Been off grid for a lo g time - Fibromyalgia Acti...

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Been off grid for a lo g time

Blue1927 profile image
13 Replies

Hi everyone,

I have been off this site for almost a year, sorry had a tough one, been in a lot of pain, etc etc etc. Had to make some tough decisions and one was to give up my part time job which I loved so so much 😢 but it had to be done. My husband is very supportive and said he was very suprised I lasted this long struggling on a daily basis, but he is proud I tried for as long as I could.

I did feel a bit better for a couple of weeks, more positive that I could manage this pain now, but then lockdown began. My symptoms have become worse again and I also have my PIP assessment on Wednesday which isn’t helping I know, I am totally dreading it as i’m hopeless on the telephone 😱. At least my Husband will be with me.

Anyway, sorry for making this an essay and a long read for you all, but my main purpose was send everone a massive hug during these times. I will get through it and so will you all. Please stay safe, sending lots of hugs 🤗 🤗🤗🤗🤗🤗🤗 xx

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Blue1927
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13 Replies
angiecxx profile image
angiecxx

Good luck with your assessment on Wednesday, I think I would much prefer to do the assessment over the phone, I'm not very good with a one to one interview. 😕. Your husband sounds very supportive I'm sure he will make sure you are ok on Wednesday. Good luck with it my lovely and stay safe 💛

Blue1927 profile image
Blue1927 in reply toangiecxx

Thank you so much angiecxx, I will be glad once it’s over. Take care and thanks again for your lovely message 💜

Kitten-kat23 profile image
Kitten-kat23

Good luck with your assessment on Wednesday. Hugs.

Blue1927 profile image
Blue1927 in reply toKitten-kat23

Thank you Kitten-kat23

Blue1927 profile image
Blue1927

Thanks Mr-Zoonir. It is good to hear you are off your meds now. I think the Amatrypatiline is making my fibro fog worse, but constantly reviewing my meds with the Doctor. I am also trying CBD to see how that goes and I was told that Magnesium Malute may be good also. Anything to help 🤞

Blue1927 profile image
Blue1927

I’m not one for taking tablets to be honest, so always welcome to try alternatives. That’s good to know about sugary foods and white bread. I make my own bread too but mostly white and been baking more since lockdown. Could be a reason for me to be in more pain at the moment. I will look at making sourdough and see if it makes any difference.

Thank you for your advice, really appreciate it and I will look into the Perchoti method.

Blue1927 profile image
Blue1927

Just reading the article now and I have never heard of using cbd on your belly button. Very interesting. Yes it was magnesium malate I have been reading about, makes sense what you say about the Epsom salts.

izzykirk3 profile image
izzykirk3

Sorry to hear you haven't been great. I find that stress makes all the aches and pains and fatigue much worse. I hope you get your pip sorted and then maybe you will be able to relax and feel better.

Blue1927 profile image
Blue1927 in reply toizzykirk3

Yes I think your right izzykirk3. I will be glad when tomorrow is over and also the difficult times with Covid will soon come to an end.

uggycat profile image
uggycat

Hello Blue x

Blue1927 profile image
Blue1927

Hello uggycat , hope your manging to stay safe x

Gooddaysagain profile image
Gooddaysagain

Good luck with the PIP interview.

ehugz, dee x

Blue1927 profile image
Blue1927

Thank you. It’s over just got to wait for the outcome now. Assessor was nice and friendly, answered best I could so 🤞

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