Help I am worried about fibro

I'm 19 and just been diagnosed with fibro. Some days I find it so difficult to work and am on codeine to help me do my job. I've been told my fibro is only going to get worse. But I want to be able to push a pram if I ever have children.

Does anyone else have severe back pain , hip and knees ? I don't want to get any worse as it does affect my relationship with my boyfriend.

Please help me advice on how to cope would be wonderful. I feel so down at the moment.

its that bad somedays i can't lift my left leg more than 3 inches off of the floor

5 Replies

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  • Hello Em, I have only just seen your message above and have just replied to your other post. Here is my reply if you click on the link -

    fibroaction.healthunlocked....

    If you read my reply to your other question and give us a bit more info if you wouldn't mind we will do our best to point you in the right direction.

    It can be very worrying at the beginning as we don't know what lies ahead. Have you been prescribed specific medication to help you with your pain and other symptoms? It sounds like you need your pain control reviewing, you shouldn't be suffering as much as you seem to be.

    Yes we do have pains in our backs, hips and knees. The pain of Fibro can be very extensive, it tends to vary from person to person. Some is more widespread than others and the intensity of our pain can vary too. Some days are worse than others, we can also have flare-ups where our symptoms are especially bad.

    There is no guarantee that your Fibro will get worse, it might remain the same. Some people even go into "remission" and have little or no symptoms at all. It doesn't have to be bleak honestly. There are also ways to learn to cope and manage well with Fibro - you can learn through pacing to have a well controlled life and be able to do the things you want to do with appropriate rest periods and monitoring how you are managing. There might be things you won't be able to do, but that is the same with any person who doesn't have Fibro.

    Have you considered asking your GP for antidepressants just to help you through this stage, sometimes we all need a little prop to help us manage for a while. You don't have to take them for too long. It might be worth giving them a go.

    I hope this helps a bit. Please read my other reply and get back to us regarding the info requested so we can get a better picture of where you are so far. Bless you, take care.

  • hi emjane,

    i am 26 and recently diagnosed with fibro as well.

    im not going to lie, it is a tough illness to have and affects every part of my life when i am having a very bad day BUT there can be light at the end of the tunnel.

    with a good gp/consultant, the right meds and support from friends and family you can get through your bad days.

    i have pain in every part of my body but my worst areas are my back,legs,hips,feet and hands. i take gabapentin, dihydrocodine and ibuprofen. some days my meds work and sometimes they dont.

    i also work and i am battling with my employer to changes my duties at the moment (they are not very caring) but if you have a good employer talk to them about how they can help you. hopefully your partner is a supportive one, maybe ask him to look on this site with you to see other peoples experiences and help understand what you are going through a bit more.

    i hope you find this site useful and if you want anything else answered i would be happy to try and help you, please msg me at anytime

    xx

  • Em please click on the link below which will take you to our main site, there is so much info about Fibro, how it's diagnosed, how to treat it, meds etc., please take a look -

    fibroaction.org/

  • Hey.

    I understand completely how your feeling, I was 19 when I was diagnosed with R arthritis and about a month ago with Fib ontop of that. Now 22, I'm starting to freak out abit about it all. I was training as a nurse, which I have had to give up due to my joints and pain problems. What do you do? I know it can feel really hard and scary and Iv has had many low points. Give me a email if you have any questions or just fancy a chat.

  • I developed Fibro aged 21. It took me 2 1/2 years to get diagnosed and I did not get decent treatment - it took me a further 3 1/2 years to get good treatment. Before I did, I had become disabled. However, since 2007, I have got my Fibro under control and have mostly been in remission (defined as having no significant daily symptoms with no regular medications) apart from a few short flares for 3 years now.

    My daughter was born in 2010 and, if anything, having her has made my health even better.

    So don't get despondent. Having Fibro should not have to impact on your decisions for family in the future! Even if you have other conditions that may make getting good symptom control harder, you should hopefully still be able to have a family in the future and enjoy being a mum.

    Accurate and comprehensive diagnosis is critical with Fibro in terms of getting good symptom control Most people with Fibro also have other conditions alongside it, even if they could be considered to be symptoms of the Fibro or otherwise linked to the Fibro - e.g. Myofascial Pain Syndrome, Hypermobility Syndrome or Positional Cervical Cord Compression. Understanding exactly what causes all of your symptoms means that treatments can be targeted, making them far more effective,

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