Anyone know why

[Annab124]

Feel confused an out of it this morning an legs feel heavy

[Sue_64]

Hello I have the same thing, just this morning my legs felt like they didn't want to move and I badly needed the Loo. I also feel out of it and a confused state. Had this for a few months and getting worse, to be honest I dread going to sleep as I know how I'll feel in the morning. Been to GP and had 3 lots of blood tests, looking at inflammation markers in my body but other than that nothing, told it must be Fybro related and need to cope with it, made me mad. Sorry I can't offer any help, how the heck are we supposed to get on with it and cope 'cos I'm not coping. I hate mornings, find it worrying and scary. Maybe someone else can advise what it is. Take care, have a good weekend. Sending healing hugs🤗🤗Sue

[Annab124 in reply to Sue_64]

I’m sorry your going through the same thing ! It’s so hard isn’t it an no one understands as I just look fine from the outside . I hope they fine a cure for us one day , sending love cc

[Sue_64 in reply to Annab124]

Just wondering, do you feel to have heavy legs during the day. My legs feels to get heavier as the day goes on especially the more tired I get pushing myself to finish whatever I'm doing. It's feels like trying to wade through quicksand. I also have days when my legs are sooo painful, just throbs and gives me headache. I was in tears with it the other day and you start to think you're the only one suffering, that's where this site really helps. 🤗 Sue x

[Annab124 in reply to Sue_64]

Mines on an off random times , I’m in bed atm an they are aching and I also get cramps too xx

[Sue_64 in reply to Annab124]

I'm in bed as well. Hubby at work, txt him to say I'm having a duvet day. I have awful cramps as well especially in my thighs. Have a relaxing day Sue x

[Mandypandy1969 in reply to Sue_64]

My legs and arms feel heavy all the time. They go to jelly after I have used them doing something. I can't hold my arms up long enough to hang washing out as ache so much and so heavy, have to put them down. It's awful. My body feels its getting weaker everyday. X

[Sue_64 in reply to Mandypandy1969]

Thank you so much, I have been complaining to my doctor that I'm getting weaker every day, she replied I was being over the top and not real, just something I've got in brain, like I'm imaging it! I struggled to wash my hair over the bath as I don't like the water coming over my head so fast like I'm drowning. I can control it with handheld shower on taps. I have bought a long handled gadget that's got nodules on and you wet it, pour shampoo in to nodules and rub.in your hair and rinse. Wasn't sure it would work but it does, wasn't expensive either. Also got long handled brush & comb, really helps. Know what you mean about the washing, I really struggle as well. Everyday is a challenge isn't it? 🤗 Sue x

[Mandypandy1969 in reply to Sue_64]

Yes it is sue. I feel my body is getting worse everyday. Rheumy nurse is getting me an appointment with rheumatologist due to my condition getting so much worse. Everything I do, I suffer for. Xx

[Sue_64 in reply to Mandypandy1969]

I've just had blood tests for autoimmune illnesses including Sjogrens, all negative, other bloods showed increased markers for inflammation, shock was that as I'm. Diabetic I have to have bloods done every 3 months for that and all the bloods I've had done since end if last year show the same results. I've never been told told before about this inflammation. The first lot appears to be around the time when health got worse and I started feeling ill. Having bloods done again end this month, doctor says if markers have raised even more might put me on steroids. Asked what it means, says could be infection, my husband has thought I've infection for some time, also says it could be muscle weakness, well I know my muscles are weaker. I've asked to be referred back to Rheum, doctor refused, said if it's all Fybro related they won't help me. Stuck between a rock & a hard place Sue x

[YASMINTINA FMA UK Volunteer]

Sorry to read you and Sue64 are having a tough time right now, I do go to get up sometimes and legs give way really not sure if this fibro related or not but wondering like you are heavy legs related to fibro ?? Take care xx

[Mandypandy1969 in reply to YASMINTINA]

We really don't know. Can we really put everything down to fibro. I also have sjogrens disease and the meds not working for this, rheumy nurse getting me in to see rheumatologist a,s,a,p. My body has deteriorated so much since I last saw him six months ago. Xx

[YASMINTINA FMA UK Volunteer in reply to Mandypandy1969]

I am glad the nurse has jumped on this and getting you in quickly Mandy, have so much empathy for you being in so much pain all the time, let us know how that a-pointmmet goes xx

[Mandypandy1969 in reply to YASMINTINA]

I will certainly do that. X

[Midori]

With me it is the humidity in the air that really gets me; I can take heat if the air is dry, but when the humidity is so much that even the air is chewable, I know I'm in for it!

This last week and a half has been particularly bad as I have had to be a lot more active, due to attending my grandson's Junior Graduation, my son's birthday and my grandson's School show! My legs are like barrage balloons, my bloodpressure is up and I feel really exhausted. I don't have the ability to lay in bed, I have to be up and doing something. I can't get an GP appointment for up to 6 weeks! I've given up on my doctor, and for a former nurse that's saying something!