Been off grid for a lo g time - Fibromyalgia Acti...

Fibromyalgia Action UK

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Been off grid for a lo g time

Blue1927 profile image
Blue1927
β€’13 Replies

Hi everyone,

I have been off this site for almost a year, sorry had a tough one, been in a lot of pain, etc etc etc. Had to make some tough decisions and one was to give up my part time job which I loved so so much 😒 but it had to be done. My husband is very supportive and said he was very suprised I lasted this long struggling on a daily basis, but he is proud I tried for as long as I could.

I did feel a bit better for a couple of weeks, more positive that I could manage this pain now, but then lockdown began. My symptoms have become worse again and I also have my PIP assessment on Wednesday which isn’t helping I know, I am totally dreading it as i’m hopeless on the telephone 😱. At least my Husband will be with me.

Anyway, sorry for making this an essay and a long read for you all, but my main purpose was send everone a massive hug during these times. I will get through it and so will you all. Please stay safe, sending lots of hugs πŸ€— πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—πŸ€— xx

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Blue1927 profile image
Blue1927
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13 Replies
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angiecxx profile image
angiecxx

Good luck with your assessment on Wednesday, I think I would much prefer to do the assessment over the phone, I'm not very good with a one to one interview. πŸ˜•. Your husband sounds very supportive I'm sure he will make sure you are ok on Wednesday. Good luck with it my lovely and stay safe πŸ’›

Blue1927 profile image
Blue1927 in reply to angiecxx

Thank you so much angiecxx, I will be glad once it’s over. Take care and thanks again for your lovely message πŸ’œ

Kitten-kat23 profile image
Kitten-kat23

Good luck with your assessment on Wednesday. Hugs.

Blue1927 profile image
Blue1927 in reply to Kitten-kat23

Thank you Kitten-kat23

Blue1927 profile image
Blue1927

Thanks Mr-Zoonir. It is good to hear you are off your meds now. I think the Amatrypatiline is making my fibro fog worse, but constantly reviewing my meds with the Doctor. I am also trying CBD to see how that goes and I was told that Magnesium Malute may be good also. Anything to help 🀞

Blue1927 profile image
Blue1927

I’m not one for taking tablets to be honest, so always welcome to try alternatives. That’s good to know about sugary foods and white bread. I make my own bread too but mostly white and been baking more since lockdown. Could be a reason for me to be in more pain at the moment. I will look at making sourdough and see if it makes any difference.

Thank you for your advice, really appreciate it and I will look into the Perchoti method.

Blue1927 profile image
Blue1927

Just reading the article now and I have never heard of using cbd on your belly button. Very interesting. Yes it was magnesium malate I have been reading about, makes sense what you say about the Epsom salts.

izzykirk3 profile image
izzykirk3

Sorry to hear you haven't been great. I find that stress makes all the aches and pains and fatigue much worse. I hope you get your pip sorted and then maybe you will be able to relax and feel better.

Blue1927 profile image
Blue1927 in reply to izzykirk3

Yes I think your right izzykirk3. I will be glad when tomorrow is over and also the difficult times with Covid will soon come to an end.

uggycat profile image
uggycat

Hello Blue x

Blue1927 profile image
Blue1927

Hello uggycat , hope your manging to stay safe x

Gooddaysagain profile image
Gooddaysagain

Good luck with the PIP interview.

ehugz, dee x

Blue1927 profile image
Blue1927

Thank you. It’s over just got to wait for the outcome now. Assessor was nice and friendly, answered best I could so 🀞

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