Fibromyalgia

[Sky115]

Hi all I need some advice I been diagnosed with fibromyalgia 2weeks ago but I been in pain for years but the pains getting worse, i work in a bakery and it's all hands on, I been thinking alot of leaving, I just want know if u guys can help I need someone who's going though it , it's not just affecting me at work ,its a day to day i got the pain all over ,thanks

[Hazel_Angelstar Administrator FMA UK Staff]

Hi sky115 and a warm welcome to the community. Here you will find information, friendship, support and laughter too. You can also find more information on our main website fmauk.org. Xxx

[Sky115 in reply to Hazel_Angelstar]

Thank u hazel I will have a look x

[Hidden in reply to Sky115]

Hi

Welcome to this wonderful forum, you will gets lots of help and advice, everyone's brilliant. Take care. Love and hugs Lynne xxxx

[Sky115 in reply to Hidden]

I'm glad I'm here cuz need someone to talk to ,thank u hun x

[Hidden in reply to Sky115]

You are very welcome. Lots of love and hugs Lynne xxxx

[johnsmith]

You are working so you have money to spend on private therapies.

Have a listen to this youtube. I know a lot about Alexander Technique. I make use of it a lot to help with my pain issues.

youtu.be/nZQFdh41wXU(Not working as expected?)

This youtube is about Feldenkrais. The ideas you may find helpful.

youtu.be/Ii17BZDtCjA(Not working as expected?)

If you are in the UK wheatsheaftrust.org/ is worth looking at. They help with work related issues to keep people in work. I may be in date or out of date regarding this. The DWP also has a department which helps with work related modifications to keep people in work. Again I am not up to date with this.

[Sky115 in reply to johnsmith]

Thank u I will have a look

[Bakgri]

Hi, I wondered if you could talk to your employers about things that could be made easier for you? Maybe working less days so that you make sure you rest on off days if you can? Perhaps you can be allocated some of the lighter jobs? (If there are any!) This might be a stepping stone to seeing how much your body manages in a week, I travel in my job uk wide and I now know I need a couple of days rest afterwards, the more I push through the worse the pain and tiredness. I have had to adapt my schedule, but admittedly I work in a very flexible place.

[Sky115]

Hi bargri I spoke to my manager and she said theres no where she can put me because its Asda it's all hands on,I might drop my hours but I dont think that would work ,I'm in bad pain if I rest so I dont know what to do

[KTGard]

Dear Sky, i use cbd oil spray from holland and barratt. I've been using it for a year now. H and B will advise you on dosage , and you need to check with your doctor . It dosent seem to affect my meds . Try cider vinegar up to twoo tablespoons a day , i do a dessertspn at a time in water with sweetener. And turmeric with pepper , can get tablets , all helps .

Love . K. T

[Sky115 in reply to KTGard]

I been thinking about give it a try and I will talk to my doctor about it aswel, I will try everything u said thank u

[KTGard]

Dear Sky , i also use ginger , fresh , and you can get tablets with ginger , turmeric and bromelian from h and b. Bromelian comes from the pineapple . Most in the stem. If i have a fresh pineapple i chew the stem parts and throw them away after ! KT

[KTGard]

Dear Sky , I'm so glad and i do hope its safe for you to take these things . If i remember anything else I'll tell you. I also have glucosamine and chondritin etc for arthritis , but if you dont have that theres no need. The doctor told me to use paracetamol , it certainly helps with arthritis , i dont know about the fibro, i havent yet tried it for that . I'm plain exhausted today , i went to visit a friend monday and havent got over that yet !

Recently I've been using a painkilling gel the twelve hour voltarol emulgel. Theres also ibruprofen gel and there are cbd things to massage on. That might be a thought if your doctor doesnt like you taking it orally. When its cool enough i use an electrically heated pad in the small of my back , that helps all my back and arms , where i get the fibro pain principally. Recently i bought three plastic covered gel packs to use in the heat , i froze them ,but they are therapeutic pads and can be warmed in the microwave as well. (Much better than the wheat bags , mine always felt damp ! ). from Amazon . I use gingko biloba , now in liquid form for more energy . On a good day it helps me last longer , on a bad day it helps me to cope !

I notice someone has recommended the Alexander technique , i knew someone who found that a great help. So all tips are worth trying.

Others may have more suggestions . This site is a great help. God bless KT

[Sky115 in reply to KTGard]

Moring ktgard I just woke up I'm in alot pain still it's so hard to type this I dont get a good day I wish I did , I'm in pain everyday , yea I will try the things u say,I'm going to see the doctor again because I feel so low ,I tryed most of things u said in the past they didn't work for me thanks ,take care I hope u feel better soon