Hi all , I really believe that I have fibromyalgia,
How did you get your doctors to confirm this, I feel like I’m a hypochondriac every time I go to the docs ,
Most the symptoms I have are identical to fibromyalgia,I have been tested for leukaemia and lupus but my g p never mentions fibromyalgia I’ve seen a rheumatologist for extreme joint pain mostly fingers toes , neck , I have trouble with bowels ,moods , tiredness and no energy. Last year was admitted to hospital had 4 lumber punctures due to severe headaches.
I really would like to know how you got your g p to diagnose you.
Sorry for rambling post but I’m at my wits end and need answers
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JMJ42
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I’m sorry that you are going through the grinder at the moment. Fibro isn’t the first thing to test for. Based on your post, your symptoms could be anything. If you read the NHS website you will see. Take hypothyroidism, it’s the same symptoms. In fact any gland in the body that produces too much or too little causes the same symptoms. Fibro diagnosis only comes after all the other tests are completed. If your doc hasn’t mentioned it, why not ask them about it. They can either reassure you or run some tests. It’s not a short journey in my experience.
Mine was diagnosed after I had tests for other things like thyroid problems, lupus, RA etc. As there is no blood test for it it tends to be diagnosed when blood tests come up clear for other illnesses. Sometimes GP's are reluctant to put a label on it. I think it is probably better to ask outright if they could tell you what is your diagnosis they say they don't know perhaps then ask the question could it be fibro.x
Ask your doctor to refer you to a pain clinic. They will give you the right diagnosis. I suffered for a couple of years until the pain consultant confirmed it. By that time I had worked it out myself.
Hi jmj42, im new hear i was diagnosed in 2016, it was a rheumatologist that diagnose me. As long as you have the plain in 16 different points on your body and its lasted longer then 3months i beleive they will then diagnose fibro. I started with waking up with join pains then it got to a point where i couldnt get out of bed because of the pain. Dont give up contiune to keep going bk to your doctors they will have to diagnose you soon, plus alway let them no what your worse day is like. Prayers and blessing to you.
You've seen a rheumatologist, they would have diagnosed you with fibromyalgia if you met the criteria and all other possibilities had been ruled out.
If you only have pain in your neck, fingers and toes you don't meet the criteria for a fibromyalgia diagnosis. You need at least 3 of the fibromyalgia points plus , you only have 1.
You clearly have something medical going on that needs investigation, push for answers not a specific diagnosis.
Have your vitamin D and Iron levels checked, everything you have mentioned except the bowel issue can be caused by a deficiency of either, you could simply have IBS causing poor absorption, you need to rule this out before other diagnosis can be considered
In the mean time eat clean, drink lots of water, practice good sleep hygiene and record it all because these are the first thing your doctor will ask you to try.
Rheumatologists don’t always immediately suspect fibro. Depends how old school the rheumatologist is. Please badger your GP, though, JMJ42. And if they don’t listen face-to-face, write a letter saying you wonder if you have fibromyalgia. If it’s written in black and white, they find it harder to ignore Good luck xx
It takes time to diagnose Fibro, (20 years for me).
Unfortunately the doctors have to exclude all the more obvious conditions first. Have you asked for a referral to a Rheumatologist? They are the most likely to be able to diagnose it.
I think it might be worthwhile of keeping a diary of all the symptoms you experience each day; IBS, pain, tenderness, swelling, tiredness, 'brain fog' etc. Also, mark any of these that are associated with Fibromyalgia. After a couple of months, I'd take this to your GP to read, and ask if there are any blood tests you need to help get a diagnosis, or if you can be referred to a consultant.
It's not a quick diagnosis, in my experience. I saw my GP as I was barely able to get out of bed with the pain and fatigue much of the time and I'd had to give up working as I couldn't remember how to do my own job! I already have arthritis, so they did tests for Rheumatoid Arthritis and other things, but the markers didn't show at that point. He referred me to a Rheumatologist and I was diagnosed there. This opened the door to occupuational therapy, physio etc and the support I received was pretty good.
There is clearly something wrong, so I'd keep pushing for the right diagnosis and any associated help you need. In the meantime, have a look on Amazon and eBay to see if there are any disability aids which might help you on a day to day basis.
Best wishes and hope you get the right diagnosis soon.
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Good luck xx
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