quickly as I am with the MS. I knew that I wouldn't walk into walls all the time like I do with the MS. I knew I wouldn't slur my words like I am drunk all the time, I knew I wouldn't lose my ability to speak, know my name and the name of my loved ones, know how to make a drink and know that I am able to wash and dress myself.

MS can and likely will do this and much more, some of the symptoms started now.

Many people with FM WANT to be told they have MS because they feel that if they will have a condition that people can recognise and I can totally understand that but for anyone who is trying to find an answer to the problem they have is MS, just be sure you are ready to know it is. The news isn't great and is by no means the lesser of 2 evils.

It can take a long time to get a MS diagnosis as well. I am one of the 5% that have no leisons and it took me 6 years to be diagnosed.

Good luck and soft hugs

Els/

1dobber profile image
1dobber in reply to Elsbeth

Do they even have a MS community on here? I can't find one.

Elsbeth profile image
Elsbeth

I haven't seen one which is quite shocking. I may see if I can do one.

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