Hurting

[Kel6]

Hi everyone I not been on for a while. just been so depressed and in pain from fibro. I lost my dad back in November to covid ever since then my fibro has hit me like a truck. I just can't seem to get out my own way. I never sleep I'm in constant pain I miss my dad so much this on top of lockdown and fibro I feel I can't cope just needed some place to write this thank you. 🙏😥

[Mikilie]

So sorry to hear what you been through. I have fibro I'm on zomorph 60mg twice a day and pre gablin 25mg twice a day and still in constant pain and my doctors just don't seem to help and are just leaving me in pain. Feel like it's taking over my life

[Kel6 in reply to Mikilie]

Hi mikilie really hope you start feel better I know it's constant pain with fibro and the fog one min I don't sleep for months then next it's all I do I'm on oral morphine for pain because nothing else works thank you for answering pls takecare look after yourself god bless kind regards kel🙏🙏🙏💯🌈

[Catwoman2409 in reply to Kel6]

Hi kel, i am suffering with cronic widespread pain too,painful swellings on spine and buttocks extremely swollen legs especially ankles ,ankle bones completely disappear haven't been able to move any of my toes for 3yrs, i received this cruel condition after a head injury, i have mental impairment which has brought my attention span to nearly zilch, i cant remember stuff or what i say that could only happen 5 mins or so ago, i do stuff and not even aware of doing it, i cant think on the spot anymore i can't even remember what order my words should go most times when in conversation, also it seems the harder i try to remember, the blanker i go, have been told that no pain relief will ever work as after amongst med i worked my way up to high dosage of morphine patches but only effect i was getting was side effects,i couldnt say a word without slurring, anyway got off patch was put on gabapentine, exactly same slurring words cronic fatique couldnt even have strength to keep my lids open or move my jaws, so basically got thrown on scrapheap over 2 yr ago at 47, changed docs twice but they don't want to know started suffering stinging burning pains in my soles now to add, cant stand on fret gor more then 15mins tops, i know it just a mattet of time before pain will happen instantly as soon as feet on flloor now, no one is prepared help ignoramous is rampet where i live, also i lost my lovely mum in november too, she went in hospital with pneumonia she tested negative, 2 days later she had tested positive, day after i had to say goodbye to her,the most devastatingly horrendous experience in my lifetime then the day after that, i turned 50, i will never come to terms with what happened, now i know there is absolutely no hope of any help and my lovely mum has gone too, absolutely stolen everything that was the person i used to be, trapped inside a useless body and mind with no escape at all. Sorry to hear the loss of your dad,but i am sure he is watching over you sendu g his love, strength, positivity, healing and protection, i hope you will find comfort in knowledge of him looking after you and protecting you and keeping you safe and strong..not good with words nowadays but i hope it helps you xx

[Kel6 in reply to Catwoman2409]

Sorry its been while I had leave for bit I was suffering in pain losing my dad I just couldn't deal but I really do appreciate your kind words and advice fibro is pain in the ass but I try live on with it seems like it's hot weather doesn't help at all with the fog I just wanted say thank you and I do appreciate your words ps I really hope your getting on well doing good 😊

[LoneEra]

Really sorry to hear this. I would try to explain this to your doctors and see if they can tweak your meds.

The not sleeping really does not help. It’s only a temporary fix, but I recommend Night Nurse liquid for times like this. Take the suggested dose just before bed and it will knock you out!

If you can get a few good nights, hopefully the pain will ease a little and you’ll be able to feel a bit brighter.

But also try to be kind to yourself. It’s a massive blow losing your Dad. And the constant pain is so hard. Allow yourself time to grieve and cry and feel angry or sad. It’s ok.

My final suggestion is to eat as well as you can. I know it’s hard when you feel like this, but fresh fruit and veg will help your body. And don’t forget to stay hydrated with water.

Sending you lots of positivity! Xx

[Kel6 in reply to LoneEra]

Thank you for your replie and the advice I'm trying it's hard but I'm trying keep giving out that good advice pls also look after yourself too I defo take all on board it's nearly 8am I been up all nite again I really appreciate you answering and giving advice kind regards kel God bless you💯💯💯🙏👍👍🌈

[saluhouse]

Hello. So sorry to hear how poorly you are feeling. When you are low and depressed everything hurts so much more. Losing your Dad has sent your fibro into overdrive.

Try to tell yourself you will feel better. Gradually your body and brain will come to terms with your loss.

But in the meantime be kind to yourself. Get lots of rest, eat natural nourishing food, drink lots of water. Lean on the people who care about you.

Things will get better - just hang in there!

Xxx

[Kel6 in reply to saluhouse]

Thank you for your words sal I do appreciate them yes been so hard with losing dad but I'm learning live again I had go away for sometime to heal deal I am still fibro is still in over drive this hot weather is just killing it with my fibro fog I really hope your keeping well doing well I really appreciated your advice and words of support so wanted come back thank you 😀

[Yassytina FMA UK Volunteer]

Hello , I am so sorry to read of your loss,I quite understand like you’ve been run over by a truck, it’s devastating enough to lose a loved one let alone living through this Covid at present. Have you had a catch up recently with your doctor about the depression/pain he/she can look at ways of helping you through this, Sending my empathy and hugs xx

[Midori]

Emotional trauma of losing your dad like that may have put you into a flareup, could you perhaps contact your GP for help? Perhaps if you are on Antidepressants, it could be an idea to increase them for awhile? Also would some counselling help?

Cheers, Midori