Bad pain day

[Backbracelady]

Ok so today has been another ridiculously high pain level day. I recently joined this group and have spoken to some lovely people and thought I had really turned a corner emotionally. However today the pain has been so aweful even tho I'm on all my meds and brace on.., I'm back to square one thinking what am I going to do... is this it for the rest of my life?!😔

I have spoken to some people close to me and they just said you will be fine next week... umm really??! 🤔😠

Thank you for the support so far 💜💛💚

[MichelleButterfly]

I am sorry you are struggling at the moment. It's not easy having this condition. I find I am up and down emotionally and physically. Just hard getting through some days. This time of year can be hard too. I hope you feel better soon x.

[Backbracelady in reply to MichelleButterfly]

Thanks for your lovely message michelleButterfly. I hope you are ok too... it is such a hard thing to live with, but we are all here to support and help each other. Take care xx 💜💛💚

[rosewine]

Unfortunately, fibro means that painwise it is swings and roundabouts. You will probably bring that your pain levels go up and down often hourly. If you overdo it and don't pace yourself we tend to suffer for it. Initially I found it very difficult to handle to now I just tell myself "it will pass it has before it will again" and it does. Go with the flow and don't fight it just do whatever your body dictates until it eases. Thinking of you.x

[Backbracelady in reply to rosewine]

Thank you rosewine, it's a tough one isn't it xx 💜💛💚

[Hidden]

Hi

I hope you get some relief soon. I'm up and emotionally. Have you got someone who would go out for a coffee with you, ? I was particularly low one day last week, couldn't understand why. A great friend if mine took me out for coffee which did me the world of good. I did feel rather sickly when I got back but that was due to the coffee I had. I hope you have got help around you as I have,this really helps. Love and hugs to you Lynne xxxx

[Backbracelady]

Thank you Lynne, I have some support but not all the time. My colleague came today and we had a pizza which was a nice distraction. Yeah emotionally I'm up and down 2, I think people around me don't understand this. Love and hugs to you too xxx 💜💛💚

[Backbracelady]

Thanks Zoonie, I have had this for 12 years, most of the time I do exactly that and deal with it on daily basis, I have had to adapt my life over the past 12 years, recently I have just been going through a really bad patch, with additional spinal problems as being hospitalised for 5 days, I think we are all allowed to have those times where we struggle and I was just reaching out for support at this time. It is not really possible to be positive about everything all the time.

I don't feel I need to learn resilience I do this pretty much every day of my life I'm a single mum and I work full time and manage my conditions most of the time, I just needed a bit of support from people who understand at this time. Thank you for taking the time to reply to me though I know you are only sharing positive advice.

[Backbracelady]

I appreciate that Zoonie thank you, yes I haven't had a really terrible patch like this for a few years now, unfortunately I don't have much support around me at the moment, not people who really get it. So I thought I would reach out, and I'm so glad I have.. you are 100% right we need to accept and say right this is what it is going to be from now on... What needs to change now and how can we move forward.

However when something big happens it can take a little minute to get to that mental stage and I just needed a little push to help me get there again ❤💚💛