Can't sleep

[KittenMam]

Its 2:39AM and I can't sleep again. I had a klonapin. 3 Advil, 1-300 mg of neurotin ,not all at once, and still can't sleep. The pain is in my back and abdomin, arms burning, legs numb like pins and needles. This is almost every day. Nobody really gets how bad fibro can be. I think covid long haulers are getting similar after affects. Anyway going to try to read a little. Good night if its night time where you are.

[Yassytina FMA UK Volunteer]

I was wide awake till 1ish last night, hate nights when that happens, I got up ate some biscuits had a drink (not that my waistline needs it🤣) yes I’m reading some Covid sufferers are getting similar after effects. I hope tonight is better for you.

[Hidden in reply to Yassytina]

I am so sorry, Yassytina. Insomnia is unkind. It's one of those symptoms I have found nothing that helps so far. I don't go to bed anymore. TV and radio can be soothing. I have told my family that if I fall asleep nothing outside an earthquake should wake me up. Sleep has become so precious.

[Hidden]

Im so sorry my insomnia is bad to i get 2/3, hours a night its horrid your not alone hun xxxx

[Yassytina FMA UK Volunteer]

Yes I have read awful stories where young people who were really fit and healthy are now left completely exhausted, very sad this whole COVID, hope your taking good care xx

[rosewine]

I can commiserate was up most of the night with pain. I did get up and take some more meds and had a milky drink but I was still more or less the same afterwards. Feeling really rough today, it does make life so difficult. Hope we all get a better night tonight.x

[Hazel_Angelstar Administrator FMA UK Staff]

totally understand - my sleeping patterns at moment are lie awake till about 3/4 am then finally fall asleep and get a few hours on and off until alarm goes off at 9am. I've now got to stage that i go lie down most afternoons just to try and catch up on an hour or two ....

[Hidden]

Try getting a heated massage cushion. I've got one that I use in the car. I can also use it at home as it has the adapter. It's great for putting on your bed at times like these. My one has different controls and levels for the body zones, heat and speed. It helps me. They're not expensive only about £25 for the one. Check online and try it. As for the insomnia. I have suffered for over 30 years and I tend to live my life according to my sleep patterns. I do what I can when I'm awake and sleep when my body wants to. I've gone for a week with only a couple of hours sleep! My previous GP gave me 8 sleeping tablets and told me that he doesn't know how I'm doing it but if I felt the need to sleep to take a tablet. I only took one in a year! I just decided to live around my sleep patterns. Normally I'm asleep by 8pm and then I can wake hourly until 3am, when I'm up for good. I try to go to bed after lunch, just to rest and see if I can have a nap. No coffee or stimulants, just close the curtains and put a meditation video on the TV and try and chill! I really hope this helps you x

[Mathex]

I can relate. Can’t remember the last time I had a proper sleep, my Fitbit would record that I had 52 minutes of deep sleep and 1..13 of light sleep but during light sleep am aware of everything that is happening around the house (even if someone walks in tiptoe I would still hear them) hope one day there will be a solution...... xx

[Disturbed47]

Just been reading everyone's comments on here & I don't want to sound horrible but it's good to hear other people who all sound like me. I know none of us wants to be suffering & I do not wish this on anyone but it's nice to be in contact with others who understand what I'm going through. My family try to understand but I don't think they can understand how someone can say they're in pain 24/7 when they don't look in pain. Before lockdown in March I used to go out occasionally: a pub meal with my daughters & Granddaughter, bingo once or twice a week with my Mum, occasionally out for a coffee anything I could do where I could sit down (no shopping unless online) & I used to get fed up of the looks of disgust & muttered comments they probably thought I couldn't hear just because I use a walking stick & I'm reasonably young. I'm only 47 & finally got a diagnosis when I was about 38 & was advised to use a stick or a crutch to aid my balance. I stopped going out regularly cos of this & now I don't go out at all cos I'm extremely clinically vulnerable. Some days I struggle to get out of bed due to pain but also the weather affects me whether it's warm/cold/wet/dry etc. I found it difficult to work because the jobs I did before required me to be on my feet a lot & I don't think there are many employers who would appreciate enploying someone who doesn't sleep very well at night but can suddenly nod off during the day (this is another thing my family don't understand, they say if I stopped sleeping during the day I would sleep at night. If only it was that simple). I have read up on a few symptoms connected to Fibro & some things I have problems with I would put down to my Asthma or family would just say I was weird. I hate strong smells like bleach & paint & it would give me a bad headache, I put this down to Asthma but it never affected my daughters who also have Asthma. Tingling/stabbing pains & burning in my feet & legs I could never understand what caused it along with restless legs. When I got the stabbing/tingling pains that felt like really bad pins & needles I used to hit my legs to try to get rid of the pain then I would suffer from more pain & the next day my legs would generally be bruised. Sorry all my comments are long but I just feel as though I'm getting some things off my chest now there are people I can connect to who DO know what I'm going through. I will try to shorten them in future otherwise they will be blocking me off this page

[Lovecavatese]

Hi Kitten Mam, im so sorry to hear that you are suffering, it is truly terrible. I get this too, I have to get out of bed to reset my bones to gravity, my neck stops me from lying on any side without nagging nerve pain and lying on the occipital region feels like I'm lying on an open cut, I do hope you have better nights. I fantasise about being weightless and floating in space lol. X

[Micafe]

I used to take Clonazepam (Klonopin) for insomnia and it helped me a lot. Nowadays doctors apparently are not allowed to prescribe it.😔

I was desperate and my doctor prescribed Cymbalta and it has really made a difference. I am sleeping well and I feel much better.

It's terrible how the government decides what you can or cannot take to feel better. 😡

[Hopinggh]

Hello!

Im sorry for the insomnia and the pain you have.

I have practically full body burning pain and pins needles effects too.

Im in the USA and started using medical marijuana. The nighttime brand i use is specific for sleep and i sleep like a log with it .

Magnesium and 5htp are over the counter vitamins that help sleep too. 5htp makes me very, very drowsy/sleepy in a short time .

I hope you find some relief.

Hopinggh

[Budgielady]

I have had chronic insomnia for years, really bad restless legs, my worst pain areas are left hip and my back and shoulders. I live in the UK and have ust discovered motorbikers cosmetic company.. Their fibro kit is amazing..I was very sceptical but desperate when I ordered it.

My shoulders were permanently clenched with pain.. Their pain slayer has changed my life.. The difference is shocking..

Muscle magic helps restless legs.. I rub it in every night.. I also take magnesium tablets too, I've been taking them for a year or 2 now and along with muscle magic the difference is amazing.

Sleepy head is spectacular.. I got a little roller ball bottle and it's much easier to apply in that.. All the ingredients are natural and I wouldn't be without it now.

.. The only thing that gave me a night's sleep before was a dihydrocodeine..

These 3 products alone have made a massive difference to my life.

It is well worth doing a little research yourself if you're not sure but I am going to make sure I never run out of any of them.

Healing hugs to you all..

Shona. X