Night sweats anyone??? : I wake every... - Fibromyalgia Acti...

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Night sweats anyone???

Lucy41 profile image
36 Replies

I wake every single morning soaking wet with sweat... like I’ve just got out the bath... why is this?? 🤪

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Lucy41 profile image
Lucy41
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36 Replies
trip77 profile image
trip77

I know what ye mean n I get that too. It can happen even after an hour or two of sleep for me. Go to sleep.....pillow dry, wake up 2 hours later........wet through with sweat, same for my comfies.

To me, I think it has to do with your body being in a heightened state because of pain neurons/receptors firing off constantly like they do during the day, only you are not moving around and creating airflow to your body.

Something like that I think, maybe.....possibly.

Dizzytwo profile image
Dizzytwo

Hi, it could be hormonal or medication you are taking maybe?

Entela15 profile image
Entela15

I'm the same. I wake up drenching in sweat. Don't know why. Could be because of the pain and discomfort during the night.

Chez1 profile image
Chez1

menopause?

PurpleGlitch profile image
PurpleGlitch in reply toChez1

surely not...

Dizzytwo profile image
Dizzytwo in reply toPurpleGlitch

Hi purpleGlitch :) why do you think it couldn't be the menopause. Many people go through the perimenopause at a very early stage. My friend was 26!! And her night sweats were horrible so she told me at the time. So yes quite a plausable answer imo xx

PurpleGlitch profile image
PurpleGlitch

Same... so weird! the only thing that slightly helps is putting deoderant on before bed! Doesnt matter what I wear (if anything at all!), how thick thick the duvet is... very annoying!

Lucy41 profile image
Lucy41

It’s crazy every single night is the same I thank god my husband is so understanding as it can be very embarrassing xx

moo196 profile image
moo196

Menopausal?.... Fairly common experience sadly :(. Have you chatted with yr Gp? Don't be embarrassed in front of yr husband.... It's a normal female function.

Lucy41 profile image
Lucy41 in reply tomoo196

Been told it’s not hormonal.... it’s pain 🤪

LJS13 profile image
LJS13 in reply toLucy41

Do you take tramadol on a night? I’m the same with night sweats my doctor recons it’s the tramadol 🙂

Lucy41 profile image
Lucy41 in reply toLJS13

Been told I can’t take it anymore as it’s not doing my long term health any good.... so at the moment I’m waiting to see another rheumatologist 🤪 x

LJS13 profile image
LJS13 in reply toLucy41

I’ve been on it years now I don’t think it works anymore I’m probably just addicted to it . Nothing ever seems to work medicine wise for me only steroids but I’m hardly ever allowed them

Lucy41 profile image
Lucy41 in reply toLJS13

Same as you guinea pigs spring to mind lol that’s all we are that’s why I smoke weed.... long term prescription medication isn’t the answer.... any one have a magic wand 🪄?? 🤪

LJS13 profile image
LJS13 in reply toLucy41

Ha ha oh god I’d be eating all the time lol

Dizzytwo profile image
Dizzytwo

Hi Lucy, you say it's pain? So does that mean you know the cause of your sweating? If you don't know then maybe you need to have a word with your GP. It could be a host of things causing the sweating.

Sandra600 profile image
Sandra600

I am over 7 years post menopause and I sweat at night, I have to have a fan on all night.

Cat-Lady20 profile image
Cat-Lady20

I worked out after six months of awful night sweats that it was because of Duleoxetine and once I was off it i haven’t had it since, so it could be because of medication.

Jacjai profile image
Jacjai in reply toCat-Lady20

Hi.. I've been taking duloxetine since 6 weeks and and I'm getting the same problem, I have to change my PJ in the morning sometimes as I'm drenched.

I use to get the problem before taking duloxetine but not as much since recently, I've tried so many medications and find the side effects awful but since taking duloxetine it does help so much with the pain so I'm reluctant to come off them, I'm hoping the sweating will calm down in the long run🤞

Cat-Lady20 profile image
Cat-Lady20 in reply toJacjai

I was talking it last year as a mix of anti depressant and for pain. For me it got worse over time to the stage I was up twice a night to change or I needed to shower. I made the choice that if I wasn’t getting a good amount of sleep it wasn’t helping and since then I’ve gone onto Melatonin and that’s really helped me mentally and because I sleep better I can deal with the pain better. I do also take a pain killer but I think for me I needed to sleep because at that stage I couldn’t cope. But I understand why the other pain options do come with problems.

