Always tired.

[Taffette09]

I have not written on here for awhile but follow all of you every day reading everything thats posted. The smallest little thing i do makes me so tired,trying so hard to keep positive but its also very soul destroying when your skin hurts to touch all the time. I try by doing yoga and using the hydro pool when i can. But i feel that this invisible illness is wearing me down so very badly. Ive lost my positive attitude any ideas how to get it back.😢😢😢😢😢

[Hidden]

It's the fatigue that gets me down too. I feel I can deal with pain. ( though Saturday was a bad, bad day pain wise) It's the fatigue that's limited my life down to so little.

I've tried everything I can think of--- vitamins, protein shakes, ribose, none seems to cause an improvement though I might be worse without them, who knows.

Today I've had to run errands so now I've got a choice, Hoover or walk the dogs, I know I won't manage both and forcing it will mean tomorrow in bed.

Somewhere there must be a solution to the fatigue.

[Rosepetal60 in reply to Hidden]

I recently had a private blood test done, as my tiredness has been worse than usual. Think there were 11 tests, one of which meant I needed to see my GP.Message me if you would like details.cant post more on here as this post is unlocked..

[Hidden in reply to Rosepetal60]

I think we've probably had the same 11 blood tests, as I got mine done privately too. Mine showed up B12 deficiency ( GP wasn't interested, I treated it myself) and TSH higher than it should be but again, not bad enough for a GP to do anything about.

I've given up going to GP, they're totally disinterested.

[Rosepetal60 in reply to Hidden]

Yes, that must be the same test. My ferritin levels are very high so I'll be having an NHS blood test to "confirm" the result. Can't come soon enough. High ferritin can cause tiredness. the thyroid tests all came back as OK for uk. I'm not totally convinced.. There's a PS to this.

[Hidden in reply to Rosepetal60]

hi, just read your post and i'm really interested to hear which results. were they successful. anything to help with the fatigue ?

[Rosepetal60 in reply to Hidden]

Sent you a pm.

[Mandypandy1969]

I am exactly the same. x

[Beautifulbirds]

So sorry it has got you so fun down I have just said a prayer. My only way to get by is listening to calm music beautiful scenes in my tablet and uplifting words. I also started attending the Salvation Army church and live with faith now it really helps me

[YASMINTINA FMA UK Volunteer]

Differently ask for some bloods to be done just to eliminate anything else , have you been to see anybody about cfs it might worth your while to see doctor about getting a referral, I was referred to a clinic and been told I’ve CFC/me as well as fibro. Yes the tiredness does get you I’m trying vitamins not sure if they are helping and having my bloods checked this week ,we can all relate to you so gentle hug coming your way. As Ajay says good idea to lock your posts lots of love xxx

[Twinkle0411 in reply to YASMINTINA]

Hi there YASMINTINA, I too have CFS/ME on top of fibromyalgia I get so tired at the simplest of things do you. I had the CFS/ME first but I’m struggling a lot at this moment as I seem to be getting worse than better. Can I ask how you manage. I no longer work and I’m still struggling with pain I’m on codeine paracetamol as can’t have ibroprofein meds. I take a multi vitamin too. Nice to meet you xxx

[YASMINTINA FMA UK Volunteer in reply to Twinkle0411]

Hi again Yes not able to work now ,having my young grand boys for a whole day my husband has to be with me now, on the good days I task my self with either ironing or hovering etc and break the bungalow in to different days to tackle different rooms , I leave food shop to a day that I feel like going in the car, tell people if I’m do to go out for a coffee etc if I’m not up to it expect to come in for a visit instead. I’m on duloxetene and prescription codiene 15mg x 4 a day but when I’m laid up I tend to leave it off , love my warm baths and now weather has changed I can lay for ten/15mins to top up on vitamin d. For me winter is the hardest and want to hibernate . Yes take vitamins cod liver oil, vit d , vit c turmeric, was b12 as well but been told to leave that off as it has put my b12 levels up , but properly will go back on it eventually . Nice to meet you too, people are so supportive and kind . My hobbie is gardening so not able to weed much now , nice to buy some plants and grow things in my greenhouse think that why spring/summer is more up lifting for me . Is there anything you enjoy ???? Xxxxx

[Horsesgalore]

I struggle with the fatigue too & it get me down, I've had some success taking guarana from Healthspan, it is supposed to give you more energy.

[YASMINTINA FMA UK Volunteer in reply to Horsesgalore]

I understand it does get you down so restricting . Today I managed car ride daughter drove to a farm for couple hours with my little grand boys I felt so good but when I came home crashed out but so lovely I got to do that today as we miss out on so many social things it’s heart rending . The horses were lovely the Suffolk punches (we live in Suffolk) think their numbers have declined over the years . Saw mother with her foal beautiful. Xx

[Horsesgalore in reply to YASMINTINA]

How lovely seeing the Suffolk Punches, they're gorgeous horses x

[Horsesgalore in reply to YASMINTINA]

How lovely seeing the Suffolk Punches, they're gorgeous horses x

[Jennyw59]

Sounds very familiar! My social life is virtually nil now as too tired and uncomfirtable to sit for any length of time in the pub chatting etc i'm much better keeping moving. I love my greenhouse too - nice and warm in there! I love my grandkids to bits but am shattered when they've been staying as I don't get any regular rest. I used to clean right through the house now i'm afraid it's one room at a time thats more than enough - I could do with a cleaner really but working very part time because of fibro doesnt give me enough money for one. Despite all this I try not to get too down as there are a lot off people much worse off than me. I just accept that's the way it is and try to pace myself and not feel too guilty about a bit of dust!😊