Wednesday last week I got four missed calls on my mobile, OK I thought as I went through the people who may have called during the day as it was a 'No Number'. Any way I eventually answered it and it was a DR who wanted to come and do an assessment on me for the DLA. I thought brilliant something is happening; I've only waited three years.
Well he came round on Thursday evening. I had my carer with me, I had my meds near me, I had a file with all my medical letters in near me.
He came at 6.30, asked me a couple of questions, meds and consultants names. He then asked me to describe a normal day. I started to tell him how I have trouble getting out of bed and by the time I'd told him getting the bathroom and my incontinence... He then changed the subject and asked me to stand up and lift my arms and squeeze his hands, he did not carry on with my day.
He asked my disabilities - Fibromyalgia, polyarthralgia, polymyalgia, chronic fatigue, fibrous dysplasia, Achilles tendonitis (right leg), grade 3 chondromalacia of the patella of femoral joint (left leg) and reason I walk with crutches all the time, osteoarthritis, rheumatoid arthritis, chronic endometriosis, non-alcoholic fatty liver disease and double incontinence. I was watching as he wrote down the first three then he crossed some out and didn't replace them with what I was saying. He then asked how far can I walk without pain, I said as soon as I stand up I am in pain, he asked again so I said it hurts in my shoulders, elbows, wrists, hands, back, hips, knees ankles and feet, he asked again how far I could walk without pain again I said I am in pain as soon as.. He talked over me saying, two, three minutes? He then sat down got his bag put the papers in his bag and left.
The whole ordeal lasted 20 mins... Now its a waiting game again I know he will be the one who writes a report saying everything is fine and they will again say I am not eligible or don’t fit the criteria for mobility DLA.
I am praying to every God/Prophet I can think of as the mobility is deteriorating every day and I lose the battle to another illness or disability.
What do we have to do to get a little bit of help!!!!! Again another day in pain and wanting to give up but fighting a loosing battle.