Every day a struggle: Fibromyalgia for... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Every day a struggle

Usandthem profile image
7 Replies

Fibromyalgia for 15 years depression SI Joint dysfunction spinal osteoarthritis full time but every day a struggle like everyone else!! ✌💕

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Usandthem
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7 Replies
Pjik profile image
Pjik

Hi yes I agree it is a struggle every single day take care

Usandthem profile image
Usandthem in reply to Pjik

Today is one of those can't get out of bed days but am feeling more positive reading others posts💕partner is supportive so I don't have to stress which makes a massive difference 🌼he is lying on top of bed with me with some fruit juice and is even reading Heat Magazine out to me 😊while I'm chatting on this couldn't do it without him. Love and peace ✌💕

Pjik profile image
Pjik in reply to Usandthem

Hi I am glad to hear u have support at home that helps a lot take care

YASMINTINA profile image
YASMINTINAFMA UK Volunteer

Yes agree having fibromaylia is enough and lots of us have other conditions like yourself to deal with on top, I think sometimes sharing our thoughts on this lovely forum dropping in for a chat etc helps knowing we totally relate to each other. If you would like to lock your further posts here’s a helpful link healthunlocked.com/fibromya..., take care

Usandthem profile image
Usandthem in reply to YASMINTINA

Thank you didn't realise I could do this and was unaware of other organisations being able to view will now lock my posts💕✌peace and love

Sometimes I cope better than others.

Today is my second 'bed day' after going out on Thurs. I've learned to manage these, and I try to see my bed days as a luxury - a good book or a film on my laptop, chats with friends online (who accept my jumbled up typing if the brain fog is bad), ready-made meals/salads in the fridge so I just need a quick trip to the kettle or microwave.

I also 'exercise' by visiting the loo and feeding my cats.

triciawilliamswriter.wordpr...

I was on amitriptyline been on pregablin for 8months but find itdoesnt work as well still dries my mouth out....:😣😣

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