Jacjai profile image
Jacjai in reply toCat-Lady20

I agree, a good night sleep does make a huge difference with pain. Melatonin..is it a prescription you get from your GP?

Could you tell me more about it please as I'm getting fed up with all the side effects from these medications we're offered from our GP for a bit of pain relief😥thanks.

Cat-Lady20 profile image
Cat-Lady20 in reply toJacjai

I originally got It prescribed when I was seen by a specialist who took me off the dulexotine but now I get as repeat from my GP. So you should able to talk to your doctor about it. I’ve heard a lot of stories of people taking it to help them sleep so it seems to be more common so it should be something they can help you with.

So from what I remember it helps with your circadian rhythm and helps with the fact that we use devices like tablets or TVs they admit light and that makes us more awake and less sleepy and confuses are bodies before we go to bed and all that light knocks us off feeling sleepy. This gives us extra of our natural hormone to help us feel extra sleepy. You can google more about how it works but that’s a vague description but I take a very low dose and it doesn’t have any of the groggy feeling of a sleep pill and I haven’t had any side effects. It just gives you extra of your bodies natural stuff that makes you sleepy and for me that works enough to generally get me to sleep. I see online that you maybe able to buy it without a prescription but I’m not sure so that’s something you could look into. Sorry it’s a bit rambley I hope that helps.

Jacjai profile image
Jacjai in reply toCat-Lady20

Hi.. Thank you so much for going into such detail, sounds exactly what's I need, I do believe a good night sleep makes a huge difference to the body.

I been suffering with a frozen shoulder since the last few months which I need steroids injections to help with the pain, 2 weeks in it made a massive difference and I'm able to come off tramadol which I'd been taking for over a year😊

I'm only taking duloxetine 40mg now in the morning and few paracetamol when I need during the day, it just the sleeping now and I'm sure it does have something to do with duloxetine but it really does work for the pain.

I'll have a look online..thank you😊

Me too. Like Turin shroud. Shaking. Tight skin. . Not a sweat on canbis. 😉Works perfect for me.

I think it has to do with he fact that fibro can make it hard for your body to regulate temperature. Sometimes I’m freezing at night and sometimes I’m burning hot and sweat through my clothes. Same throughout the day and nothing I mean nothing can either warm me up or cool me off.

Lucy41 profile image
Lucy41 in reply to

Sat here with 3 hot water bottles now shivering pain in my back and hips driving me mad..... I sometimes find that it’s not just during the night it’s day time as well..... just bring back the 🌞 please x

Lucy have you been running marathons in your sleep again lol only marathon i run for is a chocolate one

🤣🤣

Lucy41 profile image
Lucy41 in reply to

The only place I run to is the bog 💩lol 😜

in reply toLucy41

🤣🤣🤣

OMG! I'm the exact same! Never sure if I'm too hot or is it cold sweats.

Jan101 profile image
Jan101

Hi Lucy41

I totally understand how you are feeling. I had the night sweats last year and it really got me down. Waking every morning and it felt really terrible like walking out of a shower with my pjs on. I went to see my gp and she told me to take my temperature morning and night for 2 weeks. When I went back to see her she could only say that my temperature was fine 🥲. So I went to see my doctor at the hospital and he prescribed me a urine tablet and I was absolutely amazed it stopped the sweats right away. I was absolutely over the moon to wake up and not be soaking wet from head to toe in the morning. He told me to start with one tablet at night for one week then progress to 2. It worked for me right away so I didn’t need to progress to 2 tablets.

Then 2 of my nieces had the same problem and I told them what I had taken and it worked for the both of them.

Went back and told my gp and she hadn’t heard that this urine tablet would help me. She could only say that this is a urine tablet and made a funny face. I will have a look and get you the name of this tablet and maybe you could speak with your gp.

I am only mentioning what worked for me and my nieces. I wish you well and stay safe. Hugs 🤗 🤗🤗

Lucy41 profile image
Lucy41 in reply toJan101

That would be amazing thank you so much for your help x

Jan101 profile image
Jan101 in reply toLucy41

Hi Lucy41 the name of the tablets is Oxybutynin start with one after one week progress to 2 in the evening.

Please let me know how you get on.

Take good care and stay safe. Hugs 🤗

Lucy41 profile image
Lucy41 in reply toJan101

Thank you so much I shall contact my gp ASAP as it’s driving me crazy 😜

Jan101 profile image
Jan101 in reply toLucy41

I will keep my fingers crossed 🤞 for you. Please let me know how you get on.

Lucy41 profile image
Lucy41 in reply toJan101

Thanks darling will do x

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