Fibromyalgia Action UK
41,111 members53,212 posts

First session of Pain Management

Today I had my first 3 hour session of pain management. 13 other people ( all female ) were there. Everyone has their own pain but the common factor is that we all have pain. I said that I would report back how sessions went. Main message that I got from today is that everyone’s pain is real. They believe that we all have and experience pain even if there is no medical explanation for it. Amputees who suffer pain in the leg that has been amputated have real pain. The brain is passing pain messages to and from where the leg had been before amputation. Therefore, the pain that we are all experiencing is all very real. Our brains are passing messages to and from the nerve endings. I probably haven’t explained this very well but I know that a lot of people in this site have been more or less told by a health professional that their pain is “ all in your head “ . Well I was told “ no brain, no pain” !

I wanted to laugh and suggest that maybe I need to have my brain removed . ( joking! )

26 Replies
oldestnewest

Thank you so much for reporting back to us hun. It must’ve felt good knowing people actually believe you do have pain.

I’ve no idea how you managed to stay there for 3 hours though, you must be absolutely exhausted hun. Please get some rest now and try not to overdo things tomorrow. Take care and gentle hugs to you xx🤗

2 likes
Reply

It was a long session! Luckily we were encouraged to move about as much as we liked. I just feel that I’ve got to make a hi if this as running out of options. I’ll report back next week if there’s anything that could perhaps help others. I’ve been given so much encouragement and good advice from so many people on this site that I would like to give something back. Thanks for your caring text. Sleep well. Xx

3 likes
Reply

Go of not hi if - definitely tired!

1 like
Reply

Sounds like you are feeling positive after the session, hope that it helps your quality of life and you get benefit from it. Just being with others who understand how you are feeling and talking with them and their experience can be helpful.

Sometimes when the fibrofog strikes, I feel like my brain has been turned off or gone to sleep!! :)

Hope the next session goes well xxx

1 like
Reply

Thanks. I’m having a bit of a struggle just now and everything that you’ve said is true. It certainly helps to speak to others who are going through similar experiences. Xx

Reply

Well done 👍 sweetie for staying that amount of time. I went to pain management a couple of weeks ago and only managed to stay for 2 hours out of 2.1/2 hours. There were 4 of us and we had to go in and see 4 professionals and be asking the same questions over and over again and I couldn’t take it anymore so after seeing the 3 one I left because I was feeling so ill with them bombarding me with the same questions.

However when I use to see my old gp before he retired he told me to keep saying to myself no pain no pain to help switch off the signals going to my brain as the brain can forget to switch off. If you understand what I mean. Thank you for posting sweetie. Love and hugs 🤗🤗🌹🌹xx

1 like
Reply

I do understand exactly what you are saying. I would not have managed one to one interrogations! I don’t blame you for leaving. This was much more relaxed and the people taking the session were nice and seemed to understand the impact that pain has on our lives. Well fingers crossed the course at least helps me to manage the fibro a bit better. Thanks for your reply and I hope you have a good day. Xx

1 like
Reply

It was really tuff going for me. I am pleased that yours was more relaxing. Have a lovely day and take good care. Love and hugs 🤗🤗🌹🌹xx

1 like
Reply

Thanks. I am so sore that you had a bad experience. We definitely don’t need that! Sending you lots of good wishes. 😘

1 like
Reply

Thank you sweetie. Have a lovely day. Love and hugs 🤗🤗🌹🌹xx

1 like
Reply

Sorry

Reply

if that advice would work it would be amazing . we could also try telling out brains we are millionaires lol then we would not need to apply for benifits etc ....pgp

2 likes
Reply

I attended a 12 week course of pain management and if im totally honest it didnt teach me anything i was already doing, each week was a different subject and there were handouts each week which we collected in a folder and sometimes did a small amount of homework filling in forms or keeping a diary of foods we ate or how many hours we walked or exercised.

Every week there was a 15-20 minute exercise circuit that we all had to do to the best of our ability while being watched

I went because my GP wanted me too, at the end of the 12 weeks, i didn't think it had done anything for me.

