Weight loss

[Koomaroo2]

Rapidly losing weight and strength, have fibro/cfs/osteoporosis. 0 appetite for so long i cant remember, dont drink enough either,pain worse brain more foggy and dizziness, wondered if others get same thing and how they cope.The lack of appetite is very worrying to me,i eat one small meal aday and struggle with that,is it all fibro related.

[Judithdalston]

Have you had vits/ mins tested recently: b12, folate, ferritin and vit D? I am loosing strength and obviously muscle ( recent blood test showed creatinine below range) but as well as fibro, have hypothyroidism, insulin dependent diabetes and now going down b12 self injecting route. Can’t loose weight, but loosing weight is a symptom of b12 problems, as is dizziness and brain fog...just a thought.

[Koomaroo2 in reply to Judithdalston]

Think I need to ask about getting b12 looked into as get a lot of dizziness and brain fog is got really bad .

[Sue_64]

Hi, I had similar problem withy appetite over about 8 month, was like my taste buds had stopped working, got to stage I didn't want any thing, not good with diabetes. Started to feel weak and bone weary on top of fybromyalgia symptoms. Last straw was my balance had gone, couldn't walk in a straight line, wobbly all the time and had a few falls. I'd had routine bloods for my diabetis and that flagged up dangerously low Folate, and told I had Folate Anaemia. Have a 4 month course of Folic Acid tablets. If not already done so please make appt to see your Doctor and request a blood test for B12, I've now found our if you have this type of Anaemia and left untreated you can become really poorly. Might be something else but best to get checked it, I wish I had earlier as after the first week of the folic Acid I felt so much better, my balance and dizziness has improved and I'm eating much better and enjoying it. Look after yourself and let us know how you go. 🤗🤗Sue

[Koomaroo2 in reply to Sue_64]

I do take folic acid every morning ,but so far hasn’t improved my symptoms or my lack of appetite at all.But will ask about b12 as I’m not sure about that,don’t think Iv had that checked .

[Hidden]

I have ...due to horrific pain that left me seriously fatigued.got to point where I could have just stopped eating altogether. This makes you more fatigued .started strong pain killers. .and gradually I was able to .eat..it was hard work .. still is ..also not drinking enough makes you dizzy and more foggy .. I still have to work hard on that too and it sounds ridiculous but it is all that goes on everyday.food drink Meds..I lost muscle mass too that makes situation worse also (6 stone ) anyway my appetite started coming back which was a novelty lol .. but it kept making me fall asleep even after small lunch .. lol bonus .I try and keep stuff next to bed so I don't have the long gaps and get meal delivered which I thought i would never do but had to... still a lot to do never ending ..yes I think it's all related😕...I wish you good luck .. and tell GP ..

[Koomaroo2 in reply to Hidden]

Iv got so weak,I can manage the one meal a day and maybe 4-5 cups of tea and the odd glass of weak juice,pain through the roof with my back and lower tummy,Iv lost a lot of muscle too as not so active for so long,my legs groin sting and burn even walking very short distance around the house.I to could easily not eat a thing.

[Koomaroo2 in reply to Hidden]

I’m not alone then,seems like a few of us that have pain and fatigue with these horrible illnesses suffer similar symptoms,I’m taking high power med for pain which doesn’t help anymore,side affects big time,some other meds too which I’m sure the side affects from all the meds are contributing to my lack of appetite maybe? I’m sure I have trouble with ,liver,kidney,and gallbladder,which meds will have an affect on,your life sounds similar,food drink meds,and I think not drinking eating much and taking meds are all affecting me big time.I wish I could not off lol,I rarely sleep,I even take med for that st night or wouldn’t sleep,I like your idea of snacks by the bed think that might help me a bit,that way not taking meds on empty tummy.i wish you luck too on your journey though all this,it sure is never ending it seems.Will talk to my doc when I can.

[Hidden in reply to Koomaroo2]

It's bad when it gets that bad ...do you go to pain management or someone ..maximise effect of Meds...cos people always think that we are manageing it badly its difficult ..and they think they know better . I did improve a little gradually but had to take diazipam. ...!!!.nothing was working transdermal patch..pregabs. .different Meds for different pains ...I couldn't move at all..reducing pain increased appetite and energy ..but I do have to take a break off those for a few days cos the tolerance only takes a week !!!!!.. and you won't feel benefits..xxx

[Hidden in reply to Koomaroo2]

Your not alone but it feels like it ..😔

[YASMINTINA FMA UK Volunteer]

healthunlocked.com/fibromya... The best advice is contact your doctor for a routine check up this might be the way forward, I have fibro /cfs so not always the best of combinations, if you could find a fluid that you really enjoy, mine seems to be spring water mixed with elderberry, so many lovely flavoured cordials you can dilute these days , sometimes an orange juice mixed with lemonade something refreshing especially for this time of year, I keep slices of lemon , limes ,in the fridge to add in, hard I know sometimes but finding things we enjoy does differently makes us try and drink more. Take care .

[Koomaroo2]

Hiya,thanks for commenting.Iv tan my doc this morning but she’s not available for another week,but my blood tests are back and some not right so a duty doc going to call me with results,I feel you pain having the same conditions as you,both these are not a good combination as you say Iv suffered for a little over 2 yrs now and got increasingly worse,which is now affecting my appetite and mood along with other internal conditions,but the weight loss lack of appetite is really concerning me at the moment as I’m so weak and loss of muscle and strength,I will be talking to my doc more.Im trying to drink more juice at the moment very watered down as I’m no sweet tooth.Take care too and thanks again for your message.