Well, Machester Royal Infirmary, Rheumatology say my symptoms are NOT autoimmune related! I had a call from a very nice, junior, doctor who was then going to double check with my consultant (!) if any change they would ring me tomorrow. She said back to GP for referral to urology and chest people! How long will that take? She was shocked noone had checked my blood for kidney involvement!!!
Hey ho, guys. Trying to get apt with GP for ref to experts! Here we go again
Be well
Love
Footy⚽️❤️Xxx
Sorry that you're having a bit of a run-around and not much further forward. I hope you don't have to wait too long for your referrals. x
Yeah. Ive been here before, like all of us. It is so disspiriting to feel so ill, to know your body through all its trials and KNOW you are ill and not getting better. To also have contact with two people who have what I am suffering with, to read articles referred to on here and see with your own eyes that there IS a proven link between chest, urine problems and GI tract but to not have the cebtre for excellence not up on the research!!! Speechless. Still, if they investigate all three they, may, come to that conclusion in the end. However long that takes. I really need the two forum people to get back to me to tell me they at least have ways to manage this. Ill go back through and find them.
Your support is invaluable and treasured
Love
Footy
⚽️❤️
Dont you think your a batton sonetimes yoy get passed round n round or a ball rolled over to the next specialist and back again, then you think why dont they listen to me its this this n this noT that that n that lol well i think it should be an olymic sport the pass on lol mind my gosh you can get dizzy on the proffesional specialist rounderbout lol good luck xxxxxx
What a great thought! That means we should share the torch carrying too, with a floating banner saying AUTOIMMUNITY EXISTS AND IS A RIGHT BUGGER, well it may be a bit long but perhaps a row of limping, crawling whhelchair bound sufferers could hold the rest! Imagine that lot entering the stadium, waving, dropping a crutch, waving going in wheelchair circles! You have made me smile this morning Treewade! Thanks. Im about to try the 4 interminable hour wait for a meaningful phone call. Tense. The stadium goes quiet, will the phone ring???? Lol.
I shall carry that image all day to cheer me.
Lol and love
Footy⚽️❤️
Your replyvi have thoughts of the weekchair marathon going through my head im grinning as i settle for sleep xxxxx
Hi I have been real ill for over 2 weeks, usual pain but more severe, extreme fatigue. Other symptoms all different from my norm, fibro, cfs. Bloods to be done and chest xray. Can't help feeling that I'm just back on the roundabout! Bit frustrating.
Oh auntysue, just your name makes me want to put my head on your shoulder and weep. It sounds so comforting. Im glad some investigations are ongoing for you. I hope I get a battery too. IF I get a phone call today and IF the GP can fit me in. I am new to them, they have the delight of all my woes to come. Fibro Lupus Sjorgrens AI Hepatitis Menieres. One of my last surgeries just fed me to student GPs who openly laughed in my face because I kept returning. On one occasion I had tremendous pain going from my shoulder between my neck and shoulder which plunged down my entire body. Over two weeks they tested me for heart problems and laughed when nil, then a chest xray whose results were my husbands ( he has osteoperosis of his neck, quite distinct) I don’t . It was found to be amusing and all the time I was swollowing pain meds and slowly curling up with the pain. All to no effect. Not long after, I had a routine scan on my liver cos of my AIH and lo! I have gall stones. So I think I was passing one of those. Alone. My family more and more anxious. I recovered and moved GP, not necessarily for that much better. So Im so pleased you have been heard. Cling onto that listening GP auntysue!
Please let us know how you get on. I for one am sharing your suffering and will be thinking of you as you get resolution and treatment that works.
Love
Footy⚽️❤️
Ah bless lol, just got back from xray, apparently looking at the heart to see if everything is pumping as it should? As this could explain the chronic chronic fatigue. ! Bloods not for another 2 weeks, hey ho. Pain bad, thanks for your reply , nap time.
TWO WEEKS? TWO WEEKS? I am speechless. Do you have to wait for them to be done or for results. Most results are a few days less if pushed. Thats an interminable wait! Can you expedite them?
Love
Footy⚽️❤️
No 2 weeks for them to be done . You are funny, this is standard for nhs isn't it? X
update on my pain and trip to A&E
update on my back to work interview
Update on my pain meds
Withdrawal symptoms 
Update on slow releasing Dihydrocodeine 
