Anyone received Incapacity or incapab... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Anyone received Incapacity or incapability to work?

Alanna012 profile image
5 Replies

I have recently applied for incapacity for work on UC but I feel very negative about my chances of getting it. I learned last week that the only doctor at my surgery who had any understanding of the condition and would have provided me with decent evidence has retired a couple months ago. Had I known I would have changed to a different surgery immediately. The 2 remaining doctors are completely ignorant about fibromyalgia. Sending in info about fibromyalgia has been a waste of time. I doubt they've even read it.

The problem is I don't take anything except occasional amitriptyline, have no referrals to any clinics (was referred to physio by rheumy in past but turned it down as I was going through a 'good patch') and feel that they are going to assume that I am not really struggling or in pain, which isn't true and I get terrible fatigue.

I am really struggling and because I had to take an advance all the vitamins and things I used to buy to keep me going are a real struggle to keep up with on my new budget.

I really don't know how. I'm going to manage

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Alanna012
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5 Replies
Wild-Wander profile image
Wild-Wander

I receive ESA and have recently been assessed as incapable of work. It’s actually taken two years to get this far. But it is possible. I would strongly advise contacting your local Citizens Advice Bureau - I could not have gone through the last two years without them. I truly believe that their involvement gave extra support to my application. Same with PIP. You can submit evidence from Occupational Therapy, Physiotherapy. It’s a pity about your doctor but where I am in Scotland it’s the admin services that provided a summary of my medical records that gave the most evidence. I’m not on any meds now, tried several and the side effects are too great for me. I am waiting for an appointment with a private medical cannabis clinic, but have used over the counter CBD for the past year. The clinic works with my GP too. I also listed this info in my supporting evidence. Good luck! It’s been a long road for me but wanted you to know that it is possible! CAB is vital.

Alanna012 profile image
Alanna012 in reply to Wild-Wander

Thank you! Glad things have worked out well for you♥️. I didn't even know there was such a thing as a CBD clinic!

Yes I've been filling in the IFW form with the help of the CAB over the phone. They have been super. Could not have filled in either form without them. I am just still worried that because I have no clinic referrals etc it doesn't seem as bad on paper as it is in real life. But you've made me feel much more positive, so thanks for the encouragement!

Wild-Wander profile image
Wild-Wander in reply to Alanna012

Oh you are more than welcome.. I’m finding this forum so reassuring too! I’m so grateful to have found it!

There are several private medicinal cannabis clinics in the UK. They assess you medical history and case and prescribe accordingly. That may be medical CBD or medical cannabis. It’s worth doing a bit of research. It’s far far FAR better than anything you will access over the counter or online at health shops. Not cheap but it’s the best thing I have tried to date and so worth it!

The very best of luck with everything!🤞🍀

releasethemagic profile image
releasethemagic

Although UC is a different benefit from ESA, the incapacity for work component is assessed in the same way. You may find these guides useful

disabledviewuk.com/download...

durham.gov.uk/media/3903/Wo...

Alanna012 profile image
Alanna012 in reply to releasethemagic

Thank you🌟 Very helpful thanks

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