Hello

[Shirina]

Hi I have just been diagnosed with Fibromyalgia after about 2 years of chronic pain & fatigue. Am I the only one to say that even very strong pain killers don't work at times?

[Annmurry]

I agree x

[Shirina in reply to Annmurry]

It really is terrible especially when the pain is at its highest.

[Annmurry in reply to Shirina]

Im on gabapentin 600g in morning and 300g afternoon and evening. And also 40g on fluxotine. And im still in pain

[Shirina in reply to Annmurry]

Is there anything that makes your symptoms a tad better?

[Annmurry in reply to Shirina]

Sleep unfortunately works for me but i have a active 2 year old so its very limited

[Ramjets]

Hi Shirina, I think many will agree that a lot of conventional painkillers are ineffective when it comes to fibro pain. I am sure other sufferers will be happy to share ways in which they try to manage their pain however can I just mention that you will probably receive more replies if you lock your post. You don't have to but many of our members are not too keen on responding to unlocked ones as it means the whole thread can be read by internet search engines. Instructions on how to do this can be found on the link below but if you get stuck please don’t hesitate to ask for help.

healthunlocked.com/fibromya...

In the meantime welcome to the forum, I am sure you will find lots of help and support from our friendly members plus there is plenty of useful information and links on our main site so you may like to take a look at this at some point:

fmauk.org/

Take care and we look foward to getting to know you better. x

[bfegan]

Yeah your right they don't have much affect.

[Dizzytwo]

Good evening and a very warm welcome to our lovely friendly group

I see the lovely Ramjets has already explained about locking your posts if you wish to and gave you the link. If you need help doing this or with anything else please just ask. We are always happy to help if we can. I hope you have a very pleasant evening xx

Momo

[Bjosephine]

yes I agree with you - if you get relief from any treatment I try and see it as a bonus but it's very hard to always be positive - so just have a good scream!!

[Nipper11]

I understand how you feel. I lived with this illness a long time as I got odler the painkillers stop working so well. I came off tramadol. gabapentin. Naproxen. Which was so hard but the side effects were too bad. I looked for otherways to support my pain and movement. I now use a Tens machine. Use a walking stick when needed. Take vitamins. Eat blueberries. Strawberry. take vitamin C . Keep moving. List to relaxing music. Make time to rest and do small jobs to make you feel better. Do not let pain make you a victim. Kick back where you can and smile at the mirror every day. None of these things are easy. God bless and good luck . There are many people on this site who deal with more than one conditions and they have often giving me inspiration by reading there posts.

[Mandie6911]

I agree completely, I take 8 Dehydrocodeine every day, and the pain is still there, Amitriptyline at night defo helps me sleep, but when the pain is at its worst they don't help

[Poppy_the_cat]

Hi Shirina, I am very sorry to hear you have received your diagnosis.

In some ways I should imagine it's a relief to know you are not going mad, but still all the same it's not much fun.

I found when Fibromyalgia was at its worst for me in the early years (18 years now since I have had it) the only thing that helped me was a holiday to a warm hot place! Even my sleep would improve... One can argue that being away from it all one is more relaxed, which to some extent I think is true; if we are relaxed, we can assume that is the opposite of stressed, and stress increases our cortisol levels...and high cortisol levels stop us sleeping at night when we should... However, I think there is more to it.

Usually going away to a hot Sunny climate....the clue is in the 'sunny', it means we will be producing our own vitamin D thanks to sun exposure. Vitamin D is vital for our health.

Low Vitamin D has severe effects on our health in all manner of ways. Chronically low levels can have very, very serious negative effects. Specifically for Thyroid, poor levels of Vitamin D can be most injurious.

Vitamin D deficiency can promote poor sleep. Please research Vitamin D deficiency. My Nutritionist recently told me that although I scored 80, for my Vitamin D, I could comfortably push it up to 100.

Sleep being the allocated cycle during which our body 'self repairs' it is vital to good health. Poor sleep or no sleep will only worsen Fibromyalgia's symptoms of pain and aching joints and all the dreadful headaches and all the other ghastly list that accompanies it...

You need to try and improve your sleep.

Diet can also help you.

Inflammation caused by certain food particles when entering the blood stream directly, via a damaged or leaky gut will only add to the pain of Fibromyalgia, as the immune system reciprocates with an inflammatory response. The last thing we need is more inflammation.

If you suspect you might have a leaky gut, keep a diary. Record what you eat and how you respond. Start with a process of elimination. Cut out wheat, gluten (bread and pastries and biscuits for example)...,exclude cow dairy, milk and cheese etc...and look out for Soya, avoid it if at all possible.

Record your progress...

Then you can also help yourself by eating vegetables with strong colours; carrots, tomatoes, red peppers, red onions- search on the internet for properties of antinflammatory foods.

Prebiotics, help you sleep (fibre with high quantities of Inulin, such as Red Chicory- research on the internet. Inulin also comes in powdered supplement form).... PREbiotics feed the Probiotics. The Probiotics are beneficial gut bacteria. Look up Kefir. I recommend water based Kefir if you are dairy intolerant. You can brew it yourself at home. It will be cheaper and better than what you can buy.

A good informative site on food and nutrition and vitamin etc is;

draxe.com

Good luck. With a little calm effort you can do a lot to help yourself battle through. Don't give up.

Best Wishes😉

Poppy the 🐈