Fibromyalgia Research

[TheAuthor]

Hi guys, I have been asked to place this post relating to Fibro research for anybody who would like to participate:

Hello,

My name is Hannah and I’m currently doing a PhD looking at the role of emotional suppression in medically unexplained disorders. I’m currently looking for people with fibromyalgia from the UK to take part in a brief online questionnaire study. This will involve participants anonymously answering some questions about how their fibromyalgia affects their life, what they think about their emotions and how they respond to certain emotions and who they go to for support. This research will help us better understand factors that can help or hinder living with fibromyalgia and may influence how treatments and psychological support are provided in the future.

I would be really grateful if you could please share the link to my research (below) on your website or through social media in the hopes that some of your followers may like to take part.

surveygizmo.com/s3/1787370/...

Many thanks and kind regards,

Hannah Bowers

PhD Student

Psychology

Royal Holloway University of London

[lou60]

Done x

[TheAuthor in reply to lou60]

Thanks x

[Hidden]

I did this one some time back.

sue xx

[TheAuthor in reply to Hidden]

So did I x

[smartcarkaz]

Done x

[TheAuthor in reply to smartcarkaz]

Thanks x

[Hidden]

Did it a while back

[TheAuthor in reply to Hidden]

So did I x

[pjmain]

I just did it, very difficult to answer some as length of questions was long, I have to admit I was reading question and had to re-read as didn't understand them....This fog has alot to answer for..

[TheAuthor in reply to pjmain]

Thanks for staying with it x

[joed]

completed eventually nearly gave up half way through bit taxing on the brain and repetative but all done

[TheAuthor in reply to joed]

Thanks for staying with it x

[nikkijane17]

All done!

[TheAuthor in reply to nikkijane17]

Thanks x

[missymoomoo]

done

[TheAuthor in reply to missymoomoo]

Thanks x

[sue32]

Done!!

[TheAuthor in reply to sue32]

Thanks x

[marialang1]

done

[TheAuthor in reply to marialang1]

Thanks x

[phlebo123]

Hi Ken,

I completed this a while back also, but if you have any communication with Hannah maybe you could let her know that she may find that some people with fibromyalgia will struggle to complete it because some of the questions are very long (I had to read some of them several times before I could grasp what they meant) and I often lost my train of thought.

She may find that some people will "give up" or answer some of the questions incorrectly due to the fibrofog . It was also rather long to answer at one sitting, so maybe she should reduce the number of questions, as some of them appeared to me to be asking the same thing but in a different ways.

Hope she appreciates my feedback!

[TheAuthor in reply to phlebo123]

Thanks, I pass a message along x

[B2WC]

Hi Ken,

I have similar question a few days ago, and have filled the questionnaires for it, so won't fill it again other wise it might jeopardize the survey.

[TheAuthor in reply to B2WC]

Thanks, please do not worry x

[Ktatmolehole]

Done. Would love to know her findings and conclusions.

[TheAuthor in reply to Ktatmolehole]

Thanks, I will pass a message along x

[Julie63]

Done.

[TheAuthor in reply to Julie63]

Thanks x

[Angel2]

Late but done

[Angel2]

Done x

[TheAuthor in reply to Angel2]

Thanks x

[Fluffypinkmonster]

Hi folks, I have just joined this site and this is the first thing I have done. It repeated itself a bit but I stuck with it . I have been diagnosed with fibro for about 7 years and I also have 3 breaks in my back and neck which I have now been told they have given up on . Despite several spinal surgeries and untold other treatments I am now looking at my symptoms getting worse until I am permanently in a wheelchair , I am 37 and I am married with a great husband and a teen son who has took it really well. Any helpfull advice would be gratefully taken .

[TheAuthor in reply to Fluffypinkmonster]

Hi Fluffypinkmonster

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FibroAction which hosts loads of useful Fibro information ranging from medications, benefits and groups, so I hope that you find it useful:

FibroAction Website:

fibroaction.org

I genuinely look forward to seeing you around the forum.

All my hopes and dreams for you

Ken x

PS. Thank you for undertaking the survey!