So yesterday I attended my second ill health capability hearing and was terminated on health grounds. I feel I am at the mercy of not only my condition, physicians but the systems that are supposed to be in place to support us who have additional needs.
I was involved in a RTA Oct 2015 and have had ongoing problems since then, finally diagnosed with thoracic outlet syndrome and underwent surgery to remove my first rib and scalene muscles to alleviate compression of the nerves, arteries and veins at the outlet of my neck/shoulder! The aches and pains I was putting down to my body compensating from holding myself awkwardly as s result of pain. I was actually diagnosed with fibromyalgia and myofascial pain syndrome. An mri revealed the start of a bone spur and arthritis in my right shoulder.
Since then I have been exploring pain medication options. Post surgery I developed difficulties with my swallow not in my throat but lower down. So have been investigated by ENT, SALT, Dietician, and Gastro. It was discovered I had stomach ulcers, lascerations and inflammation. This has been treated but a subsequent gastroscopy showed the ulcers healed but still inflamed and the advice was to come off naproxen and be the-referred back to chronic pain team. All the while this has been ongoing I have been off work since July 2018; being pressured to return having to attend occ health appts, and consent to records being provided. All of which are used against me.
So now my contract has been terminated I’ve lost my career, my income, and my independence! I have no control over timescales and keep chasing! All this has left me stressed and feeling low. I try not to show my family especially my children but I am devastated even though I was expecting it. I realise my post cannot be held indefinitely but I just needed extra time to stabilise medication for pain.
Where do I go from here? I’ve been made to feel it’s all in my head by physios drs and other professionals yet I’ve had major surgery and firm diagnosis! This is not through choice I never would have imagined at the age of 34 I would be in this position. I have worked since I was 15 and enjoyed my working life!
Advised to apply for PIP and found that process very degrading! Awaiting on the outcome of that... anyone know how long that takes?