Anyone getting Sativex prescribed for... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,343 members66,393 posts

Anyone getting Sativex prescribed for cfs/ME and Fibromyalgia? I have autoimmune thyroid hashimoto's too.

Merlio18 profile image
4 Replies

I am looking for alternatives to help relieve pain and regulate the immune system does anyone get low dose naltroxene or sativex through gp, pain doctor or consultant and where and who from ? Private or NHS in UK

Really need some painrelief and iam allergic to paracetamol and sensitive to nsaids and opiates so it's a hard struggle daily to live with the pain,brain fog and chronic exhaustion etc etc

Written by
Merlio18 profile image
Merlio18
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Bemoresquirrel profile image
Bemoresquirrel

I’ve been taking CBD for several years after stopping my fibromyalgia meds due to increasing side-effects. All mammals have an endocannabinoid system producing cannabinoids including CBD, which acts to regulate our body systems and keep them in a state of balance, known as homoeostasis.

When we take CBD, it stimulates our endocannabinoid system to produce more cannabinoids. Some people don’t produce enough of their own, so taking CBD as a supplement can bring the body back into balance.

Let me know if you’d like more information, I’ve written a a set of hints and tips to buying and getting started with CBD. It includes information on taking CBD with prescription medication as it can increase or decrease the effects of your meds, there are also a few other things you that you need to be aware of, but having said that it works well to reduce chronic pain. I don’t know anything about thyroid problems though. Rosey

in reply to Bemoresquirrel

Thanks for this. Yes, NHS drugs don’t address homeostasis. I love your typo by the way, right at the beginning! Sums things up - the side effects do drive you mad...

Bemoresquirrel profile image
Bemoresquirrel in reply to

😂 Thanks for pointing that out, I missed that one! Wretched voice to text thing I’m using due to problems with my hands, is definitely driving me mad!!!

As for the side-effects you’re right there, it was my GP who suggested I’d be better off without prescription meds and for fairness to him he was completely right and it’s made a huge difference to me! Though they did help for three years, before the side-effects became a major issue.

in reply to Bemoresquirrel

It’s heartening to read that an NHS GP suggested giving up the drugs.

Too many people are finding the side effects of drugs very difficult indeed. And often the benefits are minimal.

Other routes - probably through Functional Medicine - need pursuing, and some time and money invested in what else is out there. It’s always a question of money, but these only too often ineffective drugs must be costing the NHS a fortune. ( Clumsily put, but I’m sure you’ll get the gist!). Something else is clearly needed.

I have a friend who was a senior nurse, and then went on to work for the Health Commission as Inspector of Hospitals.. She went down the NHS prescribed drugs route. Over a period of about five years or so I saw her disintegrate into a depressive who couldn’t see the woods for the trees. She had terrible side effects, and really wasn’t the person I’d known. Diagnosed with Fibromyalgia many years ago, she had battled on , but once she was on her NHS drugs regime things really went downhill. I felt impotent to help, and despite trying to get her to her GP to discuss what was happening, her dented pride and the shadow that she had become wouldn’t allow herself to go.

I’m so sorry to hear that you clearly have some major health issues as well as the Fibromyalgia. I do too. Not fair is it? Love your name by the way. I have visions of you in a Victorian garden, surrounded by roses and herbs, and wearing a straw hat! x

You may also like...

Could I have fibromyalgia on top of diagnosed autoimmune conditions?

tinnitus, blurred double vision, arthritis etc bleeding etc. And Im divorced, no longer working and...

Is Fibromyalgia/CFS/ME recognised as a disability?

Could I have Fibromyalgia

cause chronically swollen hands along with stiffness, weakness and also really bad finger joint...

Hello All, I have recovered from Fibromayaliga and CFS !!

in injurys, rehabilitation and pain management. I live a pretty pain free normal life now, I...

Think I may have Fibromyalgia

symptoms are leg pain in the joints and muscles, bad back pain, shoulder pain, neck pain, waking up...