Exhausted

[QUEENIE74]

Hi all, hope you are keeping as well as can be.

I'm truly worn out. Here is my typical day.......

I go to bed anywhere from 11pm-1am. I play games on my phone until I drop off, not half hour later I'm up in agony with my feet kicking off. Tea and ciggie, back to bed, this happens all night every night. At 5am I give up and that is my breakfast time and morning dose of meds. Back to bed and finally drop off about 7am then I'm awake at 9am in pain again. Have to get up now. I keep myself busy through the day pottering about at home then I'll settle down on the sofa with a cuppa and afternoon meds about 4/5 pm. This is when the tiredness really kicks in and I wrap up on the sofa and within 10 mins my legs are kicking off 😥😥😥😥😥😥😥😥. I shower/bath in the evenings in the hope that my body will relax enough for me to get some sleep. I know exactly how every day/night pans out but I still hope. Lately now sitting in the bath is uncomfortable, I use Epsom salts, muscle relaxing salts and bubble bath but no joy.

When I was first diagnosed with fibromyalgia I would take my Tramadol tablets before I went to bed but I would end up sleep walking so stopped. Now the sleepwalking is back but I'm not taking the Tramadol at night?????? I'm allergic to Morphine so can't use that. Have been tried on so many different tablets but always end up back to what I usually take.

Does anyone else suffer like this? If I could sleep I think I could cope better with the constant pain but my body just won't give me a break.

Love and gentle hugs to all xxxx

[Jbluek]

Sorry you are struggling so much.

Have you tried:

- breathing techniques

- guided meditation

- slow gentle stretches each morning and evening

- checking and changing your vitamins

- music therapy

- light therapy

- aromatherapy

- hydrotherapy

- sound baths

- a gentle professional massage

- magnesium body moisturiser or spray

- arnica oil/tablets

- heat bags

I know this is a random list but just trying to find anything that might help you a little, to break that pain/sleep deprivation cycle.

Hope things improve for you soon.

[bobbybobb]

A lot of us have sleep problems. For me I'm awake, asleep, awake. asleep it goes on all night long. It's the pain and muscle stiffness that wakes me up. I always think if we slept better some of our symptoms would improve.

[Hidden in reply to bobbybobb]

Yes , I know what you mean. I have an hour or less sleep per night due to pain from my many conditions. It's so hard not sleeping. Please take care of yourself Lynne

[bobbybobb in reply to Hidden]

Yes I'm sure we would be able to skip down the road if we got a good nights sleep.xx

[Hidden in reply to bobbybobb]

Hmm. Maybe!!!

[QUEENIE74 in reply to bobbybobb]

Skipping........ lol xxx

[QUEENIE74 in reply to bobbybobb]

Definitely xx

[nanbob]

Hello Queenie in reply to how Tramadol affects me, to tell you the truth Tramadol doesn't do anything for the pain I suffer, like yourself I go to bed round about 11:00 pm and could be awake at 1:00 am in severe pain sometimes I feel as if my whole body's on fire maybe fall back to sleep for a couple of hours then be awake again with terrible muscle pain, I wish I could give you some good information to help you, I'm never away from my GP but they don't have any answers, I'm going to see a Physiologist next month , to tell you the truth I don't know how he will help, sometimes I think they think the pain is more in my mind than being real, I wish it was, anyway Queenie best wishes and I hope you can get some relief from you're condition and I know it's early but wish you a better life pain free in 2020.

Bob Anderson

[QUEENIE74 in reply to nanbob]

Yes the Tramadol I dont think are even touching my pain anymore. Every time I go to my docs theres nothing new or anything they can do.

I swear at really bad times I feel like I'm going to have some kind of seizure or having one cause the spasms I feel is just awful.

Thankyou you for your kind words xxx

[nanbob in reply to QUEENIE74]

Hi Queenie hope this finds you a with bit less severe pain, I'm always in pain no matter what time of day, I'm begining to suffer with my shin bones painful most times, anyway I wish you a merry xmas and I hope you have a happy 2020 when it comes along and also don't suffer with this dreadful condition, best wishe

From: Bob Anderson x

[Echoblue]

If it helps, I was advised by a wonderful clinician that paracetamol enhances the effect of Tramadol. If you are able to take paracetamol (and be careful to stick within dosage) then may be worth a shot taking it alongside your Tramadol. Good luck and hope it works for you. I found Tramadol on its own and paracetamol on its own didn’t hit the spot but had much better effect in combination. I don’t know why it isn’t talked about more as I have known many others also gain benefit from this once they are aware of it. X

[QUEENIE74]

Hi there

Yes I do take paracetamol with the Tramadol. Thanx anyway hun. X

[ShelWhitt]

Given up on the meds, they don't work anyway , and i suffer too much with side effects. In the night I find my best friend is my hot water bottle, plus a cup of tea. then back to bed. Basic I know, but even if the pain doesn't go, and i still can't sleep, I find the warmth helps. Know you are not alone. Best wishes. x

[nellie_deany in reply to ShelWhitt]

I feel heat helps me too, particularly a nice warm bath before bed

I use the headspace app before I go to sleep it is a 10 minute guided meditation and I find it helps me to relax 😊

[nanbob]

Hi Mydexter, just to say I'm in constant pain going to doctor today 10:12:19 been up all night with severe pain in shin bones and I wonder if it's something more sinister, hope you are getting a bit of respite from you're condition, I'll wish you a merry xmas and a painfree 2020 when it comes along, lots of good health and happiness.

From:Bob Anderson x

[ShelWhitt]

So sorry to hear of your sleeping problems. I really feel for you. For almost two years I was exactly like you, tried all sorts of meds, which i couldn't tolerate. causing horrendous nightmares and hallucinations. I eventually stopped them all and now at night I take 2 paracetamol, and a very occasional diazepam 2mg, if I am having a really bad time. I seem to be able to drop off to sleep ok, and recently have been managing around 4 hours sleep before waking, getting up, having a cuppa, filling hot water bottle and occasionally nodding off on the sofa for perhaps another hour. I am not suggesting this would work for anyone else, but for now I I am willing to settle for this as it is definitely an improvement. Best wishes. x