Hi all. I have had a very upsetting and stressful time at the advice centre today. I was told I would not win my tribunal due to losing my high rate e.s.a. and having to live in 73 quid a week. The lady was so blunt with her questions about my assessment form. I felt interrogated and soon got upset, floods of tears. Soon after she changed her attitude and saw how vulnerable I was. I have a double whammy with fibro as I also suffer with a form of bipolar. She went through the point scoring form and I ended up with more points than zero which d.w.p. said I had. I left in tears. she didn't really know how to react to help as I knew she was feeling pretty awful. Later on, I received a voicemail on my mobile saying she has drafted a letter which will be in the post regarding what I should remember and how I should answer questions. A bit of compassion I think. I am in a right state and I had to have a sleep as I felt so upset and drained. Any help or advice on this tribunal which has had to be postponed due to me having a funeral to attend. Couldn't believe the funeral had ended up being on my court date next week. God knows when it will be now.
Upset: Hi all. I have had a very... - Fibromyalgia Acti...
Upset
Sending a Hug for you!
The stress of it all !! the interviewing and getting doctors reports and specialists reports, getting there, understanding it all, on top of feeling depressed from pain, and twice a year, I signed a form so health professionals can read my doctors notes. it's all there!
why do they put you through it twice a year, that's a total of 4-5 months of worries, the stress of it all makes it much worse, and the fact is, who really cares! I see more of the assessment lot more than I see the people who are supposed to be caring for me, I was told that " I was not going to get the treatment I need as it is too expensive! " this is a quote from my Doctor
ESA have five things they look at the lady told me at my review I had enough evidence on my bladder control that nothing else mattered and I was moved from work to supported I don't know what the other 4 things are but maybe someone else does.
Hi Mandy, so sorry you’ve had such a bad time hun, these people don’t know what it’s like to have to go through this, it’s bad that the assessor had to be shamed into showing compassion, but glad it did as she may go s little easier on the next poor victim! Sending you big hugs 🤗🤗🤗🤗take care, NanaT
this lady was an advisor and the advice centre in my town. what the hell is the tribunal going to be like when my date is rearranged due to a funeral which unfortunately is the same day. xxx
Hi Mandy, it might be worth going to the CAB and asking them if you can be penalised for going to a funeral or whether it’s allowed for that reason and a new date given?
So sorry you are having a bad time hun, sending hugs 🤗🤗🤗NanaT
I had to send evidence of the date and time of the funeral and my court date I had has been postponed. God knows when I will get another court date. Can't believe how much bad luck I get. X
So sorry Hun, hope you don’t have to wait too long, sending hugs and best wishes 🤗🤗💐🌻🌺NanaT
Thankyou. xx
Thankyou for your help and I will look into what you have advised me to do. Thankyou. xxx
Hello! I live in Canada! I feel bad for you! I was diagnosed with Fibromyalgia in 1988! I'm 49 now and I have Autoimmune disease, Psoriatic arthritis and Lupus!! I don't get Disability and worked when I was young!My husband is a Firefighter and I was lucky,he takes care of me!!,if anything ever happened to him, I would need Disability, it's a nightmare to get,unless your a Drug addict!! I'm sorry for your troubles! I was born in 1969!! I'm here to tell People it doesn't pay to be sick! People treat you differently!! I get looked down on because I don't have a job!! Fibromyalgia is Depressing!! Good luck to you,I feel bad for you.
you were born same year as me. my mum has to support me. my best friend is amazing and takes me on holidays. I think I have been suffering since I had glandular fever in 1987/88. rheumatologist said a lot of people who have infectiins/viruses, trauma etc in there lives can go on to have fibro/autoimmune diseases. x
With us being born the same year is Awesome,but how Bizarre that in1988,we were both so Sick!! I hope you get some help!! I get depression!! Family and Stress make us Sicker!!Take Care! I'm thankful you have your mum!!,Mine is a Selfish Old Bag,who only thinks of herself!!We will have to keep in touch!!
Lol. Yeah they want to have what we have. My mum struggles at times with me. Yes keep in touch. Where are you from? Xx
I live in a small town in Ontario Canada!!,to see my Rheumatologist and Specialist's I have to travel a 2 and a half hour drive from where I live! I have Brain Tumor issue's and a Seizure Disorder,so my husband or family have to take me to all my appointments!!Who would think at 49 years old,that Fibromyalgia and other health issues would be such a drag?!
my cousin lives in Ontario. xx
Sooo sorry Mandypandy1969
Hugs hugs hugs hugs 🤗 🤗🤗🤗🤗🤗🤗🤗🤗🤗🤗
💗💗💗💗💗💗💗💗💗
😘😘😘😘😘😘😘😘😘
I’m 🙏ing for you dear.., I’m in the USA 🇺🇸 so I can’t advise on your problems but I sure can send you lots of love and empathy from that dehumanizing treatment. Hang in there sweetie. Take care.
😊🌸🌿🦋 🤗💗😘
Thank you. Xx
really upset
I was expecting a custodial sentence by the end of the tribunal!!!!
You look well nourished so you can't have Fibromyalgia...
tribunal was awful
Grrr
