My name is debbie. I am 46 with crippling pain from fibro. I just had a hospital spell with covid on facial oxygen too but I'm better from that now. It's the fibro that's crushing my life. I have had fibro 28 months which is a short time compared to others but the pain is excruciating. I take co-codamol amd pregabalin plus an antidepressant and a sleeping pill. The pain recently is so severe. I have been crying some of the day. In hospital they gave me oral morphine and it helped so much but the pain is stopping me getting anything done. Please, does someone have a medication regime that helps? that doctor's will prescribe? I take co-codamol but it's not enough any more. All my scans and blood tests are essentially ok so doctor's don't want to give me strong medications, and question if it's all in my head? It's pain that is the disease, pain that needs treatment in itself. I'm struggling, please helpme. love to all. x
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Hi Debbie. . . So sorry to hear the situation you are in, I know how bad you must be feeling, many of us have been there; unfortunately I can not help with remedies that work immediately, but do try to take things as easy as possible. I to take Cocodamol and Amitryptaline.If you are getting no where with your doctor, ask to be referred to Rheumatology and or to a Pain Clinic/Pain Management Programme.
Unfortunately I feel your body may now be in a Fibromyalgia Flare Up due to your recent additional health issues, You Need to Rest!
Flare ups are generally caused by: stress(over doing things mentally), over doing things physically, ill health; changes in routine, situation, surroundings, environment, diet and or medication. Just about anything can affect you.
The advice of taking things easy is imperative but does not mean you are to do nothing, as you must keep yourself mobile(as I am sure they will have explained in hospital, being immobile is just as dangerous as being over mobile). I would suggest light duties only for a good few weeks, try getting out doors daily for 15-20 mins at least, try pacing any activity you must do(5-10 mins of task, 5-10 min rest and so on), this may seem a lot to be getting on with but Pacing is the best tool in my belt. Keep cosy if warmth eases symptoms(use blankets, hot water bottles, heat pillows, socks in bed), learn to completely relax(bathe in scented Epsom salts(the magnesium may ease symptoms and aromatherapy combined should be calming), have a mindful cuppa, use guided meditation); most important, do something non taxing that you enjoy daily(reading, playing cards, domino's or dice, do some arts and crafts, knit, crochet, write, bake, cook, make and or listen to music, garden) or perhaps learn something new.
Sorry to ramble on, I hope some of this might be useful but I strongly advise you get back on to your doctor, you need the right advice for you.
I am certain you will receive some wonderful advice from the awesome people on here and i look forward to hearing how you are getting on.
Sent with warm wishes and gentle hugs, remember and be kind to yourself.
Hello Debbie , firstly there is nothing worse than pain for screwing your life up , but my brush with Morphine nearly destroyed me physically , so i wouldn't advise long term use , i would go and see a specialist .
Thank you. My GP prescribed oromorph. I have taken it twice now. It helps, but I cannot take it everyday because I am afraid to lose the help if i become tolerant. Today is difficult. I will keep your comment in mind, but The level of my pain will probably force me forward anyway. Wishing you all the best for controlling your pain and finding an answer that works for you. Debbie x
Hi, I am on morphine based patches that I have to put on my back. They have to be started on a low dose and gradually increase up as they are too strong to start on a high dose. I started on 5 I’m now on 35 and thinking of going higher again. It was my rheumatologist that started on them when she discharged me back to my gps care he has continued giving them to me and increasing them when necessary. If your go won’t prescribe them ask to be referred to a rheumatologist. Hope this helps. Sturdy
Thankyou. I asked the GP on the phone for buprinorphine patches, he declined as he said the "jump" from co-codamol to patches was too big so he gave me oromorph, which was kind, I think I need some kind of patch to keep the levels stable though because the pain on waking for the first hour before medications help a bit is severe. with a patch i would be the same on waking or through the day. The pain keeps moving up a notch, which is probably why you have to keep increasing your patches. I'm so glad they still prescribe them for you, and increase them for your pain. You must have a very understanding GP, which is lovely. I was in hospital for covid recently and they said I would be referred to pain management. I will phone the ward and chase it up. Debbie x
Hi, i take duloxetine which is absolutely brilliant for fibromyalgia and its also anti depressant, ive stopped taking my normal antidepressants and just use that and amitriptoline to sleep and is also a antidepressant. I alsi take pregablin but thats for nerve pain. I have morphine patches which obviously slowly give you morphine 24/7 ive found them life changing as like you i was crying and suicdal in pain.
Thank you. I will ask about morphine patches if I get to pain management. I had considered both duloxetine and milnacipran, as i take mirtazapine as an antidepressant at 45mg. It is an excellent antidepressant but does zero for pain, so maybe it's time to switch. Debbie x
debbie, TTFD thiamine such as Lipothiamine or fat soluble forms like Sulbutiamine are explained in the first link below. These are forms not found in B Complex formulations. Thiamine requires adequate magnesium such as magnesium glycinate for bioavailablity. Pain causes loss of magnesium. I've also included in the third link a list of other nutrients to research. Also eonutrition has videos on youtube to provide additional insights on thiamine and the TTFD form. Please benefit from it. I hope this information offers the relief you have been searching. Always consult your health care professional before using any supplement.
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Best day ever but now in so much pain 
Any help very much appreciated thank you
pain too much
Really in need of help with pain/depression.
Living with pain 24/7. Can anyone help. Please. 
