Hi I'm a newbie to this site.
Had ME for 12 years, plus other conditions. Always had a lot of pain and been in an electric wheelchair for 5+ years.
Went to Pain Clinic about four years ago for help on pain management, I overheard the doctors saying I had all the tender points for Fibro but he wouldn't speak further about it. He also wasn't able to give me any help with regard to pain relief saying that I didn't fit into their remit as I didn't have a neurological condition (er, ME is neurological!) and I was too disabled to be an in patient.
When I mentioned it to my GP he said it was very likely but then had to look it up online and that was the end of it.
A year or so I saw a different GP and she asked what I thought the pain was from, I replied MEand then told her about the Fibro to which she agreed this was highly likely.
This is all very well but I want a definite dx if I've got Fibro. I think it's important that health care professionals know the full story and of course it's important for clarity in benefits.
Where do I go for a definitive yes or no, is it a rheumy?
Sorry for long post and thank you for reading x