The base of the whole 12 weeks was about pacing, meditation, breathing exercises, relaxation methods and to make sure we take some exercise each day. Maybe it was just my area, but i didn't find the course helped me at all, i hope you get more out of yours than i did.

2 likes
Reply

Sounds quite similar. I just feel I’ve hit to give it a hi so going with an open mind. I’m sorry your course didn’t help you. Xx

Reply

Didn’t find it any good

Reply

This is very true...

My dr told me all these over the counter minor pain meds that claim they go straight to the PERIOD PAIN! Straight to the JOINT PAIN!!

Is all 💩as the pain we feel is in our brain it is know as the pain receptor!

So all real pain meds turn that of for a while to give us some relief! It not saying ur not in pain in certain areas but it ur brain that telling ur body that it is in pain. So that why alot of people meditate as u can train urself to turn ur pain receptor and brain down a few notches so u can get some relief.

So all these pain meds that claim to cure certain things is basically 💩 aless it is a med given to u by a dr that has been fundamentally approved for that.

Hope that explains this?

Also alot of people with fibro prob have a oversensitive pain receptor so it confused so it sends out mad signals telling ur body it hurts here one min and there a next min.

1 like
Reply

Thanks - a really good explanation! Xx

Reply

Thanks lol i only got that info from a good gp , id like to pretend im that intelligent but im not

1 like
Reply

im now experiencing what i can only describe as being encased in pain chainmail i feel like my whole body is now doing joined up pain . if you get my drift . less of the localised aches and all joined up stuff pgp

1 like
Reply

So sorry to hear that you are having so much pain. I hope that you find some way of lessening it. This fibro really sucks. Thinking about you and sending you painfree wishes . Xx

1 like
Reply

Hi mcglada, I have not been offered any pain management by my GP apart for physio. It was interesting to read your account of what went on at the session and the explanation they gave regarding real pain. I wonder how many present had Fibromyalgia? Thank you for sharing.🍁

1 like
Reply

I’m really not sure but I would imagine that as course progresses I will get to know more about the other members of the group. The common factor at this stage is chronic pain which is affecting all of our lives. Some people seem to know what is causing their pain, others like me - well it’s just a mystery! I wish I had a brain that sends the right messages! 😂😂. Thanks for your text. Xx

1 like
Reply

Just been to the info session for this, have been going to one to one physio sessions once a month for over a year. The Physio's super power was empathy and just talking and being listened to by her was good for the soul, never really helped with the pain and all the other things but always went away from these sessions feeling refreshed mentally and more able for the daily fight. The Doctor in charge of the clinic has decided that I would be better in a support group on a 12 week course 3 hours a week, don't know when it starts or how it will go but will follow your post to see what to expect. Good luck with the rest of your sessions.

1 like
Reply

Hi . I have been to my second session now and I am finding it nice to be with other people who can empathise in a positive way. Even in the group we’re all different but we do have the common link of pain and having lost the life that we once had. There is a young girl in our group who has such bad pain and I really can’t get her out of my mind. It also really helps you to think beyond yourself to others who are suffering. Pacing and meditation this week. I am really going to try and take on board the pacing tips as I like everyone else find this so difficult. Yesterday I had a lovely morning with a friend. When I got home I felt really quite ill and so fatigued. Woke up feeling really bad and couldn’t understand why I was feeling like this . Then it dawned on me that the day before I had 3 hours at pain management then daughters who has a baby then collected older grandson from school, took him to dancing and then collected him. It says it all! I really hope that you enjoy your sessions at the PM clinic and benefit from the sessions. Go with an open mind and I’m sure that you’ll come away with something helpful. I’ll put a post about the pacing on site. Good luck and let us know how you get on. Xx

1 like
Reply

Thanks for the reply. Will let you know how I get on once the sessions start. Had been in a group discussion before and there was so much negativity in the group found it hard to give or get support so hoping for a better experience this time.

1 like
Reply

I do hope that the people who are in your group this time, have a positive attitude and want to get something out of the sessions. The people in my group laugh quite a lot which is quite uplifting. Yes please let us know how you get on. X

Reply

You may also like...