Still having pain

[CopingwithEx]

Hi all I complained about stomach and chest pain which seems to keep coming and going over the past few weeks so I’ve put it down to Fibro. However I had a bad reaction to acupuncture 2 weeks ago, I went to a Chinese medicine acupuncture yesterday and they told me everything wrong inside my body!! I had a lot of needles yesterday and it was heated acupuncture. Im going every week for the next few weeks. Feeling pretty sore and achy today but going to keep going as they were very helpful and informative and professional. I’m also starting 2 weeks of Chinese herbal medicine so will keep you all updated if I notice any benifits for pain. An ex nurse who works there said she’s seen people be “cured” of Fibro/cfs from this. I don’t believe that for a second however I’m hopeful it will help me deal with pain, the awful anxiety, virus like symptoms and fatigue. X

[Hazel_Angelstar Administrator FMA UK Staff]

I hope it helps, and glad that you did not listen to their claims of *curing* fibromyalgia x

[CopingwithEx in reply to Hazel_Angelstar]

Thank you! I’m struggling so much with new pain I’m just willing to try anything at this point X

[JayCeon]

Hi CopingwithEx, I had 9x acupuncture with lots of needles (15-22) and strong increasing pain afterwards, a year ago, often hardly being able to walk for a few hours. In the meantime I've been told by a pain doc and also 2 acupuncture-docs that that is far too much for real Chinese acupuncture as well as for fibro, it sh'd be just about 1-4 needles, our bodies can't take more stimulus. So I'm surprised that you are given so many needles by a Chinese acupuncturist. Not surprised that they're saying everything is wonky tho, that's what it is according to their way of seeing things. Pity they're saying they can cure it. The doc I'm gonna get mine at soon has told me of a friend colleague who claims to be able to cure fibro with it. Altho that one is in my town, I prefer to go to the one who does *not claim it. :-)Very interested in the outcome - yours and mine... (At the moment ozone-autohemotherapy at that doc's might be helping a very little bit, at least not harming.)

[CopingwithEx in reply to JayCeon]

Yes I had needles all over my body including my scalp! Definitely still sore and achy. I will keep going with it to see if I notice any kind of pain relief. I definitely noticed a difference in terms of fatigue the day I had it done but I’m still my horrible tired/unwell way just now. Will be starting the Chinese herbal medication aswell so fingers crossed that does something 🤣 I will keep you updated if I start to notice any benifits ☺️

[Cat00]

I had a Vietnamese Cambridge University Graduate Accupuncturist she put quite a few needles in. I didn't find it had any effect good or bad. She said the trouble with my type of illnesses is that really I would need accupuncture everyday. She wanted me to do more meditation which I had been doing for a few years and absolutely hated. She knew it wasn't feasible to pay for accupuncture everyday so she said wouldn't be able to help me, I apreciated her honesty at least!

[CopingwithEx in reply to Cat00]

Yes absolutely. I’ve been told to meditate too. I tried yoga and I was agony after! I’m willing to try anything at this point as the pain/fatigue and flu like symptoms are really getting me down ☹️ x

[Cat00 in reply to CopingwithEx]

I usually go to the gym everyday. I find that thats the only way to straighten out my aches and pains, I get really bad DOMS but I prefer that pain to my fibro pain. I really should go back to meditation but I'm highly strung and am barely managing to get through the day atm what with a 2 year old and a 6 year old needing Home schooling, I'm lucky if I get any time to do the washing up. Would like to try yoga but I've broken my ankle twice and my wrist twice so I would find all the balancing really difficult!

[JayCeon in reply to Cat00]

No, I don't do much balancing at all, in between maybe, and wdn't do yoga classes at all, I do it alone in between, in my own pace, i.e. short stints. Looked at a yoga book/CD and youtube and just do it like it helps me.

[JayCeon in reply to CopingwithEx]

I've found I can do both "meditation" and yoga in short stints, i.e. autogenic training for a few minutes (I'm used to doing it, but longer) and back yoga and various stretches also for 10x1', with breaks. Yin yoga was the type mainly recommended to me, but long stretching tears me apart... sounds similar to you?

[JayCeon]

I spontaneously tried acupuncture a second time on Friday. Same as the first 9x: The acupuncture doc used a specific regime for FMS, but it again ended up being 20 needles, not the 1-3 he had said before. He expected me to be able to move a little bit with them in, to make myself comfy, but that was very painful in feet, knees, back, hands and elbows when I did, so he took the back ones out again. Pains didn't stop all day, first feeling shaky and shaken, but c'd walk OK, feeling slightly ill, nauseous, stabs as if the needles were still in there, but not where the needles were, about 10-20cm away from were they'd been. On the other hand I was able to play table tennis very precisely all the same. However the pains stayed and increased slightly till the evening, so I cold showered, which I knew from my acupressurist that that w'd neutralize it. The pain was then gone and table tennis went well again. Altogether it was too close to my last experience for me to continue it, tho.. He was reluctant to do it parallel to the acupressure anyway, but my acupressurist had done other things the last 2 weeks, so I thought it OK to try it out. He'd also preferred ear acupuncture, but we decided against that seeing as my acupressure is ear acupressure. My GP surprised me when I told him after, telling me he does quite a bit of acupuncture every week himself, that he'd never tell me to move with needles in, he'd never've put in more than 3 very thin needles, maybe even only one, and people saying original Chinese acupuncture is right for Western people can't really be right, because that would involve very long, thick needles which they use in China. Confusing... O.o

[Plants4ever]

Hi CopingwithEx, glad that you're finding help with the Chinese medicine approach, and glad that you're keeping an open mind. Here is my story; My Mum went to see a Chinese 'medicine Dr' for stomach, rib pains and generaly feeling fatigued and ill. He gave her medicine take along with acupuncture, she said it did make her feel a bit better.. he said it was her liver and gall bladder that was the problem.. she got worse and sadly died 1yr later. The stomach and chest/rib pain was pancreatic cancer, she died 10wks after diagnosis, her GP said it was a Hernia?! She was failed I know by everyone, I tell you all this just to say keep an open mind regarding alternative treatments Although her GP at that time was no better!