I need sleep 😫

[Purple_Penguins]

I’ve had insomnia for 25 years but it seems to be really bad at the moment, I’m so exhausted I’m managing to get to sleep a bit faster than usual but I’m then waking up around 3/4 am and can’t get back to sleep this is really not helping my fibro and CFS. My family and friends don’t understand at all and are adamant that I shouldn’t sleep through the day...they don’t get that if I don’t sleep through the day, I don’t sleep at all 🥺 it makes no difference to my sleep at night partly due to fibro pain as well as insomnia. Does anyone else suffer like I do? 3 hours a night is good for me, my GP and support workers don’t understand how I can function and neither do I!

[Hidden]

Hi

I'm so sorry you are struggling, me too. I have an hour or less sleep per night due to pain, it's horrendous isn't it? Maybe you should go and see your Dr and show him/her this forum. I'm very lucky to have a great support network of friends and family plus everyone on here. You will loads of help and advice from the wonderful people on this fantastic forum. Please take care of yourself Lynne

[Dizzytwo Moderator]

Hello I see this is your first post. So let me wish you a very warm welcome. Have you spoke to your GP about not been able to sleep. I'm guessing you have seeing you have been unable to sleep for so many years. Have you been checked for sleep apnea?

Unfortunately so many people with fibro /CFS have great difficulty sleeping.

I know you said if you didn't sleep in the day you wouldn't sleep at all. But when you think about it most people who have a normal sleep pattern may sleep anywhere from 6/8 hrs a night. So if your getting most of your sleep through the day I would imagine your just topping it up with the few hours you get through the night. A person will only need sleep so many hours a day no matter when they get them. Just my opinion

I do think if you could manage to stay awake through the day it may get your sleep pattern back on track. 🤞🤞

I see you have left your post unlocked to this community only. Most members prefer to reply to locked posts. This helps the big search engines from picking up what you write and posting it on the net. If you wish to lock your post this link will show you how healthunlocked.com/fibromya...

I hope you have a good day xx

Momo

[Dopey007]

Yep.. awful cycle , it just took me six months to get back some kind of day/night ... with help from pregabelin...etc , taking great care , using everything , massage ( self) relaxing.. mindfulness, cos it takes very little to fall out of routine...then unmanageable again, so don't let peep's effect you , they don't get it 💛

[Painny]

I have a disastrous sleep pattern:

1) I could go without sleep for days or a week as a result of which I become irritable 😡 and angry, despite the fact that I don’t sleep during the day and try to make myself tired by going for a walk or gym - I know a lot to do with Fibro and any sleeping pill can only mask your condition which I do not take

2) I have a neck made up of steal making it difficult to put my head on the mattress, I like to sleep on my side and manuovering my head is an impossible task. Booked to see GP, the back of my brain and neck is so stiff

3) so tired, so bored, so fed up, so on an so forth 😖😫😩😣🤯

[YASMINTINA FMA UK Volunteer]

Hello there, it is easy for people to comment on something they physically cannot see, you have my empathy I have Fibro , CFs and treated sleep apnea (a lovely trio 😢) that’s without anything that comes our way I remain cheerful and take each day as it arrives but if there is a day through lack of sleep, chronic fatigue etc family/friends have to know that it might be a quiet day nothing but rest and quiet, sometimescitvs good to talk here with people on the same boat shall we say, here people do understand, sometimes we need a sign on the front door saying not today thankyou, we try hard to work with pain relief, rest, warm baths, herbal remedies, I use lavender alot, in my bath, spray on my pillows, my xmas presents from family were sleep stones (adding oil in) sleep mask, Balt soaks lavender, pulse points roll on, my house smells lovely , but I do totally understand xx

[Orchidman99]

Buy some Melatonin tabs. You produce it when you go to bed and are in the dark. Tinnitus keeps me awake. Had it for 40+ years. Melatonin helps; antihistamines makes the tinnitus worse.