Hi Everyone I no I haven't been on here in such a very long time. I contacted PIP last year when I was diagnosed with Autism, then it took me a very long time to get the forms back to them as I was in and out of hospital last year with kidney infections as well as stomach and sickness problems. The longest time I was in hospital for was 4 weeks and 2 days, I was then discharged and a week later I was re-admitted again with the same problem. While I was in for that long period I ended up on an NG feeding tube as I was unable to eat or drink anything. As the smell of food just turned my stomach. It wasn't a pleasant experience getting the NG, I told them that if it ever came out and I needed another one in they would have to sedate me. As it would be to traumatising to go back through it again.
After I managed to fill the forms in and return them, my sister came with me for my second assessment and now I am on Enhanced Rate of Daily Living and Enhanced Rate of Mobility. Which is grate. Also because I've been diagnosed with autism I have a Social Worker who is great and has managed to get me support when I live. As I now live in a building with other flats which is great as there is always someone to talk to and I can be very sociable when I'm well enough too. Plus I live right next to the Mission to Seafarers in South Shields, as the building I'm living in (at the Mill Dam) actually used to belong to the Mission before Isos took over it. As this building used to house people with Mental Health problems. Now it's mixed with people who don't have Mental Health problems and people who do have Mental Health problems or just need that extra bit of support. Once I'm upto date with my rent which is extremely cheap £7.20 a week!! I will be able to start to get support. What they will do is help me with keeping my flat tidy as I really do struggle with that A LOT!!! Also help me budget as I no how much I get and I try my best to pay all my bills. But when I no I have spare money I usually just spend it and then I can't remember where it has gone to. I always seem to save my money when I'm unwell as I never go out. Where today I've just spent £70+ on Amazon but what I have bought I've been looking at for ages and a doctor I was chatting to in A&E said that it might help me.
As I'm pretty sure my immune system is shot at the moment as I've not long gotten over a kidney infection that I had since Boxing Day 2016 till 12th January 2017. A very long time my highest temperature was 40.5'c now I'm trying to get over a cold and a chest infection, as my GP has taken me off all of my inhalers as my Peek Flow is all over the place from my she asked me to record it for 2 weeks every morning and every evening around the same time. I need to do a Asthma Test with different inhalers, but I have had to cancel the appointment twice now due to this dam cough. As I was chatting to the doctor at A&E (as my GP didn't have any appointments, if I needed to be seen that day I had to go to the nearest Urgent Care Centre, which is located at my local A&E), so the doctor has put me back on the blue inhaler but it's not helping at all. So when I was chatting to the doctor I was telling her I was looking at getting a Nebuliser to see if that could help me breathe better and help get rid of all this crap off my chest. She agreed and said that it sounded like a good idea. So I have just bought one today on Amazon for £34, as I did look in lloyds pharmacy first but the same one I got off Amazon was more expensive but an extra £10. Plus you can only get the liquid on prescription. So I am thinking if I try it and find it works better then the blue inhaler then when I see my GP next month I can speak to her and see what she says. Maybe she will agree to do a trial bases on some nebuliser steroids to see if it helps. As I've tried using my spacer and that's not helping either. The doctor I saw at A&E said my lungs sounded crackly but I'm surprised she didn't request an X-ray of my chest as I explained I've been coughing up green/brown stuff. I had a cough last year which was viral so my GP told me but it last nearly 10 weeks. I was sick of my life and very thankful by the time it went.
Does anyone know how I can change my email address on here as I have changed it that's why I don't get emails on notifications anymore nor can I remember my password. As I had to sign in via Facebook.
Hope you are all well.