Fibro pain

[Krista88]

Anyone have any tips or know anywhere in Liverpool UK were I can get help for my fibro pain I'm on numerous meds but nothing seems to be helping

[Julia10]

In my experience, Ask you’re GP for referral to Rheumatology, best way to get updated pain management advice. There are no fibromyalgia centres as such up north that I’ve found.

[Krista88 in reply to Julia10]

Hi Julia10 I've been under the rheumatologist and he discharged me after my diagnosis referring me to the pain management clinic he told me there was a long waiting list that was in June 19 and I'm still waiting trying to get an appointment with my gp is terrible and all the other doctors I see seem to shrug me off looks like I will have to ring my gp surgery in the morning and get them to follow up the pain management refferal thanks for your help 🙂

[Julia10 in reply to Krista88]

Hi Krista, the NHS see pain management clinic as last on their list of therapy available for us, been there & done it. Their criteria for entry is that you admit there are no other options / diagnosis’s for you. Also it struck me as crazy that with Fibro & it’s flare up symptoms they will kick you off the course if you miss more than 1 session. You have to be long term poorly to be referred but can’t be poorly whilst doing the course.

It was generic as others were there with other problems so they don’t always cater to your own personal circumstances. Anyhow it may be a more positive experience for you. Good luck x

[Hidden]

I found the pain clinic consisted of sitting through several ( very badly presented) lectures. To eventually get to the hydrotherapy I was promised, I had to attend several of these lectures. And as Julia10 says, miss one they kick you out.

The only way I improved my fibro symptoms was to take control myself. I used hypnotherapy ( Michael Sealey on YouTube, lots to choose from) to get me sleeping properly again. I now sleep through the night without the hypno.

I take a group of supplements each morning. 1 x selenium, 30 mg vitamin D, 2 x B1 ( this made the huge difference that reduced the fibro to 5% of what it had been for 4 years) 1 x CoQ10.

It took a full 4 weeks of these every day to feel a difference but my pain is now controlled by a maximum of 2 paracetamol and 4 aspirin a day ( normally half of that is sufficient) I can walk for between 1-2 hours and recently painted a bedroom. A year ago I was in bed for most of the day, exhausted by a trip to the supermarket and some days cried walking my dogs because of the pain.

I’ve cut out all refined sugar ( I occasionally binge on a packet of biscuits and pay the next day in pain!) I don’t eat any bread or cereals apart from oats soaked in almond milk. Potatoes are a rare treat.

Altogether it’s a cheap option to try for a month or two to see if it helps. I can’t believe the difference it’s made, for the first time in almost 5 years I feel like me again.

[Ozmoll]

Hi, the Walton Centre run pain management courses which are excellent. You need to be referred by your GP or pain clinic.

[Midori]

I have tackled mine though diet mainly, although I keep myself moving as much as possible, on the theory of use it or lose it.

I found by experimentation that I had a problem with gluten, (not Coeliac, but sensitive), so I've gone down the Sourdough route. There is something about the standard Supermarket bread that really gives me bloating and wind. I think it's the short rise in the industrial process. Sourdough, however has a long rise, much longer than standard, and I find I can tolerate it better. Also Brioche, where the large amount of butter helps buffer the gluten. It works for me, but we are all different, so It may not for you. I don't eat a lot of bread now; Pies, pastries, pizzas, biscuits and cakes are now out, unless I want problems.

I also have a problem with Peppers of all kinds, so I don't have them either. Makes Curry night a bit boring! Korma is now my limit with plain rice!

Sugar is not a problem for me, but I don't have a lot anyway. 1kg of sugar lasts me a year! My son uses it though, or I could get away with less.

Hope this helps,

Cheers, Midori