Hi I am a new member on here, so glad that I joined. Its nice to know I am not on my own. Not nice that you guys are suffering but you know what I mean.
It helps to know that I can look on here and see people who have fibromyalgia like me, and relate to how you guys feel.
I do feel like I just try to deal with it and not bother telling people if I am in pain or if I am tired. I just feel like I am moaning, I get fed up of explaining to people whats wrong with me.
Morning. It is difficult, and very annoying when people don’t understand/ listen. I wrote a text to my family to explain how things are, so that they could hopefully understand a bit better. That doesn’t solve anything, but it made me feel better, and I can resend/ remind them xxx
That is such a good idea. I have colleagues who have known my situation for a long long time and yet still say to me what do you think is causing your pain🤦♀️🤷♀️
And we are the ones who are supposed to have ‘memory issues’ 🙄
🤣
Hi and welcome to the site people just don't understand how this disease effects you just tell them what you have and explain the symptoms they will understand I to get very tired I have other symptoms aswell my wife is my carer she is a rock but don't worry what other people think it will pass all the best
Welcome Rachpow79
Sorry to hear that you are a new member of the “club”. You’ve certainly come to the right place for understanding and very good advice.
I found reading about the experiences of others very educational and also reassuring that there’s such a wealth of information here, and because it becomes apparent that our fibromyalgia can expressed in so many ways you will find someone else that is experiencing similar symptoms to your own (at any given time, they both change in nature/location and wax and wane with time) and will share their own knowledge of what helped them. So you will find lots of different changes to try against your fibromyalgia in areas such as diet, exercise, meditation etc. to see what works for you. It’s good to know that you are not just a passive victim, that you can do something to improve your symptoms and quality of life.
Many members on this site have a background in science and are brilliant at explaining things in layman’s terms.
Try not to allow stressful situations to develop. I think we can all agree that stress can be a major factor in “flare ups” so be extra kind to yourself and get emotional and practical support from friends and family.
I know I went through a period of low mood mourning the life I had lost due to fibromyalgia and I don’t think that’s unusual, so don’t be surprised if you find yourself spontaneously emotional sometimes. It’s all entirely normal.
Best wishes,
Hi and welcome 🤗 what you say makes sense entirely. I think most of us do exactly the same. You don’t want to be constantly saying how you feel so on this group you can let off steam and not feel judged. We all get it 😊
Yes indeed a great forum we all totally get what it can be like living with fibro on a daily basis, big club of us out there , but yes people don’t listen when we try and explain, so I tend to chat here rather than get blank looks , some people even now say Fibromaylia what’s that ? xx
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