fibromyalgia and sleep

Hello Fibro Friends,

Has anybody out there had any sleep studies, tried anti-snoring devices, tried sleep meds or anything else sleep-related which has resulted in a definite improvement in symptoms? I know that many days when I have fibro flare-ups are directly related to a poor quality sleep the night before. I have no problem getting off, hard to stay awake in fact once I get into bed. Ear-plugs, completely dark room and electric blanket all help but I am pretty sure that I'm not going into that stage 4 restorative sleep.

Does anybody else have "exploding head syndrome"?! I kid ye not, there is such a thing - I googled the symptoms and that's what it came up with! I often wake up from sleep having heard a really loud bang; the other night I very clearly heard "mummy" being called out loudly by our daughter but my partner, who is often still awake for a while after I have gone off, said I dreamed it and in fact I had my ear-plugs in (she was fast asleep). Sometimes I wake in the night and can see very bright lights flashing inside my eyes when they are shut, this is what's woken me I'm sure, the room is completely dark. with double black-our curtains. Also, have experienced seeing "kaleidoscope" patterns moving, on waking but eyes still shut. I am going to ask my GP to refer me for sleep studies at our local hospital in Barnet so I will let you know how I get on but wanted to know if anybody else has similar problems. Thank you all so much for being there.

Om Shanti 12 (fibromyalgia and myofascial pain) PS: my own snoring sometimes wakes me too!

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  • Hello fibro friend, I too from time to time am woken with a jolt by loud bangs. Used to think it was somethin fallin off shelves or a picture fallin off a wall tho the bang is much louder than that. Sometimes my doc will give me 2 weeks of sleep tablets to get me into a routine of sleep. I find when my sleep is good my pain is much much better. Hope u go for the sleep test. I think being positive and proactive helps to keep you in control and helps you feel better

  • Hi there omshanti12 sorry to hear you are in this dilemma, do you feel maybe it could be your meds that are having a reaction on you, might be worth going to see you go and explain things...look forward to reading you post, let us know how you get on....gentle hugs...Dee x

  • Hi omshanti12

    I sincerely hope that you are feeling as well a you possibly can be today? I had some limited sleep studies a few years ago for a totally different reason, but they all came back okay, so they stopped them.

    I genuinely hope that you can arrange to have yours, and I really hope that you can find some resolution and relief to your issues.

    Take care

    Ken

  • Thank you all so much for getting back to me. I really value your input. I will let you know how I get on and I sincerely hope you all have the best day possible.

    God bless you all and keep you safe,

    Om Shanti 12 xxxxxxxxxxxx

  • I have all the above. I don't get into a deep sleep very often and imagine noises that seem very real to me. I usually have palpitations at the same time. The eyes are visual migraines. First time I had them I was driving and it scared the life out of me. This was pre FM diagnosis. I have sleep apnoea too which has vastly improved since I lost a lot of weight. A sleep study will only confirm FM symptoms. I have a very positive outlook that helps me look outward to stop me looking inward as that's when I know I will feel much worse. X

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