Hello x: Just wanted to say hello to... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Hello x

Jenwen74 profile image
22 Replies

Just wanted to say hello to you all and that I am thinking of you all. It is a struggle with fibromyalgia and I send my hugs to you all. I am in agony tonight with my neck and ankles and so exhausted. I am relieved to have found this website and wish you all well x

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Jenwen74 profile image
Jenwen74
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22 Replies

Well thank you Jen me too in a lot of pain feet calf’s hands fingers I noted you may not be taking much medication for Fibromyalgia there’s a lot more out there that will help you Be happy x

Jenwen74 profile image
Jenwen74 in reply to

I have tried a few meds but so far no good to me. The best thing I found is direct heat however today I am suffering and saw my gp this evening as I am finding it overbearing.

in reply to Jenwen74

Jen if you got fibromyalgia you may find it helpful to may be try the medication we are all mostly on such as co-damol Or pregablin There is Also a gell call Fenbid forty 5% from the doctor that helps a lot You is not likely to go away but you can ease it ok Thinking of you tonight xx

Jenwen74 profile image
Jenwen74 in reply to

Yes Thank you... I used to take cocodamol but it made me sick. I am epileptic so have to be careful also. At the mo I take Solpadeine Max and stopped taking duloxetine as it gave me hurrendous headaches. Still trying x

Mdaisy profile image
Mdaisy in reply to Jenwen74

Hello Jenwen74 & welcome to FMAUK Community! :)

You mention being sick on cocodamol yet can take Solpadeine which has the same ingredients ie codiene and paracetamol with Caffiene added also. I wonder why you the cocodamol didn't suit but Solpadeine are ok? Different coating maybe?

Hope you find others things to help as living with Fibro and chronic pain can be so upsetting. Have you tried CBD Oil? Other members seem to be discussing this a lot lately.

All the best

Emma :)

in reply to Jenwen74

Yea it’s difficult to get it right x

Jenwen74 profile image
Jenwen74 in reply to

I have no idea why cocodamol makes me sick lol and neither does my GP. As I said previously I have epilepsy and lots of meds interract and make me unwell. I am now taking med to settle my uncomfortable tummy so hopefully I will feel less pain that way too. Yes I tried cbd oil and put it into an e cig however it did not make me feel better. Tastes yukky too eeeeeewwwww!!!! Most days I put up with pain without meds as I have to be on the ball for my 3 children. Sleeping tablets made me too drowsy which had a detremental effect on me and my parenting so that is a No No!.

in reply to Jenwen74

You can none drowsy sleeping pills from the doctor I will send you name later ok xx

Jenwen74 profile image
Jenwen74 in reply to

Thank you x

Jenwen74 profile image
Jenwen74 in reply to

Hope you are feeling better today x

in reply to Jenwen74

Yea I’m ok thank you I got a lot pain but that’s normal I’m thinking the sun is out loverly English day Bless xx

Jenwen74 profile image
Jenwen74 in reply to

Beautiful sunshine helps yes!!!! Bless you x

Donna_39 profile image
Donna_39

Hi Jen, I’ve just had a rant on my post to sorry your having a bad night to the pain is so bad for us all at times you can’t put it into words hugs and healing to you hun

Fairbrass31 profile image
Fairbrass31

Hi jenwen. Just wanted to say hello and welcome. I am also new on here but have to say it’s generally full of a bunch of lovely people who make you feel so welcome. Almost like an extended family. I hope you are finding some relief from your pain and wish you all the best xx

Jenwen74 profile image
Jenwen74 in reply to Fairbrass31

Thank you x lots of pain today unfortunately

kimar profile image
kimar

Hi jenwen. Sorry you are having a flare up. The neck is the worst!. Gentle hug to you.

Jenwen74 profile image
Jenwen74 in reply to kimar

Thank you x

Are you a new member Jen

Jenwen74 profile image
Jenwen74 in reply to

Yes yesterday x

glo100 profile image
glo100

Hello there duc this Web site is brilliant glad you hv found it the people on here are lovely and friendly and anything you need to no about fibro just ask duc theyv helped me a lot on here even when iv had a moan about other thgs ha. Hope your feeling abit better luv glor x

Jenwen74 profile image
Jenwen74

Thank you bless you. I feel awful today. Doctor managed to see me this evening and he is sending me for blood tests tomorrow. Swelling and pain is getting me down a bit. X

Jenwen74 profile image
Jenwen74

Thank you Ajay. I tried accupuncture 2 days ago. Did not work. I feel awful today and saw my gp this evening. Blood tests at hospital tomorrow to check my kidneys and see if any infections etc. I feel bad tonight.

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