Dr Silver

[Pinksarahmc29]

I have hemiplegic migraines and under Dr Silver at Walton went through all medication treatments moved on to 2 year cycle of Botox sadly stopped working and might be have that infusion thing.

Has any one had it ?

Last month I diagnosed with fibromyalgia by a private RA consultant and called Dr Sivers secretary I had an appoint within weeks and seeing on 29th May I am so grateful I am being seen by him as this diagnosed has devastated me and been off work for months. Any one know how he supports Fibro ??

[YASMINTINA FMA UK Volunteer]

healthunlocked.com/fibromya... Morning sorry to read of your migraines, I hope your appointment goes okay for you , it does knock you sideways when you are given the diagnosis for fibro , for me it ticked all the boxes what was happening to my body for a few years and took awhile to get diagnosed by the right doctor,that’s the frustrating part for many I have read here. I hope someone will come along soon with some info for you , weekends can be quieter on the forum, I’ve posted a link above if you would like to lock your posts as only our community can see and sometimes will generate more replies if a post is locked given you and members more privacy. Take care.

[RayB]

This might be of intrest.

healthunlocked.com/fibromya....

[Rai_Iwa]

Dear Pink,

Sorry to hear about the hemiplagia and FM diagnosis, please do not despair, with medication and the right therapies you can lead an adapted version of a normal life.

As for the infusion treatment I’m not sure which one you refer to, though I am presuming it’s the lidocaine version. As this has been used for FM, the ergotamine version will help with the hemiplagia but I have not heard it working for FM. I used to take ergotamine prior to it’s withdrawal from the general market, and I have nothing but good things to say about it. Though when I had it as a teenager it used to make me feel really rough.

I have heard mixed reviews about the lidocaine, some people are documented to respond well to it, others not as well. I feel their is insufficient research to claim yay or nay. Dr Silver can give you all the information, and hey what does it hurt to try something.

As for the Botox, you may find after a break (1 year plus) you can go back to it. I have Botox from my neurologist as well and I know how well it can perform.

Good luck and never despair tomorrow could be a pain free day

Rai xxx