Horrible 2 years: Good morning all For... - Fibromyalgia Acti...

Fibromyalgia Action UK
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Horrible 2 years


Good morning all

For years I have been feeling like i have been hit by a bus but with no explanation. I kept going to my docs and he told me it was my shift work causing me problems. Fast forward to two years ago I was diagnosed with sleep apnea and I thought great the answer to my prays and had just started a new role at work. 9 months later still no change in symptoms so went back to the doc and was told I was depressed and had counsiling as well as other tests done. Diagnosed with Fibro in Oct 2017 and have really been battling since. Everyday I'm in agony and sometimes crawled in to work due to pain and fatigue. I just don't know where to turn next. I have a young family and feel I'm letting them down as I can't do the things I use to and although I'd made to 5 months since being back at work I had to give in this week and have some time off.. I have been taking diluxotine, turmeric, vit tablets, paracetamol and ibuprofen but even that lot doesn't help me through the day without feeling shocking. Worst of all I but on a brave face and try to be happy and that's what people see but they don't see what's going off on the inside. Thanks for listening guys and gals any advice would be great.

5 Replies

Shift work can result in low VitD. Have you been tested ? A good result is over/around 100 if you are in the UK. VitD is anti-inflammatory and a steroidal pro-hormone - so much more than a vitamin ! When VitD is low - so can B12 - and when low in range can also be the cause of pain and fatigue ...

in reply to Marz

Yes you are right, I have my bloods tested 6 monthly for vit defficiency and gp will give me B12 injections and high dose prescribed vits, the high st shops are a rip off and only contain a minute quantity the rest is additves that can cause horrible side effects,, gp best for these evrytime

in reply to NurseGladys123

There are good VitD supplements that contain very little - just olive oil. I buy on-line. VitD is fat soluble so needs to be taken with the fattiest meal or with a gel capsule containing oil. Do you also take the important co-factors - magnesium and VitK2-MK7 ?

From my understanding the VitD GP prescription is usually around 800 IU's which is rarely enough. Dosing of VitD is suggested to be in accordance with your result.

Also when having B12 injections ( I self inject ) - it is advisable to also take a good B Complex to keep all the B's in balance and for the folate/folic Acid/B9 to be able to work with the B12 in the body in a special and important way.

Sounds like you could do with a long sickness note to alleviate the fatigue, a good gp will sign you of for up to 6 weeks at a time, once your pay starts to depleat you should try for ESA>

So sorry to hear that. My kids had grown up before my symptoms got really bad, but I can understand the difficulty you have as I was widowed when mine were very young and I struggled to bring them up solo, and work at the same time.

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